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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


Dec 2004

Wed Dec 1 2004. Went to bed at 4am, got up at 12:45pm. Back a little sore when I got up but no pain. Right elbow doesn't hurt as much (still a little sore). When I got up legs felt like they were about to start cramping. Legs stiff. No headache. When I got up earlier to go to the restroom had that electric feeling in head and neck when I raised my head (that may be from a pinched nerve?). Right elbow got pretty sore after using that arm for awhile. Ears are still ringing and mood is strange (don't really feel bad just prefer solitude and don't really look for interaction with people). Have taken Calc Phos 6X today (1 pill, twice today).

Thurs Dec 2 2004. Went to bed at 4am, got up at 10:45am. Back was sore but wouldn't call it pain. Legs a little stiff (maybe not as bad) and felt like the leg cramps were starting. Knees still locking some and balance still not real steady. No morning headache. Kinda looks like the sepia is working as long as my back doesn't feel like it will break in the morning? Got a wave of sadness for a little while this evening...not sure why. Right elbow still sore.

Fri Dec 3 2004. Went to bed at 4am, got up at 11am. Back just a little sore. Right calf cramping slightly. No headache, back of neck a little stiff. Right elbow very sore. Tongue has been coated brown for a few days (was watching it to see if it was from what I was eating), mouth, throat and nose dry. A little bit of a sore throat worse when swallowing (probably from sinus drainage), feels like a lump in throat. Feet were cold again last night, worse after getting under covers (have been experimenting, seems to be better if I don't tie my shoes in the evening....better circulation?). Tongue is coated yellow with some brown spots, taking Mag Phos and Calc Phos (tongue looks a little lighter, throat still a little painful when I swallow)

Sat Dec 4 2004. Went to bed at 5:30am, got up at 11:45am. Legs weak when I got up. Right elbow very sore. No headache. Balance not real good but better than it has been at times. The cell salts must be helping some (tongue seems to be clearing up some). Have seemed to be getting the urge to urinate more frequent but have at least been able to hold it. Added Calc Sulph to the cell salts for the sinus drainage.

Sun Dec 5 2004. Went to bed at 5:30am, got up at 11:45am. Nose plugged up, legs weak and knees sore. Right elbow very sore. Hyper extending my knees pretty bad. Mood is not real good (back to preferring solitude). Starting to get a sinus type headache (probably from really not eating). Nose has been dry and plugged up for a couple of days and have had some sneezing periodically.

Mon Dec 6 2004. Laid down on the couch at 6am, got up at 10am. Still very tired and legs weak. Right elbow is still sore (burning pain, comes and goes but is worse when I use that arm). Feet were cold last night but it was cold in the house because I felt cold in general. When I stepped a couple of rimes today the right knee hurt and almost gave out on me (outside edge of knee arounf to the back...not in front). Low back has hurt some today. Have noticed night sweats recently but only in bed. Intend to start the Strontium Carb tonight. About 9:30pm (1 pill in a dropper bottle of water, 7 succussions, 3 drops). It's after midnight now, no real change yet. Hit right elbow a little earlier and it is extremely sore. Kept losing balance standing (could be I'm dizzy and since I've been this way for so long I don't have normal to relate it to?).

Tues Dec 7 2004. Went to bed at 3am, got up at 8am. Feet were warm after getting cold earlier. I keep forgetting about this one (If I have a second cover on it feels heavy and I can't move my feet and legs). Was tired and stiff when I got up, difficult to bend knees or pick feet off the floor. Left knee hurts (front below kneecap and above knot on knee). Right elbow still hurts (burning pain, feels like it goes deep into the bone or joint). Nose feels plugged but nothing comes out. Low back very tender. Had some fruit cake tonight (I'm the only person I know who likes it). Will take a second dose of Strontium Carb tonight.

Wed Dec 8 2004. Went to bed at 3:30am, got up at 10am. Sore all over when I got up (knees, legs, back, neck etc). Knees sore, right elbow still hurting. Ears ringing as loud as ever. Have been watching my tongue for several days... had been dark brown, started to lighten up about 5 days ago and has improved some everyday. Couldn't stand this morning getting dressed (kept losing balance). Physically not feeling any better but possible that mentals are better (nothing I can really be sure about). Will take a third dose of Strontium Carb tonight.

