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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


October 2004
Most of the month only took cell salts. On the 23rd I tried something I had been thinking about for some time, so far it seems to be helping but it's a matter of waiting and watching now.
Sat Oct 2 2004. Yesterday was very tired (didn't get much sleep). Right knee wouldn't bend and right ankle turned when I would step. Went to bed at 4am, got up at 11am. Ate a couple of bagles late yesterday and noticed a blister coming out on my upper lip (right side about 1/2 inch from corner) before going to bed (had not taken the Bioplasma). Still there today (took the Bioplasma today and blister is almost gone). Extremely sore today, legs feel sore and stiff. Tongue is looking better.

Sun Oct 3 2004. Went to bed at 4:30am, got up at 12:30pm. Dinner felt like a hard ball in stomach last night. Tongue looks better. Ears were ringing very loud yesterday and the day before (not as bad so far today). Right ankle turning (stand on outside edge of right foot), try to force myself to put foot down flat.

Mon Oct 4 2004. Went to bed at 4:30am, got up at 11:30am. Was very sleepy when I went to bed but could not fall asleep (eyes popped open when I laid down). Very stiff and sore when I got up, right knee felt weak (was giving out when I would step with right foor), knees were locking and wouldn't bend...when one knee would losk was unable to pick oposite foot off the floor. Tongue is pretty clear (no dark spots, just a light coating). Ears ringing. Legs hurt (not what I consider real pain but not sure if someone else would call it pain or not).

Tues Oct 5 2004. Went to bed at 4:30am, got up at 12:30pm. Right ankle still turning. Electric feeling in head when I raised up. Feet were cold last night but seemed to be from half way between knee and ankle down (before the cold was from the knee down). Tired today. Tonge is lightly coated today (looks kinda slimy and white). Went from 6 Bioplasma 3 time a day to 7 3 times a day.

Wed Oct 6 2004. Went to bed at 4:30am, got up at 10:30am. Neck and head pain when I got up (eased up after moving around). Legs hurt (stiff and sore). Tongue clear, (a little darker at base but better as it got towards tip), crack down middle but that won't be seen when coating goes away. Headache came back after awhile (took 1 dose of silica 30c and a hot bath, eased up enouigh to live with). Ears ringing loud and dragging feet (having trouble picking them up).

Thurs Oct 7 2004. Went to bed at 3:30am, got up at 11:30am. Neck stiff and hurting when I got up. Legs went straight and almost slid off the bed (could not bend knees or relax legs). Seem to have more problems after going up to 7 Bioplasma so I cut it down to 5 3 times a day. Have to adjust the dosage till it seems right. Left knee got sore late in the day.

Fri Oct 8 2004. Went to bed at 5am, got up at 11:30am. Neck sore from the way I was sleeping (tend to lay on right side mostly). Legs stiff and feel tired (mainly back of legs and feet). Feet felt icy cold before I went to bed (maybe shoes were tight cutting off circulayion), didn't feel as cold when I went to bed (felt just cool to the touch).A little better than yesterday so I'll do 5 Bioplasma 3 times a day again today. Left knee sore (not pain really but a twinge in it with a weak feeling).

Sat Oct 9 2004. Went to bed at 3:30am, got up at 11:30am. Neck hurt, legs sore and tired with a little more pain in left knee. Doing some experimenting so stopped the Bioplasma and switched to Calc Phos 6X 3 3 times a day. Knee has stopped huirting, neck is better, legs are tired but no pain. Still tend to stand on outside edge of feet but hasn't been too bad.

Sun Oct 10 2004. Went to bed at 3am, got up at 11am. Knees were sore but legs seemed a little stronger. Had leg cramps during the night which woke me up so added mag phos 3 3 times a day.

Mon Oct 11 2004. Went to bed at 6am, got up at 12pm. Feet didn't seem as cold (cold seems to be moving further down legs daily). No more leg cramps so far. Legs tingle some but it seems they are a little stronger. Continuing with just Calc Phos and Mag Phos.

