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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


Jan 2005
Haven't noticed any big changes. Am still experimenting with cell salts.
Sat Jan 1 2005. Went to bed at 3am, got up at 10am. Got up before the headache started. Stools have been easier since starting the detox (also more frequent which I take as a good sign). Legs weak today, have trouble bending knees to sit down, bent over to pick something up from floor and legs wouldn't hold me up (when I get in the floor like that it's painful with ankles and toes bent forward...seems I have a very limited range of motion in that respect). Lots of sinus drainage and watering eyes. Dark circles around eyes appears lighter and tongue looks like the coating is lighter.

Sun Jan 2 2005. Went to bed at 1:30am, got up at 10am. Neck very sore and stiff with the start of a headache (took hot shower to loosten up). Legs sore. Still having trouble bending knees to sit down. Ears ringing. Tongue looking pretty good (tip pink, seems to be clearing from tip back). Back sore. Right elbow still has the burning pain on and off (it isn't constant).

Mon Jan 3 2005. Went to bed at 1:30am, got up at 7am (got dressed and fell asleep on the couch till 11:30am). Got up early because neck was sore and felt like I was about to get a headache. Legs sore (top of legs). Ears still ringing and still having trouble bending knees.

Tues Jan 4 2005. Went to bed at 4:30am, got up at 11am. Knees were sore in bed. Legs felt weak when I got up. No headache and neck feels better. Ears still ringing. Had half an orange this morning and lower lip started to feel like it would crack (citris allergy?) took some Calc Sulph to see if it would help (still experimenting with cell salts). Had a bunch of scratches on left arm just above wrist on underside (not sure where they came from).

Wed Jan 5 2005. Went to bed at 3am, got up at 11:15am. Knees very sore when first getting up (both from bed and after sitting). Legs very tired. Sore spot in neck when laying on right side. Felt like a headache was ready to start when I got up (must have got up soon enough as it stopped). Have been sleepy all day.

Thurs Jan 6 2005. Went to bed at 12:30am, got up at 11:30am. Knees and legs extremely sore when I got up. Ears are ringing loud. Ankles turning (right). Had a cramp in left hand (Took some Mag Phos, hand cramp didn't come back) and have some pain in left knee.

Fri Jan 7 2005. Went to bed at 4:30am, got up at 11am. Very sore (legs, knees and right chest inro underarm). Ears ringing. Left hand cramped again late last night. Have lots of congestion, had it yesterday too (I think it may just be my body throwing off toxins from the detox).

Sat Jan 8 2005. Went to bed at 4:30am, got up at 10:30am. Very sore (was difficult to get up), sore all over. Ears still ringing, legs feel weak and still have the buring pain in right elbow.

Sun Jan 9 2005. Went to bed at 5:30am, got up at 12:30pm. Have been a little more sore and tired each day recently. Ears ringing. Difficult to stand. Took a nap for about an hour about 9pm tonight (stomach was upset when I woke up). Have been craving fruit for a few days....have a desire for grapes and have been thirsty. Right elbow still burning.

Mon Jan 10 2005. Lay down on couch at 6am, got up at 11am. Was afraid to try and stand when I first woke up (felt like legs would give out). Ears still ringing very loud. Right elbow still burning. Knees have felt really weak all day.

Tues Jan 11 2005. Went to bed at 4am, got up at 12pm. Have some knee pain and soreness (had some alcohol last night and I think my sodium and potassium are off today). Burning pain in right elbow seemed worse this morning when I got up. Couldn't stand without holding on to something when I got up. Humidity is high today and feel pressure in eyes (not pain, more like a soreness mainly near the bridge of my nose). Corners of mouth feel like they could crack (nat mur?).

Wed Jan 12 2005. Went to bed at 4am, got up at 11am. Right calf sore (like it had cramped during the night). Right elbow still has burning pain. Did not feel refreshed (still sleepy when I got up). Spirits are low today. Ears still ringing loud.

Thurs Jan 13 2005. Went to bed at 4am, got up at 10am. Got up very early to urinate and was sweating pretty bad (forhead was covered in sweat). Had trouble holding bladder last night and today (took a dose of Equis this afternoon, was much better right away, was at least able to hold it). Spirits still low. Legs feel weak (hard to stand). Legs are sore. Very sleepy. Ears ringing. Has been difficult not to stand on outside edges of feet, also difficult to bend knees or pick feet up.

Fri Jan 14 2005. Went to bed at 5am, got up at 12pm. Back of legs sore (hamstrings). Bladder is much better but had a problem holding it this afternoon so took another dose of Equis. Ankles still turning (especially right). Could stand without falling for a short time but could not put right foot flat. Not doing the detox today in case that is what is causing the leg soreness.

Sat Jan 15 2005. Went to bed at 5am, got up at 12pm. Legs still very sore and weak (sore at the top). Apparently it isn't the detox making the legs sore so I'm back on it. Was very hungry yesterday, ate lots of fruit. Ears still ringing. Right elbow still has the burning pain. Feel vert sleepy today.