Thurs Dec 9 2004. Went to bed at 5:15am, got up ar 12pm. Legs feeling pretty shaky, balance still not good, stiff neck. Turned my head last night and felt like a pinched nerve again. Right elbow still has pain and upper left arm is sore. Eyes are tired and have a slight headache (top of head, left side....probably from being hungry). Fixed something to eat and headache went away. Physically still down, mentals are strange (feel the same but push myself to do more).

Fri Dec 10 2004. Went to bed at 2:30am, got up at 11am. Feet felt very cold when I went to bed (not real cold to the touch but the sensation of cold to the point where it was painful). Legs shaky and back hurt when I got up. Tongue still looks good. Shoulders felt sore when I laid down last night. Left knee has gotten pretty bad, started out sore but has progressed to very painful and difficult to put my weight on it (have to be very careful walking). Ears still ringing.

Sat Dec 11 2004. Went to bed at 3:30am, got up at 11am. Left knee hurt so bad it was difficult to walk and feet were extremely cold so I took a dose of Calc Phos late. When I went to bed the knee was still bad but feet had gotten very warm. Knee was still pretty bad when I got up but it eased up during the day till left knee feels ok tonight. Feet feel cold then warm then cold again. Ears ringing, neck and shoulders stiff.

Sun Dec 12 2004. Went to bed at 5am, got up at 10:30am. Most symptoms are right sided today, right shoulder, right elbow, right hip and knee, right ankle turning, right ear ringing louder with the exception of neck on left side. Tongue is almost clean and dark rings around eyes has gotten lighter (not sure when that happened). Last night when I went to bed left foot was warmer than right (which wasn't what I would term cold based on what I'm used to).

Mon Dec 13 2004. Laid down on the couch at 7:30am, got up at 10:30am. Legs feel very weak today (but I didn't really get any sleep). Knees feel ok, had a headache when I got up but it went away. Feel tired and ears are ringing. Wasn't real stable standing today but maybe a little better than recently. Right elbow still sore. Feet feel warm then cold (doesn't stay the same but they aren't ever as cold as they used to be). Seemed to be having some trouble picking right foot up and ankle was turning today.

Tues Dec 14 2004. Went to bed at 5am, got up at 11am. Terrible headache (back of head and neck, stomach upset and making noises, very tired and sleepy, dizzy but that is pretty much constant). Went in the bathroom, had a stool (kinda stringy and mucousy), then I threw up a little (again stringy and mucousy), wanted to throw up more but it didn't happen. Fell asleep in my chair for about 3 hours and headache was a little better but had moved to behind eyes also. Got something to eat. Took Calc Phos 6X (1 tablet about 11pm). Was very difficult to stand to get dressed this morning (kept losing balance).

Wed Dec 15 2004. Went to bed at 5am, got up at 11:30am. Neck tight, back sore, legs weak. Head feels spacy (vertigo?). Nose plugged up (way in the back) and nothing comes out (same yesterday). Right elbow is a little less sore, right shoulder and upper arm feels jusr a little tender. Eyes feel tired. Still have dark rings around eyes but it seems like it has gotten lighter.

Thurs Dec 16 2004. Went to bed at 5am, got up at 12pm. Back felt like it would break when I got up, legs very shaky and weak. Neck stiff and head gurt in back. Nose plugged up. Bladder was good. Have noticed I wake up sweating recently. Tongue is looking better, darker down center (tip and edges are pink), yellow or light broun down center with a crack down center. Have been tired and sleepy today and got a cramp in left hand tonight (don't get them now like I used to). Took Mag Phos 6X (1 pill) for the cramp.

Fri Dec 17 2004. Laid down on couch at 5:30am, got up at 11am. Right knee felt sore as well as low back (both eased after moving some). Hand hasn't cramped since the Mag Phos. Legs feel sore and picking feet up is difficult.

Sat Dec 18 2004. Went to bed at 2:30am, got up at 10:30am. Low back felt like it would break, legs stiff and hurting, right elbow burning pain and pains in neck (hurt to move head). Pain diminished some after moving around some, still there but less intense. Knees feel weak as well as legs. Knees get sore from crossing legs (knee that is bent has some discomfort).

