About Muscular
                  Dystrophy Logo, Downriver Michigan



There are many reasons for this page. While there is much information on Muscular Dystrophy on the Internet and various other places. I wanted to provide a place where much of that information could be located easily.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedrich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

If you read as much as I have from the conventional medical field you tend to lose hope of a treatment or cure.

My feelings are do as much as you can. I never accept what the doctors tell me and I do things they say I can't do. My younger brother never let his condition stop him as long as he could keep going he did and attempted things even I didn't consider.

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"







Conventional

Sources of information from conventional medical resources
MEDLINEplus Good resource for information Friedreich's Ataxia Research Alliance Good site for information on research etc.
Cell Therapy Research Foundation I think this shows some promise INTERNAF Some good info here
IDEBENONE I found this interesting
Symptoms of Friedreich's Ataxia MDA We all know about the telethon etc
Euro-Ataxia Newsletter Euro-Ataxia is an international non-profit organization formed by national ataxia groups throughout Europe. Its seat is in Belgium.
New Insight Gained In Muscular Dystrophy...  

BOSTON, -- U.S. scientists have identified a key genetic  
component of, and possible therapeutic target for, Duchenne's  
muscular dystrophy. The disease is the most common form of  
muscular dystrophy, affecting about 1 in 3,000 males each  
year. It is an X-linked recessive disease, in which mutations  
in the dystrophin gene causes progressive and degenerative  
muscle weakness. Bruce Spiegelman of the Dana Farber Cancer  
Institute and colleagues using a mouse model found a protein  
called PGC-1alpha activates the expression of several genes  
that are aberrantly inactivated in the disease. By inducing  
PGC-1alpha expression in transgenic mice, the scientists were  
able to improve disease symptoms. "These data clearly show  
that experimental elevation of PGC-1 alpha has therapeutic  
promise in an animal model of Duchenne's muscular dystrophy,"  
said Spiegelman. "We hope this will lead eventually to thera-  
peutics for a terrible disease for which there is no effective  
treatment at the present time." The research appears in the  
journal Genes & Development.  

I read this in a newsletter I subscribe to Health Tips Weekley

If you read as much as I have from the conventional medical field you  tend to lose hope of a treatment or cure.

I have been working on another site where I have a blog which is one of the reasons these pages have not been updated recently. If you have questions or suggestions please post them there http://www.godstunes.com/blog/?cat=13 Do you like Music?
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