About Muscular Dystrophy Logo, Downriver Michigan
 
Links
Poems
Alternative
Conventional
MD Home
Downriver Mall
There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


Feb 2005
Not getting far with the chronic stuff this month but have had to deal with some injuries etc., No doctor visits.
Tues Feb 1 2005. Went to bed at 5:30am, got up at 12pm. Have been so tired I haven't wanted to do anything but sleep all day. Had a headache (same one as yesterday, it never went away). Took a dose of silica 30 and it is gone now. Get so wore out from just getting up from sitting down I avoid it, when I do I start sweating. Right ankle turns, ears ringing and knees still hurt. Lower legs and feet almost feel like they burn. Must be humid today (nose has been plugged up, right side and nothing comes out).

Wed Feb 2 2005. Went to bed at 5:30am, got up at 9:30am. Took a Calc Phos 6X last night (1 pill).Still don't feel energetic today but I did get up earlier and haven't fell back to sleep so far. Had a pain in right calf (outside edge about 6 inches down from knee), sharp pain and felt like leg wouldn't hold weight (worse standing, don't have it while sitting). Was getting a headache in my eyes from trying to read (mainly right side). Took Clematis 200 at 8:30pm. Took a nap from 9pm to 10:30pm, headache was gone. Will do a series of 3 doses as a test and wait about a week to see what happens.

Thurs Feb 3 2005. Went to bed at 4am, got up at 11:30am. Nothing really feels any different. Noticed when I got out of the tub my left foot and ankle looked swollen, right foot was bright red (maybe from the water being hot? or better circulation?). I start getting a headache if I read for more than 15 minutes at a time (back of neck and eyes hurt). Took the second test dose at 9:30pm then I laid down and fell asleep till 12:30am. Don't notice anything yet.

Fri Feb 4 2005. Went to bed at 5:30am, got up at 11:30am. Went to bed with a headache and it got worse overnight, has held on and got worse today (back of skull left side and in eyes...worse from reading). Took third test dose at 9pm. Energy level is even lower today. Left foot and ankle still swollen when I got up today.

Sat Feb 5 2005. Went to bed at 5am, got up at 11am. Had headache (high on left side of head, even sore to the touch), took nat mur 30 and it has eased up. Left foot and ankle still swelled pretty good. Legs feel very weak. Feet got cold today (may have been from wearing regular shoes again and they cut the circulation some).

Sun Feb 6 2005. Went to bed at 3:30am, got up at 11am. Head still hurting when I went to bed and when I got up. Ears still ringing. Left foot and ankle was still swollen when I went to bed, got up to urinate and left knee gave out and I went down on my knees bending foot, I thought it was broke because I couldn't put weight on left foot to get up, took a dose of Arnica 30 and finally went to sleep, swelling was down quite a bit when I got up and pain was minimal. Foot swelled some during the course of the day but pain is still better, have been able to stand on it and walk, will take Arnica again tonight for the swelling.

Mon Feb 7 2005. Went to bed at 6am (was still awake at 8:30), got up at 11:30am. Swelling was down again when I got up (top of left foot behind toes was still swelled some but pain was ok). Knees have carpet burns from the fall and they hurt, will put some Calendula creme on them later. Had headache when I got up (base of skull, left side). Back was hurting in my sleep. Feet have felt ice cold today (symptom returning that went away with heloderma), cold to the point of pain.

Tues Feb 8 2005. Went to bed at 5:30am, got up at 11:30am. Feet were hurting from feeling so cold so I felt of them while getting in the bed and they were warm to the touch but the sensation was like they were in ice. Didn't have a headache when I woke up today and feet were warm finally but mouth was dry to the point where I almost couldn't even swallow. Frequent urination so far today but no emergencies. Ears still ringing. Swelling in the ankle has went down but top of foot and below ankle is swelled still, second toe (next to big toe is bruised), maybe it really is broke...took some calc phos and sil to help if it is.

Wed Feb 9 2005. Went to bed at 5am, woke up at 7:30am with burning in upper chest and throat along with nausea. Went in bathroom to throw up, took a sip of vinegar and a sip of water and the burning eased up. Still have nausea, has to be from something I ate last night. Have the burning pain still in right elbow and ears ringing. Stomach has felt bad all day, finally had a stool (soft, dark brown, sour smell... stomach did not feel better after). Was afraid to eat all day even though I was hungry, finally felt like I could hold it down tonight but I still didn't eat much.

Thurs Feb 10 2005. Went to bed at 5am, got up at 11am. Swelling is down some in left foot, as swelling goes down it gets a little more sore. Feet felt warm enough till I got in bed then they started feeling cold. Ears ringing loud today, right elbow has burning pain and low back hurts (whole back...lumbar to shoulder blades). No reason for it that I can think of but getting waves of sad feelings tonight (guess I'd have to call it depression...one of the times when I prefer no one being around).

Fri Feb 11 2005. Went to bed at 4am, got up at 11am. Was up to urinate every hour till about 8am (at least it wasn't urgent). Left foot still swelled a little but is doing better. Ears still ringing. Eyes are very tired tonight (blurry vision). Feet got cold last night after getting under the covers.

Sat Feb 12 2005. Went to bed at 4:30am, got up at 11:30am. Got up twice to urinate last night and had a problem where I couldn't hold it today so I took a dose of Equis. Had a headache all night, still have it some today...not real bad but I do feel it (neck, forehead and behind eyes. Swelling in left foot is gone for the most part. Right elbow still has the burning pain and ears still ringing.