Tues Oct 12 2004. Went to bed at 5am, got up at 12pm. Had trouble going to sleep (mind too busy). Seemed better able to stand when I got up (legs do feel tired).

Wed Oct 13 2004. Went to bed at 5:30am, got up at 1:30pm. Did not want to wake up, very stiff (almost fell). Having a rough day (very tired). Legs don't hurt just tired.

Thurs Oct 14 2004. Went to bed at 4:30am, got up at 1pm. Took awhile to go to sleep (foot, toes and leg itching....right side). Feet felt warmer the last couple of days. Left knee has felt a little sore. Toes seem to pull up (good sign for me since I always drag my toes).

Fri Oct 15 2004. Went to bed at 5:30am, got up at 11:30am. Feet and legs were just cool last night (felt pretty comfortable). Ears have been ringing pretty loud for a couple of days.. Am experimenting with the Calc Phos and am going down to 1 pill 3 times a day to see what happens. Haven't noticed a change either way today.

Sat Oct 16 2004. Went to bed at 6am, got up at 10:45am. Legs and feet felt a little colder in bed last night but they warmed up after a little while. Legs feel a little strange (tingle and sore). Based on the fact they feel a little worse I went up to 2 Calc Phos 3 times a day (I'll adjust it till I find the minimum amount that works). In the mode of thinking back (about family, kids etc) today. Had trouble picking feet up late in the day (may have to go back up to 3 pills tomorrow)

Sun Oct 17 2004. Went to bed at 4am, got up at 12pm. Some bladder problems but I'll wait and see if it continues before taking Equis again (may be temporary). Feet were kinda cold when I went to bed. Legs sore after walking a bit and had trouble standing on my own. Went back to 3 pills. Still having trouble holding bladder tonight, made up Equis 5c and took a dose, will see how I do tomorrow.

Mon Oct 18 2004. Went to bed at 5am, got up at 11:45am. Feet felt ok when I went to bed, after a little while feet got cold (felt like a cold draft but feet were covered). Equis seemed to work out, bladder feels better. Could stand a little better. Ears are ringing loud and legs are still stiff.

Tues Oct 19 2004. Went to bed at 4am, got up at 12pm. Headache when I went to bed (left temple and left eye), neck and legs stiff when I got up. Balance worse than yesterday. Right leg feels weaker than left. Pain in right foot (top behind big toe). Pain in left hand (outside edge between wrist and little finger). Going to 4 Calc Phos and adding Mag Phos 3 pills 3 times a day. Ears ringing pretty loud.

Wed Oct 20 2004. Went to bed at 5am, got up at 1pm. Legs weak and almost gave out when I got out of bed (feel really weak), went back down to 3 Calc Phos. Had trouble falling asleep when I went to bed, feet didn't feel cold till I got in bed but they warmed up pretty quick. Ears still ringing loud.

Thurs Oct 21 2004. Went to bed at 5:30am, got up at 12:30pm. Legs weak and achey today. Pulling sensation, top of legs in back. Knees hard to bend making it difficult to go downstairs (even more than usual). Right ankle turning bad. Feet have felt fairly warm. Ears still ringing.

Fri Oct 22 2004.Went to bed at 5:30am, got up at 12:30pm, No differencr in the way I feel today. Changed from Calc Phos to Calc Sulph 4 pills one time. Since taking the Calc Sulph, legs have stopped hurting (within about 15 minutes), feet still tingle and almost feels like a burning sensation. Ambition has also picked up.

Sat Oct 23 2004. Went to bed at 5:30am, got up at 12pm. Gave in last night and had to do it (tried Heloderma 30c, 1 poppy seed in 25 ml, succuss 7 times, 4 drops under tongue). For the first time in years my feet and legs were warm when I went to bed. Legs felt looser, knees popped a lot when I would bend them. Knees are a little sore today but no pain. Stood up to pull pants up and seemed pretty stable (I usually have to sit down several times because I lose my balance). Feet still feel warm. Hadn't noticed it earlier but I realized tonight my ankle hasn't turned all day. Ears still ringing loud.

