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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


Oct 2003
This page starts from when I took the second remedy I suppose this is considered my constitutional remedy (I have to wait a month after taking it to see what I do next)

Wed Oct 8 2003. Went to bed at 3am, got up at 8:30am. Bladder ok. Ears still ringing, still dragging feet. Remedy came today...took it at 1:30pm. Haven't noticed much since taking the remedy (you did say it was slow acting). I started out today with more ambition (before the remedy came but I was expecting it). My feet again feel like shoes are tight (also feel like they are burning a little...more feeling?...not sure). Have been able to hold my bladder for a long time if necessary today.

Thurs Oct 9 2003. Went to bed at 4am, got up at 9:15am. Bladder ok. Back hurt when I got up (low... just above belt line) eased up after moving around. Legs are sore and I haven't done anything. Testicles sore on left side.

Fri Oct 10 2003. Went to bed at 3am, got up at 11:30am. Bladder ok. Don't notice anything either better or worse today. I have been thinking more about things I need to do (possibly I would have been doing that anyway but I'll see if I start taking action on any of it). Legs are very sore but I don't seem to be feeling that sensation of falling forward as much when on a slight downgrade. Had an episode of sneezing tonight with a clear discharge from nose.

Sat Oct 11 2003. Didn't lay down till about 6am (was doing a major upgrade on a website), couldn't go to sleep and finally got up at 9am. Tried to go to sleep several times today but couldn't. Finally managed to drop off sitting in my chair watching tv and woke up with a stiff neck (occiput) and a headache, along with a sore back. Have a sore spot on my tongue (left side near the tip) can't see anything...it's just sore. When I laid down my feet hurt (just behind toes...felt like either my toes were trying to pull up and were aching or it was a pain like cold). I haven't taken anything for the headache because I didn't want to risk maybe antidoting the remedy. Bladder is ok now...had to urinate more frequently early today.

Sun Oct 12 2003. Laid down about 3:30am (still had a slight headache), got up at 9am (head and neck still felt bad). Very stiff when I got up. Left knee having some pain. Ears still ringing. Keep pulling up rugs because I drag my feet over them. Knees simply would not bend earlier (most of this is old stuff that I may be working back through so I'm waiting to see if it improves). I expect to go back through the old symptoms. I feel like I'm complaining lol. On the mental's: I find that I get aggravated easily.

Mon Oct 13 2003. Laid down about 5am (left arm sore just below shoulder and left knee sore). woke up about 11:30am. Was having trouble getting down the hall because of shoulder and knee, leaked some before I could get to the bathroom, bladder was very full and urinated for a long time. Shoulder doesn't hurt to touch it but if I extend it, it feels like bone pain (shoulder pain in the past was usually the right shoulder. Everything seems to be on left side at the moment (shoulder pain, knee pain and stiff neck). Plugged up nose (can't blow it out but it will go down throat). Have a sore place inside lower lip that popped up as I was eating. Sore spot on my tongue is gone.

Tues Oct 14 2003. Went to bed at 6:30am, got up at 11:30am. Took awhile to go to sleep (groin pain). Bladder is good, ears still ringing, left knee is more sore than hurting now. Left shoulder is about the same, right shoulder is sore. Mental's are good...have a little more ambition. Sore all over (left shoulder, left knee, left calve, lower back). Urinated a little more than I had been...was clear (I think because I was going more). Stools are coming a little easier.

Wed Oct 15 2003. Went to bed at 6am, got up at noon. Last night I noticed a sore spot on my face (left side just past chin, feels like an ingrown hair but looks blistered, have two more spots but not sore on right arm midway between elbow and shoulder). Knee was sore this morning (left), feels a little better after putting shoes on and moving around. Ears still ringing, bladder seems ok, have a knot in pit of stomach. Almost feels like a headache...no pain but heavy feeling in base of scull. Eyes seem to be blurry today (maybe I'm tired...eyes are burning and things look blurry, can't see small print up close, seems to get clearer at certain distances). Joints crack when I get up.