Sun Feb 13 2005. Went to bed at 5:30am, got up at 11:30am. Neck was a little stiff from the way I was laying, feels better after getting up. Swelling is gone from left foot but it is more sore (just behind toes, sore to touch). Have been getting headaches for awhile, seems to be eye strain mostly (have to see about getting glasses). Neck has settled sore today. Right leg has been bouncing when I put it down while sitting. Just remembered left hand was cramping very bad friday evening (anything I tried to hold the hand would cramp and hurt so bad I would have to set it down).

Mon Feb 14 2005. Went to bed at 3:30am, got up at 11:30am. Neck hurt when I got up (back of neck left side). Left calf cramping bad (couldn't stand till it relaxed). Still very tired and knees hurt. Took first test dose of Clematis 1M late last night. Got up at 5:30 to urinate. Took second test dose at 1:30am. Legs have been jerking tonight.

Tues Feb 15 2005. Went to bed at 4am. got up at 11am. Had been awake but still lay there because I was so very tired, ears were ringing so loud it was keeping me awake. Right leg (calf) cramping when I woke up early. Left knee hurts today. Have been very sleepy all day.

Wed Feb 16 2005. Went to bed at 3:30am, got up at 10:30am. Terrible headache and neck pain when I got up (seems to be much worse whenever I sleep in the bed). Mixed an aqueous solution of Heloderma 30 last night and took the first test dose (I can't resist finding out what will happen). Haven't noticed any big difference yet so I will take the second test dose tonight with the idea of stopping either after the third split dose or with any significant improvement. Took second test dose at 11:30pm.

Thurs Feb 17 2005. Went to bed at 3:30am, got up at 9:30am. Didn't have the headache because I got up instead of going back to sleep. Stomach is very sore (think I'm constipated). Legs felt very weak and ears are ringing as loud as ever. It is nothing big that I can put my finger on but even with the legs as weak as they are I seem to feel that I'm able to pick my feet up better (no one would notice it but I do have that feeling).

Fri Feb 18 2005. Went to bed at 5am, got up at 9am. Went back to sleep about 8am and got up at 12pm. Thought I was doing ok, spirits were pretty good but then the argument with the spouse and now I don't have the energy to try to do anything. Do still seem able to pick feet up a little better but don't feel like trying. Still constipated, stomach sore and have pressure but haven't been able to go.

Sat Feb 19 2005. Went to bed at 2am, got up at 9am. Left leg was cramping when I woke up. Have been holding bladder good. Had a stool this morning (still didn't feel like I was finished). Had a second stool later in the day (was a little easier). Feel like I'm having more trouble picking feet up again, taking another split dose of the Heloderma at 3am. Got very tired this evening (eyes felt dry and kept closing).

Sun Feb 20 2005. Went to bed at 5am. got up at 10:30am. Held bladder all night but had a slight problem when I went to urinate (had that urgent feeling several times so took a dose of Equis). The Heloderma seems to have gotten me back to feeling like I'm able to pick feet up a little better again (I think it's still mainly the mentals so far).

Mon Feb 21 2005. Went to bed at 5:30am, got up at 8:30am. Did a couple of things then lay down on the couch and napped till about 11:30am. Feeling ok but seem to be down a little from yesterday.

Tues Feb 22 2005. Went to bed at 5am, got up at 11:30am. Right leg cramping when I woke up. Very tired and not feeling as able to pick feet up. Left foot keeps jumping tonight. Don't feel able to do much. Took a dose of Heloderma at 1am.

Wed Feb 23 2005. Went to bed at 4am, got up at 7am. Lay back down about 8:30am and napped till 11am. Yesterday had lots of trouble getting to my feet when I got up (was much easier today). Stomach has been very sore with constipation for awhile (nat mur seems to fit symptoms the best so am taking that...feels a little better). Legs are sore and tired but am able to force myself to get up.

Thurs Feb 24 2005. Went to bed at 2:30am, got up at 7:30am. Bladder was ok. Seems legs feel weaker and ankles turn worse after taking a bath or shower (that seems a little curious). Stomach not as sore as it had been but still not having much luck with a stool.

Fri Feb 25 2005. Went to bed at 3:30am, got up at 10:30am. Was tired and dragging with no ambition all day. Took a dose of Heloderma at 2:30am.

Sat Feb 26 2005. Went to bed at 4am, got up at 9am. I'm tired but feel ok today. Pain isn't bad so far, holding bladder ok. Got very sleepy around 7pm and ears seemed to be ringing louder and feet kept jerking.

Sun Feb 27 2005. Went to bed at 3am, woke up at 8:30am. Had a headache yesterday and still had it this morning, , went back to sleep till 10:30am but head still hurt (mainly back of neck, left side). Felt like I was boring head into pillow pretty hard while asleep. Took sil 6X to see if it will help. Headache got better after the sil. Still pretty tired though.

Mon Feb 28 2005. Went to bed at 4am, got up at 10:30am. Seem ok, toes pulling up and have urge to stretch legs. Nose very congested and getting blood out. Last night eyes started watering and nose dripping for an hour or so. Took a dose of Heloderma at 1:30am (8 succussions)...seems like symptoms start coming back by the third day so will take it every other day for a few days.

 
This page was created by tnt-computer.com © 2003-2007 All Rights Reserved 
for comments on this page email webmaster@tnt-computer.com