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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


September 2004
Have been mainly taking the cell salts. Some ups and downs but I think some slow improvement.
Wed Sept 1 2004. Went to bed at 2:30am, got up at 9am. Lots of pain when I got up (back and legs). Pain eased up some after being up for awhile. Right knee still hurts and legs feel very tired, back hurts when I bend back to streatch. Middle finger on right hand is very sore (joint pain?).

Thurs Sept 2 2004. Went to bed at 3:30am, got up at 9am. Low back pain, legs sore to the point of pain and weak, cramp in left calf. Feet feel heavy and don't have the energy to get up to do anything.

Fri Sept 3 2004. Went to bed at 3:30am, got up at 11:30am. Took Bry 200 last night (3 drops, 7 succussions). Minimal pain this morning. Did have the electric feeling in my neck when I got up. No leg cramp but calf is sore like I had one in my sleep. Left calf still sore after all day and neck is stiff. Have felt chilly all day, was warm outside (everyone else called it hot but it felt good to me), in the house with the air running I feel cold.

Sat Sept 4 2004. Went to bed at 4:30am, got up at 12:45am. Took Bry 200 last night (4 drops, 7 succussions). Pain is down more today (even middle finger on right hand has very little soreness). Have been feeling down today, even being on my computer now was a major effort...don't have the ambition to do anything.

Sun Sept 5 2004. Went to bed at 5:30am, got up at 12pm. Had been sweating in my sleep and eyes were sore as well as back of neck. Left calf sore again (either I had a cramp in my sleep ot the one I had before was really bad). Right ankle turns, knees lock and back is a little sore.

Mon Sept 6 2004. Went to bed at 2am, got up at 11:30am. Not much pain. Knees a little sore and dragging toes. Ears ringing.

Tues Sept 7 2004.Went to bed at 4am, got up at 12:30pm. Very tired and still sleepy when I got up. Low back pain, middle finger on right hand hurting again. Legs tired and knees sore. Knees won't bend (worse than normal). Right elbow hurts (maybe laid on it while I was asleep).

Wed Sept 8 2004. Went to bed at 5:30am (was still awake at 7am). got up at 12:45pm. Back hurt, finger on right hand hurt which kept me awake, legs hurt. Took Bry 200 today (8 succussions, 3 drops). Pain has eased up a lot. Having trouble getting myself motivated to do anything. Knees don't want to bend if I have any weight on my legs. Balance seems a little better tonight. Ankles turn while trying to stand.

Sun Sept 12 2004. Went to bed at 3am, got up at 11am. Have missed doing my log for a couple of days (been pretty down and haven't done anything). Today was worse. Very stiff and sore today, not in a good emotional place but it won't last.

Mon Sept 13 2004. Didn't go to bed last night so am very tired today but can't go to sleep.

Tues Sept 14 2004. Went to bed at 3:30am, got up at 10am. Avoided my computer yesterday and all day today. Legs feel very tired and balance is pretty bad. Ears ringing very loud. Have some sore pain (finger on right hand), sore to touch and movement or pressure aggravates. At times there is no pain and I think maybe it's gone but it comes back.

Wed Sept 15 2004. Went to bed at 4:30am, got up at 9am. Back of neck felt sore when I laid down, slight headache when I got up. Dragging toes bad when I went to bed. Legs feel very tired and back of neck feels bad on left side. Was sitting and my grandaughter was running the vaccum and I got very lightheaded and dizzy (like my head was floating). Headache wearing me down (took silica twice and it never got so bad I couldn't function).

Thurs Sept 16 2004. Went to bed at 4am, got up at 11am. Had a headache when I woke up (whole left side of head), very stiff, couldn't stand unassisted, difficult to walk. Headache eased up after eating something. Legs hurt for awhile earlier today, not painful now but they are very tired. Legs from knees down feel cold at night and feet are so cold it is painful.

Fri Sept 17 2004. Went to bed at 7:30am, got up at 9:30am. Couldn't sleep (back hurt). Kept losing balance when I would stand. Right ankle and knee turing.

Sat Sept 18 2004. Went to bed at 4am, got up at 9:15am. Took awhile to fall asleep. Knees popped and cracked when I would bend them in bed. Ears are ringing loud. Leaked a little when I went to urinate this morning so I took some Equis.Left side of neck and shoulder got very painfull (maybe from sitting under a ceiling fan). Eyes also got sore and are very tired.

Sun Sept 19 2004. Went to bed at 5:15am, got up at 11:30am. Knees sore. Ears ringing. Very tired. Back got sore today. Feet feel cold. Not much energy and toes dragging and right ankle turns.

Mon Sept 20 2004. Lay down on the couch at 7:30am, got up at 11:30am. Was extremely sleepy but couldn't seem to fall asleep. Back hurt (was sore to the touch). Dragging toes (probably from being tired).

Tues Sept 21 2004. Went to bed at 3:45am, got up at 12pm. Sore and hurting all over when I got up. Leg cramps when I woke up (muscle spasm's, right leg). Very tired and slight headache (base of skull left side) and eyes sore.

Wed Sept 22 2004. Went to bed at 3am, got up at 10am. Very sleepy, stiff and sore. Unsteady standing. Took a dose of Bry. Nose felt stuffed up- got a little blood out with mucous. Have had some stomach pain and pressure for a few days - stools have been mainly water.

Thurs Sept 23 2004. Went to bed at 3am, got up at 9am. Felt a little better when I fot up, less pain and a little more steady standing. Have some tension and soreness (where neck and shoulders meet).

Fri Sept 24 2004. Went to bed at 3am, got up at 11am. Left wrist hurts. Legs weak and still feel sleepy. Tongue looking dark again. Have had some sneezing today.

Sat Sept 25 2004. Went to bed at 5am, got up at 11am. Left wrist still hurts (feel it when I move middle finger or put weight on it), not sore to the touch. Neck and shoulder very painful (right side) hurts when I use right arm or turn head, took some Rhus Tox, a liittle better but pain isn't gone. Tongue is still coated a dark brown.

Sun Sept 26 2004. Went to bed at 5am, got up at 10:15am. Neck still a little stiff (right side down into shoulder). Left hand and wrist still painful with pressure. Tongue still coated dark brown (heavier on back of tongue). Got pretty tired and started dragging toes bad later in the day but earlier I seemed able to pick toes up better and balance seemed a little better.

Mon Sept 27 2004. Went to bed at 4am, got up at 10:30am. Legs feel tired and feet jerking all day. Feet feel cold. Tongue a little less dark today (seems to have a film on it though).

Tues Sept 28 2004. Went to bed at 5am, got up at 11:30am. A little stiff and sore, legs feel weak and balance off a little. Tongue looks dirty at base, seems to be clearing up some at the front? Back felt sore in bed last night (lumbar region). Stomach making strange noises all day (things like water draining etc.).

Wed Sept 29 2004. Went to bed at 5am, got up at 11am. Esercised some yesterday and am having a rough day today, legs hurt and neck is stiff with a headache.

Thurs Sept 30 2004. Went to bed at 5am, got up at 11:15am. Stiff (knees don't want to bend and right ankle turns). Neck feels ok and no headache but legs still feel tired. Tongue seems to look better (still some dark brown at base getting lighter towards tip with a crack down the center). Low back felt a little sore today but seemed to get around well for me.

 
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