Sun Dec 19 2004. Went to bed at 5am, got up at 11:45am. Lips sore (felt like lower lip was splitting), little better today but still feels like that. Woke up in pain (back and legs). Have a sore spot (back of neck on right side down into top of shoulder, feels like tension). Knees still very sore and legs weak (difficult to walk). Picking feet up got even more difficult tonight. Took a dry dose of Puls 30c at 12:15am.

Mon Dec 20 2004. Went to bed at 3:30am, got up at 11am. Back felt better this morning, knees are sore (more on the right) but not pain, Neck is sore but feels better. Wasn't steady standing up to get dressed but didn't fall for a change. Ears still ringing. Toes still dropping. Took Puls 200 in water as directed in afternoon.

Tues Dec 21 2004. Went to bed at 3:30am (slept on couch), got up at 10:30am. Kinda stiff when I got up but back eased after moving around. Certain ways I would lay my head last night would cause a pain in opposite side of head (changing position would take it away). Big toe on left foot feels like it has been pulled up too far at some point. Right ankle feels weak (during night it felt like right foot was heavy putting pressure on the ankle). Legs still feel weak and ears still ringing. Took second dose of Puls 200 (same mixture) late this afternoon.

Wed Dec 22 2004. Went to bed at 3:30am, got up at 10:30am. Back feels ok but knees hurt and are weak. Covers felt very heavy on legs last night. Mood is down today (starting to worry again). Ear ringing has intensified today. Took thiird dose of Puls late this afternoon.

Thurs Dec 23 2004. Went to bed at 3:30am, got up at 10:30am. Back feels ok but legs hurt and are weak. Nose very plugged up on left side (felt like something was in it but nothing would come out). Hard to bend knees (legs stay stiff). Mouth and throat very dry. Took fourth dose of Puls late today. Legs and knees never eased up.

Fri Dec 24 2004. Went to bed ay 2am, got up at 9:45am. Legs hurt when I got up. Legs feel weak and right knee pain. Head feels like I'm about to get a headache. Decided to stop the Puls and see if the leg pain stops.

Mon Dec 27 2004. Took a couple of days off from the log for Christmas. Went to bed at 3:30am, got up at 10am. Legs have hurt for 3 or 4 days now. Pain in top of legs, would settle in the knee (mainly right knee later in the day). The cold weather has been tough for me (when I go outside my knees lock up and legs get stiff as soon as the cold hits them). Yesterday was a bad day (lots of pain, difficult to stand or walk). Today legs hurt when I got up (top of legs in back, moved to pain in right knee). Right ankle turning easily. Ringing in ears (seems to be mostly right side). Very tired with a sore spot in left temple (was worse yesterday).

Tues Dec 28 2004. Went to bed at 4:30am, got up at 10am. Top of head felt like it was coming off when I woke up (very bad headache, top of head, back of head and yemple, left side). Legs hurt and very weak. Nausea with the headache. Right ankle turning bad. Tried to close my eyes and go to sleep all day but couldn't even though I was very tired. Ears ringing (both ears but worse on right side). Dragging feet when I walk (can't seem to pick them up). Right knee pain.

Wed Dec 29 2004. Went to bed at 4:30am, got up at 10:30am. Sore legs and tired when I got up. No headache at least. Still feel very tired. Ears don't seem to be ringing quite so loud. Got a little headache later (back of head and neck, left side). Have been tired and actually feel asleep a couple of times today for a short nap (but didn't feel rested afterwards). Knees haven't been hurting as much today.

Thurs Dec 30 2004. Went to bed at 2am, got up at 10:30am. Had a bad headache when I got up (neck and back of head, left side....loys of tension). Nose very plugged up. When I stood up...fell to the right. Ears are ringing loud again. Trouble picking feet up to walk, knees hurt when walking earlier but have eased up some. Feel very tired again.

Fri Dec 31 2004. Went to bed at 3:30am, got up at 11:30am. Had the headache and dizzy feeling when I got up (seems to be worse the more sleep I get). Started the detox yesterday evening. I didn't finish breakfast before heading to the bathroom (inconvient but probably a good sign). Eyes were watering (I think that was fom the detox also). Legs kinda weak, left knee hurts, legs sore, left ankle feels weak but the right ankle turns.

 
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