About Muscular Dystrophy Logo, Downriver Michigan
 
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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


July 2004
Was out of town some this month and was mainly maintaing with the cell salts. As I said last month it will take some time.

Mon July 5 2004. Have been out of town for a few days. Main thing I noticed was legs got very sore. Was dragging toes and right ankle turned easily but seemed able to lift leg to step up better. Went to bed at 1:30am last night, got up at 10:15am. Was on the road coming home till 9pm. Held bladder good and legs aren't as sore, feel pretty good.

Tues July 6 2004. Went to bed at 2:30am, got up at 9am. Have started having trouble holding bladder at night and in morning, is better in afternoon. Right calve is sore, Sore to the touch too. Right ankle turning. Kinda frustrated and depressed today.

Wed July 7 2004. Went to bed at 5:15am, got up at 11am. Stiff neck when I got up and full bladder. Legs a little less sore but still dragging toes. Feels like maybe I can lift my feet a little easier. Low back is a little sore. Ears ringing (seems to be worse at night). Legs are sore again and right ankle turning tonight. Will be gone again for about 4 days.

Sun July 11 2004. Had some bladder problems while I was gone but taking the remedy helped. Right leg is still sore but not as bad as it was. Was having a real problem picking feet up today (dragging toes heavy).

Mon July 12 2004. Went to bed at 1:30am, got up at 10am. Was starting to get a headache when I went to bed, was worse when I got up. Got up with a full bladder early in the morning, then again when I got up at 10. Headache was in back of head around to eyes with stiff neck all the way down to shoulders with nausea. Took a couple of aspirin and ate some toast, it finally went away. Still dragging toes but not as bad as yesterday, balance is still pretty bad.

Tues July 13 2004. Went to bed at 2:30am, got up at 9:30am. Full bladder when I got up but wasn't urgent. Balance off (almost fell because left knee gave out). Keep having tendency to pitch forward when I stand. Very tired and back of neck stiff and eyes feel sore.

Wed July 14 2004. Went to bed at 2:30am, got up at 11:30am. Bad headache this morning (mainly back of neck). Still had the stiff neck when I went to bed. Legs a little sore.

Thurs July 15 2004. Went to bed at 12:30am, got up at 8:30am. Neck stiff so I got in a hot bath to relax (helped some). Legs feel tired, right calf sore.

Fri July 16 2004. Went to bed at 2am, got up at 8am. Legs very stiff and sore today. Have some desire to do things but find it easy to convince myself not to do anything. Left hand keeps cramping since last night.

Sat July 17 2004. Went to bed at 3:20am, got up at 10:20am. Had full bladder when I got up but not an emergency. Legs stiff and sore, trouble bending knees and ankles turn. Ears still ringing (never stops just gets louder sometimes). Legs get tired very fast.

Mon July 19 2004. Went to bed at 1:30am, got up at 8:30am. Right ankle hurts when I lay down (like foot is heavy putting pressure on it). Bladder has been good. Ears ringing loud. Legs tired. Can't be sure yet but seem to catch myself attempting to do things I had given up trying to do (would be in the mental/emotional area rather than physical).

Tues July 20 2004. Went to bed at 4:30am, got up at 10am. Left knee tender and sore. A little agravated with people so I would rather just be by myself (not real interested in talking to anyone). Feel tired and ears still ringing. Whole left leg giving me trouble, dragging left foot and some pain in leg but mainly knee. Have still been attempting a few extra things (not always possible but I want to do them).

Wed July 21 2004. Went to bed at 3:30am, got up at 8am. Left knee still hurts, legs feel tired and it's hard to move around. Was hot today and got a headache that seems to be from getting too hot, started sweating and took a long time to stop.

Thurs July 22 2004. Went to bed at 3:30am, got up at 11:50am. Left knee still sore (last night both legs ached). Felt a little better today but felt very tired and dragging toes.

Fri July 23 2004. Went to bed at 3:30am, got up at 11am. Left knee hurts. Bladder is good but constipated. Feel tired but want to do things.

Sat July 24 2004. Went to bed at 3am, got up at 11:30am. Legs gave out when I tried to bend down to pick clothes up from floor. Realized today that right shoulder has stopped hurting (don't know when it stopped, I hadn't realized it before). Left knee still a little sore but feels better. Tonight I got a link in my neck, left side....very sore. Bladder has been good, haven't needed to take Equisetum in awhile.

Sun July 25 2004. Went to bed at 3am, got up at 11am. Neck is still a little tender but better. Ears ringing. Right shoulder feels good. Bladder good. Had some gas pains when I got up. Left knee feels ok but right ankle turns easily. Some back pain today.

Mon July 26 2004. Went to bed at 6am, got up at 10am. Neck very stiff and painful (left side and back of neck down into left shoulder). Kept getting worse so finally took some Rhus Tox, left side of neck eased up but back of neck still stiff. Had no desire to move at all.

Tues July 27 2004. Went to bed at 4am, got up at 11am. Got that electric sensation in neck and head when I raised up. Went away after moving around, back of neck still tender. Legs feel sore and weak. Have been relatively pain free today, legs are stiff and weak but no pain. Bladder still good.

Wed July 28 2004. Went to bed at 5am, got up at 10:30am. Electric sensation in head and neck when I raised up (not as bad as yesterday). Right knee sore, legs and back weak and sore. Bladder feels like will be a little more of a problem today. Not much pain today so hopefully that trend will continue.

Thurs July 29 2004. Went to bed at 5am, got up at 11:30am. Left side of face felt sore when I laid it on my pillow last night. Electric sensation not as bad this morning. Legs have been tired and sore today. Seem to be more tired when I get up than I was when I went to bed.

Fri July 30 2004. Went to bed at 6am (was still awake at 7:30), got up at 12:30pm. Tried to lay on left side but had the sensation that feet were heavy and it put pressure on ankles (mostly right ankle). Very tired when I got up, legs shaky and weak.

Sat July 31 2004. Went to bed at 1am, got up at 10:45am. Back hurt all night (painful when I would turn over and would wake me up). Cramps in lower legs when I got up (had only taken cell salts twice a day for past 2 days...my fault). Neck sore to the touch on left side...feels ok just sore when I touch it. Back of neck tight, feels like a hradache trying to start.

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