| There are many reasons for
this page. While
there is
much information on Muscular Dystrophy on the Internet and various
other
places. I wanted to provide a place where much of that information
could
be located easily.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedrich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
email me
If you read as much as I
have from the
conventional medical
field you tend to lose hope of a treatment or cure.
My feelings are do as much as you can. I never accept
what the doctors tell me and I do things they say I can't do. My
younger brother never let his condition stop him as long as he could
keep going he did and attempted things even I didn't consider.
Do you have a poem or
story? Send
it here
I'm afraid there was no way to make this short as there
is lots of information here. Some may apply to many people and some
only to me. I have to make another point here...I use homeopathic
remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I
asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
homeopath
as soon as possible"
Conventional
Sources of information from
conventional
medical
resources
| MEDLINEplus
Good resource for information |
Friedreich's
Ataxia Research Alliance Good site for information on
research etc. |
| Cell
Therapy Research
Foundation I think this shows some promise |
INTERNAF
Some good info here
IDEBENONE
I found this interesting |
| Symptoms
of Friedreich's Ataxia |
MDA
We
all know about the telethon etc |
| Euro-Ataxia
Newsletter Euro-Ataxia is an international non-profit
organization
formed by national ataxia groups throughout Europe. Its seat is in
Belgium. |
|
New Insight
Gained In
Muscular Dystrophy...
BOSTON, -- U.S. scientists have identified a key
genetic
component of, and possible therapeutic target for,
Duchenne's
muscular dystrophy. The disease is the most common form
of
muscular dystrophy, affecting about 1 in 3,000 males
each
year. It is an X-linked recessive disease, in which
mutations
in the dystrophin gene causes progressive and
degenerative
muscle weakness. Bruce Spiegelman of the Dana Farber
Cancer
Institute and colleagues using a mouse model found a
protein
called PGC-1alpha activates the expression of several
genes
that are aberrantly inactivated in the disease. By
inducing
PGC-1alpha expression in transgenic mice, the scientists
were
able to improve disease symptoms. "These data clearly
show
that experimental elevation of PGC-1 alpha has
therapeutic
promise in an animal model of Duchenne's muscular
dystrophy,"
said Spiegelman. "We hope this will lead eventually to
thera-
peutics for a terrible disease for which there is no
effective
treatment at the present time." The research appears in
the
journal Genes & Development.
I read this in a newsletter I subscribe to Health Tips Weekley
|
|
If you read as much as I have from the conventional medical field
you tend to lose hope of a treatment or cure.
|