Thurs Oct 16 2003. Was sitting at computer late at night and left foot started jerking (felt like it was being stuck with a pin on bottom of foot).Went to bed about 5:30am, got up at 10:30am. (don't seem to want to go to bed at night). Still tired when I get up but have no desire to stay in bed. Blister on face is gone, the 2 on right arm look like very small scratches. Left shoulder feels ok (no pain). Right shoulder sore (not bone pain like left one was), sore in front of shoulder and back of upper arm. Left knee doesn't have the pain when I walk so far today (sore spot just below knee cap). Mental's are good, mood seems to be up and have more ambition. Bladder seems ok. Stomach making weird noises...much gas.

Fri Oct 17 2003. Went to bed about 3:30am (slight headache, then again I did drink about half a bottle of wine...yes I know better), got up at 11:30am. Stiff and sore (had trouble sitting up). Throat was dry and burning (back where sinuses come into throat). Blew nose and got blood out, Naturally had bad taste in mouth (sensation of taste of dried blood). Left knee a little more sore than yesterday (just below kneecap). Left arm not hurting, right shoulder less sore. Ears still ringing. Seems like eyes blur early and clear up some later (maybe that is one of the reasons I stay up so late....I see better?). Stretched legs and held them out straight off the floor longer than I think I could have a week or so back. I was getting dressed and it seemed slightly easier to move my feet (was only a slight improvement but I think it was there). For the past few nights I seem to get a slight headache every evening (not a bad one...I can still function).

Sat Oct 18 2003. Went to bed about 3:30am, got up at 11am. Just before I woke up I was having a dream about money problems and being behind on the bills. Did not feel rested at all when I got up. Tried to lay on left side last night and couldn't go to sleep (feet felt heavy and they hurt), slept on right side and right shoulder is sore today. Had 4 cups of coffee and bladder has been more difficult to hold (not a real problem as long as I'm home). Corners of mouth feel like they are about to crack and it feels like a blister starting on upper lip about 1/2" from right corner.

Sun Oct 19 2003. Went to bed about 2am, got up at 10:30am. Had trouble sitting up as I was very stiff. Last night from my knees down it felt like legs and feet were burning. As you requested I cut the coffee down to 1 cup today. Bladder has done very well today. Legs are very stiff and sore and feel weak. Back hurts a little (low back). Ears ringing. Emotional state still not good. Blisters on mouth and lips haven't popped out but corners of mouth are still feeling a little sore.

Mon Oct 20 2003. Went to bed about 2am, got up at 10:45am. Had trouble sitting up (very sore). Bladder was good (didn't have to go right away). While I still drag my toes some I have noticed a tendency to pull toes up more than before. Legs are stiff and have some pain. Ears still ringing. Have noticed a tendency to stretch legs out and hold them there (without getting the cramps in them). Last night it felt like my feet and lower legs were burning. I think I'm still going back through some old symptoms which are painful and aggravating but also necessary I know. The mental's are harder to deal with, depression, feeling pushed aside, unwanted, taken advantage of, (these are all hitting me at once), again I hope they are short lived. Have developed a slight headache today, right forehead just above eye (humidity is high today). Back of legs feel tight.

Tues Oct 21 2003. Went to bed about 4:30am, got up at 11am. Slept part of the night on left side, turned over because my back was hurting. Both shoulders sore from laying on them. Have noticed a tendency to stretch and push up on my toes when I stand up (maybe those reflexes are improving). Left knee was sore last night and left leg felt weak (seems better so far today). Mental's are a little better.

Wed Oct 22 2003. Went to bed about 4am, got up at 11:15am. Tried to sleep on left side last night (couldn't fall asleep but not from pain at least). Right shoulder sore from sleeping on it. Feels like I'm picking feet up better today (lifting toes when I step and bending knees). Legs are still stiff. Mental's seem ok. Gas pains. Got tired and started having trouble picking feet up again. Had a stool (watery, almost like colored mucous) was one violent blast then nothing else. Legs got very tired and shoes felt tight in the evening. Starting to feel extremely bored.

Thurs Oct 23 2003. Went to bed about 4am, got up at 10:45am. Woke up laying on left side with a headache on that side (starting on left base of skull working around to left eye). Very stiff (had trouble getting up). Left leg sore and left knee stiff. Everything seems to be left sided today. Headache eased up some about 6:30pm (didn't go away left side of head still sore). Was one of those headaches that wears you down. Have wanted to sleep all day and legs feel shaky tonight.

