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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


November 2004
Haven't noticed any big changes. I did try another remedy late in the month so it hasn't been long enough to know anything yet. I see some small steady improvement but still not as much as I think is possible with the right remedy.
Mon Nov 1 2004. Went to bed at 5:30am, got up at 11:30am. Legs a little tired and ears ringing. Some headache pain (base of skull left side). Stomach sore, stool is mostly mucous with constant urging. Left knee a little tender but no pain. Feet were cool but not really cold when I went to bed last night.

Tues Nov 2 2004. Lay down on couch at 5am, got up at 10am. Legs sore, neck stiff (right side), back stiff (right side). Slight headache (right side, back of neck and in eye). Don't notice it when I walk but legs seem a little stronger when I bend down.

Wed Nov 3 2004. Went to bed at 4am. got up at 10am. Exercised a little early today (right leg started bouncing after some exertion. Have been having my knees lock and difficult to pick feet up since. Neck stiff again when I got up. Have no real desire to eat or drink anything. Mood is down (but that is a personal issue with the wife). Right elbow is sore tonight (probably from the work out).

Thurs Nov 4 2004. Went to bed at 4:30am, got up at 10:30am. Neck feels better today. Legs sore so I will rest today and not workout. Don't seem to be dragging toes as bad (able to pick toes up a little better as long as I concentrate). It's nothing extreme but I do notice a little more of a desire to do things.

Fri Nov 5 2004. Went to bed at 4am, got up at 10am. Hurt everywhere when I got up (neck, head, back and knees). Knees locking up and difficult to bend. Do still seem able to pick toes up a little better even with the pain. Kinda down today (don't know if I'd say depressed but feel alone and sad). Getting a slight headache in left eye. Nose is plugged up but won't come out (will only go down the back).

Sat Nov 6 2004. Went to bed at 5:30am, got up at 10:50am. Neck sore (left side down into shoulder). Knees sore (they hurt when I walk). Balance pretty bad. Had that electric sensation in neck and head during the night when I raised my head from the pillow. Stomach has been sore for a couple of days. Right arm sore last night (upper arm and elbow). Took Heloderma this afternoon after I started having trouble with dragging toes, knee pain and difficulty stepping (8 succussions, 3 drops). Knee pain got a little better (at least for awhile), upper legs in back got sore when knee pain got better. Have knots on my knees just below the kneecap (the one on the right seems larger). Still dragging toes but will still go more.

Sun Nov 7 2004. Went to bed at 5am, got up at 12:30pm. Knees hurt to the point I almost couldn't walk. Left arm pain (just below shoulder, felt like it was in the bone). Knees locking up (mainly right) going down stairs, did much better going up stairs. Left hand getting cramps tonight. Hurt right ankle bending foot too far tonight. Aggravation?

Mon Nov 8 2004. Went to bed at 4am (still awake at 5), got up at 10:15am. Got up twice to urinate and went several times early in the day so took a dose of Equis. Knees still painful but a little less today. Neck feels better. Could stand a little better this morning. Low back is a little sore. Ears ringing. Pain is mostly gone from left knee, right knee still has some pain but it is better than it was. Bladder seems fine now.

Tues Nov 9 2004. Went to bed at 5am, got up at 11am. Raised up in bed and got that electric sensation in neck and head last night. Knees feel much better today (pain almost gone). Better standing today (more stable). Still have the pain in right elbow (feels like bone pain).

Wed Nov 10 2004. Went to bed at 5am, got up at 10:30am. Headache when I got up, was coming from neck (left side), eased up after moving around. Legs stiff, pain minimal, legs feel tired. Not as stable standing as yesterday but still an improvement from before. For the past few days I have been getting waves of sadness periodically (not sure why) and just can't make myself do the things that need to be done (bills etc.).

Thurs Nov 11 2004. Went to bed at 4:30am, got up at 9:45am. Had a very stiff neck and a bad headache all day. Upset stomach after a few hours, tried to go back to sleep but couldn't. Pain went from back of head all the way over head and into eyes and forehead. Tried 3 different remedies in the course of the day but nothing was touching it. Not real stable on feet this morning but with that headache wasn't able to think of anything.

Fri Nov 12 2004. Went to bed at 3:30am, got up ay 10:15am. Feet felt cold when I went to bed. Woke up with stiff neck and headache (nothing like yesterday). Dragging toes (hard to pick feet up). Feel very tired. Head feels bad (when I turn my head eyes are sore and feel sore inside skull). Eyesight is worse today (everything seems blurry). Ears have been ringing very loud for the past couple of days (seems louder when I lay down). Took Heloderma about midnight (7 succussions, 3 drops).

Sun Nov 14 2004. Went to bed at 3am, got up at 10:30am. Had headache in and above left eye all day yesyerday. When I woke up today head wasn't hurting so I got right up. Some pain back in left eye, I think the main problem is coming from neck because if I bend head forward I have pain, soreness and pulling down into left shoulder blade. Knees are sore today and dragging feet some. When I stand if I put left leg straight, right ankle turns. Both friday and saturday nights when I went to bed, left foot was very warm and right foot was cold. Last night the right foot seemed to get even colder after getting in bed. Left hand cramped last night, took some Mag Phos today...who knows maybe it will help the pain also.

Tues Nov 16 2004. Went to bed at 3:30am, got up at 9:30am. Bladder giving me problems yeaterday. Have company this week so I forget to do the log. Slept on the couch the last couple of nights. Was very stiff and sore and legs weak when I got up today. Have leg pain (took some Calc Sulph to see if it relieves that again).Afraid I may have antidoted the Heloderma with something I took for the headache the other day. Feet had sensation of being cold last night (feet were warm when I took shoes off) but it may be more of a burning sensation (seems to be only when I'm wearing tennis shoes).

