About Muscular Dystrophy Logo, Downriver Michigan
There are many reasons for this page. While there is much information on Muscular Dystrophy on the Internet and various other places. I wanted to provide a place where much of that information could be located easily.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedrich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

If you read as much as I have from the conventional medical field you tend to lose hope of a treatment or cure.

My feelings are do as much as you can. I never accept what the doctors tell me and I do things they say I can't do. My younger brother never let his condition stop him as long as he could keep going he did and attempted things even I didn't consider.
Whatever it is you want to do. Try to find a way even if it is difficult.

Do you have a poem or story? Send it here


Upcoming Events: Events I intend to attend
May 30 & 31 2008
Jimmy Martin Memorial Bluegrass Festival
Things I like to do
Here I will try to cover some of the things I deal with (symptoms as well as improvements) This part is purely personal for me.
Archives for previous years are here
Nov 2007 Posted 12/15/07 Dec 2007 Posted 1/10/08 Jan 2008 Posted 2/04/08
Feb 2008 Posted 3/02/08 Mar 2008 Posted 4/11/08
Symptoms This is what my case was based on as of May 2004.

Current case This is my current case Apr 2007.
I hope to get feedback from people visiting this page with more options. E-Mail

Lisa from Ohio Matt Sept 2007

FANARAMA They make custom decorated fan blades and they donate $2 of each sale to MDA
Do you like Music?
Oldies
Bluegrass/Gospel
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