Sun Oct 24 2004. Went to bed at 6am, got up at 11:30am. Feet were warm when I went to bed, couldn't really tell if they felt cold or it was a burning sensation later on (they felt warm to the touch). Ankles still seem to be ok. Knees not as sore today. Slight headache, neck and eye (right side, probably from the side I slept on), trying Sil 6X on it. Headache just about gone by 3rd dose os silica. Legs kinda tingle (maybe I just have more feeling in them?). Had to take a dose of Equis tonight. Left ankle turned after getting out of the bath (had usually been the right previously). Feet feel cold once in a while but are warm to the touch.

Mon Oct 25 2004. Went to bed at 4am, got up at 10:30am. Balance was off (unsteady on feet in the dark) when I went to bed. When I woke up today left foot was cramping. Legs sore and a little unsteady standing (neck is sore which seems to be throwing balance off). Bladder is calm after the Equis last night. Have went around in the house with no shoes or socks on and feet feel fine (before would be ice cold).

Tues Oct 26 2004. Went to bed at 4am, got up at 11:30am. Woke up to left leg cramp just above ankle. Spasm in low back (settled sore). Legs stiff but feet still warm (probably improved circulation). Last couple of nights have gotten real tenderhearted (would tear up for a short time each night). Have been standing on outside edges of feet some (not as bad as before). When I stretch legs, toes pull up. Have been sneezing occasionally, nose stopped up but nothing much comes out.

Wed Oct 27 2004. Didn't go to bed, fell asleep in my chair sometime after 7am, woke up about 10:30am. Feet were pretty warm, had went barefoot for 2 days and feet had not got cold. Knees a little sore and ears ringing loud. Feel pretty tired today but don't have any pain.

Thurs Oct 28 2004. Went to bed about 5am, got up at 12:15pm. Bladder full but not urgent, got dressed before going in bathroom. Feet are still warm. Have constant pressure to have a stool (but it is mostly mucous like). Could stand to pull pants up but had to sit down to finish (started losing balance). Ankles started turning last night (seems better today so maybe I was tired). Ears still ringing. Neck was sore last night (left side in back, sore when I moved but not to touch), feels better so far today.

Fri Oct 29 2004. Lay down on couch about 6am, may have dropped off for a short time, got up to urinate about 8am, lay back down and woke up at 11am. Felt like I may have been dragging toes a little more since late yesterday. Got out of the bath today and had trouble with right ankle turning, left knee locked and couldn't sit down, pulled pants up and had to sit down as I was pretty unsteady on feet. Left knee has locked up where I couldn't sit about 4 times today. Feet feel like shoes are too tight (burning sensation), mainly when I'm sitting.

Sat Oct 30 2004. Went to bed at 4am, got up at 11am. Neck hurts from the side I slept on (right side, down into back and shoulder), pretty painful, whole right side...neck, low back, hip and leg. Pretty down today. Started taking calc phos and mag phos for the stiff neck (it isn't gone yet but it does feel better). Ears ringing loud and dragging toes a little more.

Sun Oct 31 2004. Went to bed at 3:30am, got up at 10am. Neck and shoulder pain has moved to the left side (lower in shoulder down into back), worse when I move. Hyper extending left knee, some knee pain and knee tends to give out if I am not careful. Feet and legs were pretty cold when I went to bed (used to be worse but not as good as they had been for the past week). Seemed like the Heloderma was wearing off so I took it about 1:30pm today (7 succussions, 4 drops). It lasted 7 or 8 days, will have to watch this time and see what happens. Feet are ok tonight 11:30pm, ears ringing, pain in left knee almost gone, can tell neck is still out but pain is almost gone.

 
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