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About Musculat Dystrophy Logo, Downriver Michigan
There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


April 2005 
Started a new remedy around the middle of the month.

Fri Apr 1 2005. Went to bed at 3am, got up at 11am. Had woke up early with a headache (base of skull and left side of neck), went back to sleep but still had it when I got up. Stretched head and neck to try and relieve the tension. could not lay on either side to relieve it. Stood up and left leg almost gave out. Legs popping and cracking when I started walking. Ears still ringing.

Sat Apr 2 2005. Went to bed at 3am, got up at 8:30am. The same headache as yesterday woke me up. Had a dream last night (first one I remember in a long time). We were talking about snakes last night so that thought was probably on my mind anyway but I was walking down a narrow dirt road and stepped off the road to let a car pass. When I put my foot down a small snake crawled in front of my foot. The key here is that I was walking pretty normal. Ears are ringing and I'm stiff (probably from all that walking in my sleep).

Sun Apr 3 2005. Went to bed at 6am, got up at 9:30am. Legs feel weak, dragging toes, right knee feels like it will give out. Ears still ringing. Have been just exhausted all day, dragging toes, feel like sleeping, right ankle turns when I step, right knee sore.

Mon Apr 4 2005. Very tired all day but determined to get a little work done.

Tues Apr 5 2005. Didn't lay down till 8am, couldn't sleep and was back up at 10:30am. Tired all day but couldn't fall asleep. Right ankle turning, can't pick feet up off the floor or bend knees. Ears are ringing and both ankles are swollen.

Wed Apr 6 2005. Went to bed at 3am, got up at 9:30am. Not in a very good frame of mind today. Wouldn't care if I fell asleep and didn't wake up, at least the argument would be over. Feet and ankles still swollen (worse on left). Still having trouble picking feet up and bending knees.

Thurs Apr 7 2005. Went to bed at 6:30am, got up at 10am. Couldn't hold bladder when I went to bathroom and happened a second time later (had nothing to do with urgency), took a dose of Equis. Still having trouble picking feet up, standing without ankles turning and bending knees. Ears don't seem to be ringing quite as loud. Took a second dose of Equis because the problem wasn't gone completely.

Fri Apr 8 2005. Went to bed at 4am, got up at 11:30am. Not being able to sleep must have finally caught up with me because I was out when I went to sleep. Felt like I was getting a headache when I woke up (buzzing..electric sensation in neck and head when I raised up). Ankles feel weak still and dragging toes but stood up on the first try. Ears still ringing, maybe not quite as loud. Remedy came today, am taking Lathyrus 12c when I go to bed (about 6am).

Sat Apr 9 2005. Went to bed at 6am after taking remedy, got up at 9:30am, bladder seems worse (I think it's an aggravation from the remedy). Frequent urgent urination, legs feel a little sore, feet feel like shoes are too tight and feet felt cold this morning. Not worried about the aggravation as it tells me the remedy is doing something...just have to wait it out. It's evening and legs are achey, bladder is a little better and I have had a sore spot in right side of abdomen (just under ribs) all day.

Sun Apr 10 2005. Went to bed at 4:30am, got up to urinate about 8:30am, went back to sleep till about 12pm. Had a cramp in right calf when I woke up (could possibly be an old symptom). Bladder is much better today. Legs don't ache as bad. Sore spot in stomach has moved to the left side but it isn't as sore. Was getting a headache when I woke up but it went away after I got up. Feel much better today, have a positive feeling about the remedy.

Mon Apr 11 2005. Didn't lay down till 9am, was back up before 11am. Took a nap in the afternoon but only slept for an hour. Seem to have a little more energy. Feel pretty good.

Tues Apr 12 2005. Went to bed at 2am, got up at 8:30am. Seem to be feeling better after sleeping, even with less sleep. Bladder has been pretty good. Seem to be standing up easier when I get up in the morning. Not as dark around eyes. Tongue still has dark brown spots on it but they don't seem as bad. Couldn't really tell before because it was always bad but ankles seem to turn more after taking a bath. Still walk better with shoes on than without.