Fri Oct 24 2003. Went to bed about 2am, got up at 9am. Didn't urinate before bed, woke up at 4am, went back to sleep, finally got up to urinate at 6am. Seemed to have less trouble when driving today up to the point where I started getting tired (which happens pretty quick). Mood has been down today (money worries). As the day wore on I started getting the headache again (eyes tired, from base of skull on left around into left eye).

Sat Oct 25 2003. Went to bed about 3am, got up at 11:30am. Headache got worse overnight. Very tired and moody all day. Tendency to stand on outside edge of right foot. Ears ringing very loud during headache, went from left side to right. Headache had eased up late in the evening but head still feels tight.

Sun Oct 26 2003. Went to bed about 2am, got up at 10am. Almost stayed in bed too long as I was feeling the headache when I got up. It eased up after I got up but neck feels tight (I think maybe I should see my chiropractor). Have noticed I'm turning left foot out when I walk (it had been pretty much straight), right foot still staying straight for most part (toes turn out slightly now and then). I used to walk with toes on both feet at about a 45 degree angle so it may be an old symptom returning. Left knee is a little sore and I go from balance feeling a little better to it being a little worse (I'm sure my neck and head feeling strange has some effect on the balance). Ears still ringing. Right shoulder sore from sleeping on the right side. Left foot has gotten better today (only turning out 10 to 20 degrees now...about the same as right foot). Seem to be dropping the toes on right a little more than left but able to pick toes up without dragging them heavy. Was reading up on nosebleed tonight since I have been getting them and having the headaches and realized that is the remedy I'm taking also.

Mon Oct 27 2003. Went to bed about 2:30am, got up at 10:30am. Felt like I was getting the headache again but it eased up. At night when I raise my head from pillow I get vertigo till I lay my head back down (have done this for some time, I have always assumed it was coming from neck being out). Lower lip just to right of center felt like it was about to blister last night (feels better this morning). Had trouble sitting up this morning (very stiff). Left knee sore when I walked. Nose plugged up. Mental's not good or bad. Knee eased up after walking some. Gas again, stomach sore.

Tues Oct 28 2003. Went to bed about 3am, got up at 11am. Have had gas and when I go I have mainly been releasing gas. Have been very sore today (legs and hips). Feel like I'm stepping better but not positive if it's really physical or mental. Noticed a pimple last night just above right eyebrow near bridge of nose. Last couple of nights feet feel like they are burning and sweating with shoes on (they used to always feel cold).

Wed Oct 29 2003. Went to bed at 5am, got up at 11:15am. Had gas when I got up (stomach sore). Bladder has been good (haven't had to get up at night in some time). Very stiff and sore. Ears still ringing. Toes almost straight when walking, standing on outside edge of feet a little better. Kinda sore in hips and pelvic region. Walked more today than I had been and left knee got very sore tonight. Pimple still over right eyebrow.

Thurs Oct 30 2003. Went to bed at 2:30am, got up at 12pm. Stiff and sore. No headache. Lower lip had the sore spot again so I went and looked (has a purple looking spot on it, sore like a split, almost looks like a blood blister that is almost dried up). Pimple above right eyebrow smaller and not sore to touch. Ears ringing very loud. Left knee feels better but left pelvic region feels sore. Have felt kinda down today.

Fri Oct 31 2003. Went to bed about 2am, got up at 10am. Restless, had trouble getting in a position where I could sleep...must have been 4am before I went to sleep. Legs felt weak and sore when I got up. Pimple over right eyebrow looks more dried up and smaller. Place on lower lip looks like it spread out a little but not as sore. Ears still ringing. Feels like I'm dragging toes a little more today. From waist down pain etc seems worse on left side. Still feels like I'm being taken for granted and taken advantage of at home.

Sat Nov. 1 2003. Went to bed at 3:30am, got up at 12pm. Woke up several times but went back to sleep (sleeping that late bothers me but just can't bring myself to get up). Bladder is still doing good. Ears still ringing loud. Still stiff and sore. Lost balance in the dark last night and had to lean against wall so I could stay standing.

Sun Nov. 2 2003. Went to bed about 3:30am, got up about 1pm. Woke up several times but went back to sleep. Difficult getting up, left knee sore and low back pain, legs stiff and sore. I think I was dreaming but can't remember what it was about. Felt like something restricting leg movement tonight (pants twisted or just something pressing on upper legs to restrict movement).