Sun Jan 16 2005. Went to bed at 4:30am, got up at 1:30pm. Very tired and shaky when I got up. Pain like someone sticking me with a pin (back upper part of right hip). Was getting a blister on my upper lip last night, took a dose of nat mur before going to bed and it's gone today. Seemed better able to stand today (a little more stable)...wonder if that might be the nat mur also?

Mon Jan 17 2005. Went to bed at 5am, got up at 11am. Had trouble falling asleep. Right arm was numb when I woke up (probably from laying on it). Right knee hurts today. Right ankle turning. Have noticed the last couple of nights that the right foot feels colder to the touch than the left (doesn't feel cold like it did before but to the touch it is colder than the left). Ears still ringing.

Tues Jan 18 2005. Went to bed at 4am. got up at 12pm. Both feet felt warm when going to bed last night. Head would hurt last night (side lain on). Legs very weak when I got up (kept giving out). Both knees hurt (difficult to walk). Ears still ringing. Very sleepy but if I lay down I'm wide awake.

Wed Jan 19 2005. Lay down on the couch at 5am, got up at 10:30am. Took Clematis 30 late last night (dry dose) am in the waiting and watching phase now. Legs still sore and ears still ringing, difficult to stand and keep balance this morning so nothing has changed there so far. Not sure if it means anything or not but head has really been itching today. Nose is plugged up and head feels like I may get a headache (top,left side...guess I would describe the sensation as pressing). Still having trouble not standing on outside edge of right foot. Normally when I stand I tend to fall forward, tonight the tendency is to fall back. Legs may be a little stronger as I managed to stoop down to pick something off the floor without my legs giving out (small difference but it seems to be there).

Thurs Jan 20 2005. Went to bed at 4:30am, got up at 12:30pm. Ears ringing. Legs hurt some when I got up. Forehead felt sticky (dried sweat from while I was asleep). Feel worse after sleep than I did before (unrefreshing sleep). Last night in bed ankle (right) and top of foot (left) itching. Today legs (left) under knee itching and both hands (back) itching. Right elbow still has burning pain. Today the tendency was to fall to the right. Still standing on outside edge of right foot (doesn't seem to be quite as bad).

Fri Jan 21 2005. Went to bed at 5am, got up at 12:15pm. Had trouble falling asleep then had trouble getting up. Knees and legs very painful when I got up. Knees still hurt. Left knee not too bad late in the day but right knee hurts pretty bad. Ears ringing. Right elbow still butns. Itching last night around left shoulder blade. Stomach was sore when I woke up (still is tonight), left side just under ribs. For two days had stiff smelly stools, past two days just gas with a watery discharge.

Sat Jan 22 2005. Went to bed at 5:30am, got up at 11am. Had a stool finally just before going to bed, stomach had been sore all day but was still sore after. Had trouble going to sleep. Unrefreshed and very sore when I got up. Both knees hurt today. Stomach not as sore but it still doesn't feel right.

Sun Jan 23 2005. Went to bed at 2am, got up at 12pm. Didn't feel very well when I got up, very stiff and sore, legs hurt. Think I stayed in bed too long. Left knee hurts more than the right. Feet were itching last night. Stomach was sore, had a stool and it eased up some. Neck feels tight tonight. Took dose of Clematis about 10:30pm.

Mon Jan 24 2005. Went to bed at 3am, got up at 11am. Everything is pretty much the same, tired when I got up, knees and legs sore, ears ringing etc. Thinking back over recent days I realize I have been very tired with no energy. Took second dose of Clematis at 9pm.

Tues Jan 25 2005. Went to bed at 5:30am, got up at 12:30pm. Things still the same. Legs stiff and sore and ears still ring. More tired when I got up then I was when I went to bed. Had one of those headaches that just wouldn't go away all day, didn't hurt bad but was consistent (left side, back of neck and all around eye), after several hours developed nausea, avoided eating because I didn't think it would stay down. Took third dose of Clematis at 10pm.

Wed Jan 26 2005. Laid down on couch at 3am, got up at 11:30am. Still feeling the same, sore legs, ears ringing, burning pain in right elbow. Tired and sleepy.

Thurs Jan 27 2005. Laid down on couch at 3:30am, got up at 12pm. Legs don't hurt quite as much today but everything else is the same. Still want to sleep all the time.

Fri Jan 28 2005. Laid down on couch at 6:30am, got up at 11am. Legs kinda sore. Feet have a burning sensation. Left knee is sore (some pain when I walk). Still very sleepy. Both knees hurting later, can barely pick feet off floor.

Sat Jan 29 2005. Went to bed at 4:30am, got up at 12:30pm. Legs not hurting as bad but they still feel very tired. Managed to stay awake all day. Have a stiff neck and a slight headache. Ears still ringing.

Sun Jan 30 2005. Went to bed at 6:30am, got up at 12pm. So very tired I didn't even turn my computer on.

Mon Jan 31 2005. Went to bed at 3:30am, got up at 10am. Still tired (may be mainly depression?). Anything I do wears me out. Right ankle turning and having trouble picking feet up. Have a headache (not a bad one), started on left side then moved to right side.

 
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