Thurs Nov 18 2004. Went to bed at 3:30am, got up at 9am. Legs started getting sore again yesterday. Neck is stiff from the way I slept. Feet felt cold last night but it was cold so I expect that (I think maybe feet sweat so socks get damp and that is what makes feet cold?). Bladder has been worse (trouble holding it). Repeated Heloderma 30c (7 succussions, 3 drops) this afternoon.

Fri Nov 19 2004. Went to bed at 3:30am, (up to urinate at 5:30am), got up at 12pm. Having trouble holding bladder (maybe have been drinking more at night but having some trouble during day also). Took some Calc Sulph today (am experimenting with the different cell salts to see if they make a difference). Ears are ringing very loud the past few days. Vision is still dim and blurry. Ankle turns (mainly right) and keep stepping on my own feet.

Sun Nov 21 2004. Went to bed at 4am, got up at 10am. Took Equis Fri night, bladder was good yesterday and while I have been going more frequently today than I would like I can hold it. Legs are sore today, right knee was hurting yesterday. Took some Mag Phos today (still experimenting). My kids and my youngest grandaughter left to go home today so I'm a little sad. Vision still blurry. Have been very sore and stiff from sleeping on couch (like being stuck to velcro and can't move all night).

Mon Nov 22 2004. Went to bed at 4am, got up at 10:45am. Very sore (back and legs) when I got up. Knees hurt (eased up some after moving around). Could stand to get clothes on but didn't feel stable. Frequent urge to urinate but have been able to hold bladder. Mag Phos didn't seem to do anything yesterday so trying Silica today. Last two days I've noticed if I bend my right foot (like when I step uphill) it hurts on top of foot at ankle. Had pinto beans for dinner last night and lips got sore feeling like they would split later in the evening.

Tues Nov 23 2004. Went to bed at 5:15am, got up at 12pm. Both ankles turning bad this morning and both knees locking. Tried Calc Fluor today (so far haven't seen any real results from the cell salts I've tried. Had a little bit of a headache this morning but it went away. Very stiff and notice I was dragging toes pretty bad yesterday (there were times I picked my toes up ok so it wasn't constant). Trouble picking feet off the floor today (even while sitting). I have big knots right below kneecap and have a lot of pain in right knee (right where the knot is). Calc Fluor hasn't made any difference.

Wed Nov 24 2004. Went to bed at 5:30am, got up at 12pm. Didn't feel well today, headache (back of head and forehead into eyes, from left to right), low back pain (feels like it could break), legs very tired with knee pain (worse on right), ears ringing very loud (louder on right). Right shoulder feels like it may start hurting again (used to be very painful but had stopped). Right elbow hurts (sore to the touch like a bruise). Normally end up sleeping on right side so that may explain mainly right sided symptoms?

Thurs Nov 25 2004. Went to bed at 5am, got up at 11am. Stiff neck and headache. Hurt all over, very difficult to get up and move around. Right elbow still hurting. Ears still ringing (not as loud, still louder on right side). Very difficult to turn over in bed last night (had to sit up first). Feet felt colder after going to bed (felt like a draft under the covers). Made a paper remedy of Strontium Carbonicum and took it yesterday and today (don't notice anything yet) ordered the remedy tonight and will make it up for a water dose when it gets here. Took a dose of Calc Sulph tonight (still experimenting with cell salts).

Fri Nov 26 2004. Went to bed at 5am, got up at 1:30pm. Feet were ok when I went to bed but got very cold after I got under the covers (I think it was keeping me awake). Back felt like it would break when I got up and legs very weak and tired. Right hand sore, weak and cramping (took Calc Sulph and Calc Phos to see if they help any). Kinda down today (just don't want to do anything).

Sat Nov 27 2004. Went to bed at 3:30am, got up at 11am. Was sleepy all day yesterday. Still not perked up today (still no ambition). Ankles turning easily today. Woke up with back feeling like it would break again. Was pretty unstable on my feet while standing. Mood is still down.

Sun Nov 28 2004. Went to bed at 3:30am, got up at 11:30am. Back hurt but nor as bad when I got up. Legs very weak but not as painful. Ankles still turning and ears still ringing. Last night before I went to bed my feet started feeling very warm (almost hot, like a burning feeling) and the warmth started moving up my legs. I did take a dry dose of Sepia 30 last night. Today ,my feet still feel very warm. Right elbow not as painful and I didn't have the usual morning headache when I got up today. 

Mon Nov 29 2004. Went to bed at 5am, (couldn't go to sleep, was still awake at 7am), got up at 10:30am. No headache or backache when I got up. When I sat up and put my feet on the floor, right leg started bouncing (stopped doing that after I had moved around some). Legs are stiff and top back of legs are a little sore. No knee pain. Ears still ringing (was worse during the night). Right elbow felt pretty sore during the night but is only a little sore to the touch today. Have a pinched nerve in my neck (turned my head earlier and got waves of burning pain in my neck). Back got sore from standing and walking today. Feet are still very warm with the sensation of the warmth moving up legs.

Tues Nov 30 2004. Went to bed at 5am, got up at 11am. Leg cramps woke me up (calves of legs), Took Mag Phos 6X for it (mouth was so dry the pills wouldn't dissolve for a long time. Feels dry in throat from sinus drainage way in back where sinuses drain). Legs tired but could be from the cramps (not all of it but a big part)...I wonder if maybe I have been getting leg cramps in my sleep causing legs to feel more tired when I get up? No headache, knees feel ok, back isn't hurting but knees are locking when I stand and are difficult to bend. Balance not very good standing this morning. Low back started getting sore later in the day. Right elbow still sore.

 
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