Mon Nov. 3 2003. Went to bed about 2:30am, got up at 11:15am. Kept waking up last night sweating so I would take covers off then would get cold and cover back up then would sweat again. Am more sore today (all over, legs, back, shoulders). Ears ringing still. Bladder good. Eruption over eyebrow almost gone, dark spot on lip seems better. Had the headache for about 5 days straight last month but then it stopped (maybe going back through an old symptom?).

Tues Nov. 4 2003. Went to bed about 5am, got up at 9am. Legs tired but don't ache as much. Feel sleepy and eyes burn. Ears ringing. Pimple above eyebrow as good as gone, place on lower lip almost gone. Lips feel like they are ready to blister around outside edges...upper and lower. Stomach cramps, loose bowel movement. Bladder ok. Feels like a headache starting tonight, occiput left side (maybe from being tired). Legs starting to ache, feet burning and jerking.

Wed Nov. 5 2003. Went to bed about 1am, got up at 9am. Legs ache making it difficult to walk. Back sore, right shoulder sore. Neck is sore and still feels like a headache coming on. Nose is stopped up, throat is dry from drainage. Legs got a little more sore as the day progressed. I realize I haven't said much about the mental's in awhile: Basically I'm finding a tendency to not care about cleaning up and getting dressed....I have been spending time reading about homeopathy and haven't cared about contact with people. I prefer to be alone and have my thoughts to myself. Get the feeling people are being critical even when maybe they don't mean it that way.

Thurs Nov. 6 2003. Went to bed about 3:30am (was still awake at 4:30), got up at 9am. Ears were ringing so loud last night it kept me awake. Left foot jerked a couple of times while I was trying to go to sleep. Was stiff when I got up but legs didn't ache as much. Kink in lower back. Nose drainage (bad odor). Feeling of deja vue but it turns out I really did know what the wife was getting ready to say (would discount it except it was something unusual that I couldn't have expected).

Fri Nov. 7 2003. Went to bed at 3:30am, got up at 8:20am. Can't seem to sleep at night then have trouble waking up. Still tired and sleepy when I got up, Legs stiff, eyes burn, nose dry and burning (maybe from humidity being pulled out by furnace). Bladder good. Legs tired and feels like I have started hyper extending my knees more the past few days again.

Sat Nov. 8 2003. Went to bed about 2am, got up at 11am. Felt like I was getting a headache when I got up, back of neck still tender about 3 hours later. Left knee feels tender (slight pain when walking). Legs stiff. Pain moved from left to right knee after moving around. Ears ringing very loud.

Sun Nov. 9 2003. Went to bed about 2am, got up at 9:45am. Full bladder but not urgent. Very tired but couldn't go back to sleep. Legs tired and sore. Ears ringing loud. Noticed today toe on right shoe is wearing faster than left so I must be dragging it more. Had some potato chips yesterday and the day before, lips feel like they are going to blister (probably a good idea to avoid chips). Difficult to walk with legs this sore (it hurts).

Mon Nov. 10 2003. Went to bed about 1:30am, woke up at 7:45am. Stayed up. Tired but I did get up. Legs feel weak and still sore. Throat dry, slight headache (went away after about 1/2 hr.). Bladder full but was not urgent. No ambition to do anything today although I forced myself to work a little.

Tues Nov. 11 2003. Went to bed about 2am, got up at 8am. Have been feeling more tired in legs and weaker in legs everyday. Knees are ok just legs hurt from being stiff and tired. Bladder has been ok, ears ringing very loud. Upper left arm hurts (pain like in the bone). Raised my head to turn over last night and got dizzy (vertigo?). Mood is down today...have no ambition to get out and do anything (too tired). Having trouble not turning right ankle when I step.

Wed Nov. 12 2003. Went to bed about 2am, got up at 8am. Very sleepy, sore and stiff. Had trouble going to sleep last night (right shoulder sore and couldn't lay on right side). Took 3 or 4 tries to stand up this morning. Stomach sore and feels bloated. Ears still ringing. Legs very sore (hurt). Holding Bladder ok but when I go it doesn't feel like I completely empty bladder.

Thurs Nov. 13 2003. Went to bed at 1am. got up at 8am. Legs still hurt, ears still ringing. Pain is starting to take it's toll. Didn't eat all day and had to urinate more. Nothing urgent just more than I had been going. Waiting on the remedy to get here...didn't come today. Feet feel heavy (like I can't pick them up off floor).

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