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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


August 2004
Have been mainly taking the cell salts. Some ups and downs but I think some slow improvement.

Sun Aug. 1 2004. Went to bed at 7:30am, got up at 11:30am. Head was sore on both sides when I would lay my head down on the pillow, restless trying to go to sleep. Slight headache, right temple. Legs sore.

Mon Aug. 2 2004. Went to bed at 3:30am, got up at 12:30pm. Neck sore all night, woke up with a headache and sore legs and back. Bladder bothered me some early yesterday so took a dose of Equis and it settled down. Headache persisted all day, took silica twice and it finally eased up tonight. Ankles have been turning bad.

Tues Aug. 3 2004. Went to bed at 4:30am, got up at 12:15pm. Sore all over (back, neck, legs etc). Eased up after awhile except for legs (they stayed sore all day). Seem to be having trouble going to sleep, then feel worse when I wake up (more tired, feel sleepy, it's like I didn't get any sleep).

Wed Aug. 4 2004. Went to bed at 2:30am, got up at 11am. Restless trying to go to sleep last night. Sore when I got up, legs sore even after moving around. At least have some desire to do things.

Thurs Aug. 5 2004. Went to bed at 2:30am, got up at 10:30am. Kept waking up but was still very tired. Legs weak and sore when I got up. Sleepy all day and lazy. Legs a little sore all day but not much pain.

Fri Aug. 6 2004. Went to bed at 3am, got up at 11:30am. Tossed and turned all night, couldn't go to sleep (when I finally did couldn't wake up this morning). Had some raw onion at dinner last night and it had my stomach messed up. Left knee sore today and legs feel weak, feet heavy. Kinda down today (maybe from not being able to sleep).

Sat Aug. 7 2004. Went to bed at 3am, got up at 11:30am. Tossed and turned all night again. When I got up had some leg cramps, now the legs are sore from it. Slipped on bathroom floor getting out of the tub, kinda sore but it isn't bad. Mood is down, don't have any desire to eat and think I have lost weight.

Sun Aug. 8 2004. Went to bed at 3am, got up at 12:15pm. Trouble going to sleep again and extremely sore when I got up (left shoulder, left side of neck, back and legs, probably had something to do with the fall). Kinda have a headache (think it's coming from the neck). Headache hasn't went away (did ease up a little after a very hot bath).

Mon Aug. 9 2004. Went to bed at 2:30am, got up at 12pm. Major low back pain when I got up (probably from laying too long), eased up after moving around some. Legs feel kind of weak but not so tight (guess I would have to say they feel a little better). Left shoulder is still sore from the fall on Sat. It is nothing major but the pain level has been better since I started taking the cell salts. I am curious if I should get more specific about which ones I take or stick with the Bioplasma?

Tues Aug. 10 2004. Went to bed at 4am, got up at 9:45am. Ordered the individual cell salts last night (should be here by the end of the week). Took a dose of Bryonia 30c last night (tongue still has the brown spots but lighter than they were). Pain level is good today and managed to stand to put clothes on better then I had been. I have mentioned this before I think, when I put left foot flat, right ankle turns. Ended up with a headache (left temple and above left eye), probably from staring at computer screens and stress.

Wed Aug. 11 2004. Went to bed at 4am, got up at 11:45am. Still had a headache when I got up (left side, near eye). Low back and legs sore. Tongue a little lighter. Legs feel tired today and have been avoiding walking because of it.

Thurs Aug. 12 2004. Went to bed at 5am, got up at 12:15pm. Legs shaky and weak but no pain. Realized late last night that even though ears are ringing it hasn't been as loud the last couple of days. Coating on tongue was very light this morning.

Fri Aug. 13 2004. Went to bed at 6am, got up at 10am. Kinda tired. Had a cup of coffee before checking tongue so it was a little darker but looked better after awhile. Legs a little sore. Ear ringing is pretty low. Got the individual cell salts today and have started taking them in addition to the Bioplasma, nothing to report yet but feel hopeful about it.

Sat Aug. 14 2004. Went to bed at 4:30am, got up at 10:30am. Tongue a little lighter coated when I got up. Legs were very stiff and knees locking. Legs a little sore. Ears had not been ringing as loud but when I laid down in bed it got louder and pitch was high. Today ears are ringing loud again. Seem tired but have been working on a computer for hours so I have been sitting more than usual.

Sun Aug. 15 2004. Went to bed at 4am, got up at 11:45am. Had a stiff neck and headache when I got up, legs very stiff (hard to bend knees). Tongue pretty clear. Not feeling real sociable today (maybe depressed a little).

Mon Aug. 16 2004. Went to bed at 4am, got up at 10am. Felt ok but legs stiff. Balance has been worse since yesterday. Right ankle turning a little worse. Nose has felt plugged up and mood has been down (easy for someone to depress me). Tongue looks ok, coating very light. Past few nights feet have felt very cold.

Tues Aug. 17 2004. Went to bed at 3:30am, got up at 11:45am. Felt ok other than a bad headache when I got up which went away after awhile.

Wed Aug. 18 2004. Went to bed at 2:30am, got up at 7:45am. Very tired today and knees sore. Feels like a pinched nerve in back of neck, left side, burning pain when I move a certain way. Feet feel heavy.

Thurs Aug. 19 2004. Went to bed at 3:15am, got up at 9:30am. Right calf sore like I was about to get a cramp. Last night right temple sore to the touch. Ears ring louder when I lay down. Balance seemed a little better this morning but right ankle still turns when I stand. Was out some today and my knees hurt.

Fri Aug. 20 2004. Went to bed at 3:30am, got up at 9:30am. Legs tired when I got up. Feet were very cold when I went to bed (up to about my knees, lower legs and feet). Still feel sleepy. Looked like the brown spots on my tongue were starting to come back a little today.

Sat Aug. 21 2004. Went to bed at 5:30am. got up at 11am. Right ankle kept turning when I would stand and kept losing balance. Difficult to pick feet up today. Had to urinate often so I took a dose of Equis. Nose tended to run some (clear discharge, don't feel like I have a cold). Have had a little sneezing a couple of times in the last week. Tongue looks ok today so I will wait on the Bry for now.

Sun Aug. 22 2004. Went to bed at 3:30am, got up at 11:15am. Right ankle turned when I stood up, balance was good for me but standing on outside edge of right foot. Nose still plugged up some with some sneezing. Sat out in the sun for about an hour or so and felt like I was starting to get a headache from it (mainly top of head), went away after I got out of the sun. Tongue looks ok. Noticed the past few days I have dark circles around eyes (may be from not getting enough sleep or maybe I just hadn't been noticing it).

Mon Aug. 23 2004. Went to bed at 3:30am, got up at 11am. Was walking on cement all day and ended up with a headache (top of head). Back was sore in bed and legs were sore.

Tues Aug. 24 2004. Went to bed at 3:30am, got up at 11:30am. Very tired all day (wanted to sleep). Legs still sore and back is stiff. Back of neck tight with a slight headache in back of head. Bladder has been good, tongue looks good. Had some sneezing last night. Ears haven't been ringing as loud all the time but occasionally will get very loud.

Wed Aug. 25 2004. Went to bed at 3:30am, got up at 11am. Bladder was full but not urgent. Very stiff and bad headache (back of head, left side and nose plugged up). Left knee pain and it kept giving out on me. Right ankle turned but not as bad when I stood and I was able to stay standing while I got dressed (normally I lose balance and have to sit down to keep from falling).

Thurs Aug. 26 2004. Went to bed at 5am, got up at 12pm. Very sore in my back, weak shaky legs and just feeling sore all over. Took the Bryonia tonight so hopefully will feel better tomorrow.

Fri Aug. 27 2004. Went to bed at 6:30am, got up at 9:30am. Was tired but I didn't know what time it was till after I was up. Legs not hurting too bad (a little in left knee). Some low back pain but not too bad. Kept catching my feet on each other today, or I would step on my own toes or start to step and my knee wouldn't bend so I couldn't take the step. Hurt bottom rib on left side last night and that has been sore but I know what happened and I expect it. Have felt pressure several times today to have a stool but mainly get gas out.

Sat Aug. 28 2004. Went to bed at 5am, got up at 11am. Bad headache and neck stiff. Legs felt weak. Back very sore. Could have a little to do with the weather (we had a bad storm last night). Not in a very good mood and prefer to be alone today.

Sun Aug. 29 2004. Went to bed at 4am, got up at 12:30pm. Legs feel sore and both ankles turning when I stand (not as bad with shoes on). Knees stiff and won't bend easily. Even though I'm tired and tend to drag my toes a little it feels like I'm able to walk a little easier and the pain is minimal.

Mon Aug. 30 2004. Went to bed at 5:30am, got up at 12:30pm. Had trouble going to sleep and got up once with a full bladder. Didn't feel very good when I got up, legs and back sore. Legs shaky and tired, knees wouldn't bend, urge to stretch legs.

Tues Aug. 31 2004. Went to bed at 5:30am, got up at 11am. Back and legs hurt (more a sore feeling than pain), Very stiff (knees won't bend). Have desire to do things but it is so hard to get up to do them. Shoes feel tight.

 
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