Thurs Apr 14 2005. Yesterday was a rough day, headache all day, worse when I lay down but was so tired I couldn't not lay down. Couldn't hold bladder most of the day. Finally gave in and took a dose of Lathyrus late (3 succussions). Went to sleep about midnight even though I had layed on the couch all day, got up at 7am. Still had the headache but it eased up after getting up. Still feel tired in my eyes but I'm up.

Fri Apr 15 2005. Went to bed at 4:30am, got up at 9:45am. Legs are sore (probably overdid it yesterday). Bladder has been good. Got sleepy early evening and napped for an hour or so. Am tired but still want to do things.

Sat Apr 16 2005. Went to bed at 6am, got up at 10am. Legs are sore, not pain just sore. Feel very tired but still seem to have more ambition. Ears ringing but it doesn't seem to be as loud as it usually is.

Sun Apr 17 2005. Went to bed at 3am, got up at 7:30am, got bored and lay back dowm till 11:30am. Legs were a little stiff and sore and took a couple of tries to stand. Ears were ringing loud last night. Tongue seems to be clearing some. Got very tired and sleepy late today and fell asleep on the couch for 3 or 4 hours.

Mon Apr 18 2005. Went to bed at 4:30am, got up at 9:30am. Legs felt weak (couldn't push up first try). Ears are ringing.

Tues Apr 19 2005. Went to bed at 1:30am, got up at 4 with an urgency to urinate... took a dose of Lath (4 succussions), went back to sleep, got up at 7:30am. Stood up a little easier. Legs feel tight. Had a headache when I went to bed (left side of neck and head felt sore), better this morning. Ears were ringing loud...still is. Lath seems to be holding 4 to 5 days.

Wed Apr 20 2005. Went to sleep about 12:30am, got up at 10am. Stood up ok. Bladder has been holding very well. Both calf's got cramps when I stretched legs (a symptom I used to get often).

Thurs Apr 21 2005. Went to bed at 7:30am (didn't go to sleep right away), got up at 10:30am. Had very full bladder when I got up (held it ok). Had a headache from the way I was laying (was ok after getting up). Had some trouble standing on first try.

Fri Apr 22 2005. Went to bed at 2am, got up at 10:30am. Was getting a bad headache when I woke up (neck and back of head, electric sensation), better after being up moving around. Took a bath last night and it seems that I'm worse after a bath, ankles turn worse, harder to lift feet, balance is worse, feel even more stiff. Tongue has a lighter coating in front (kind of a white or light yellow coating, still a couple of brown spots in the back but still not as dark as before. Left foot and ankle swollen, right ankle a little, foot looks ok but even though left is swollen more the right ankle turns worse.

Sat Apr 23 2005. Went to bed at 6am, got up at 10:30am. Was getting that same headache when I woke up (could be an old symptom, I used to get migraines that wouldn't go away from sleeping too long, normally on the weekends because I could sleep in those days). Bladder is ok, headache went away after I got up. Tongue is still pretty clear (still a little brown way in the back). Took two tries to stand when I first woke up, legs felt weak and stiff. Left foot is still really swollen (again could be an old symptom, I broke that foot many years ago).

Sun Apr 24 2005. Went to bed at 4am, got up at 8am. Took too long to get to my feet and the bladder was very full. Had the same problem about all day. Time to take the Lathyrus again. Had a headache since last night (left side of head is sore, not really pain just sore). Legs feel very weak and tired. Ankles turning (worse without shoes). Ears ringing.

Mon Apr 25 2005. Went to bed at 6:30am, got up at 10:30am. Bladder woke me up again, had the same problem holding bladder again this morning. Took Lathrus at about 10:40am (5 succussions, 1 tsp). Legs feel sore and it's very difficult to stand from a sitting position.

Tues Apr 26 2005. Went to bed ar 4:30am, got up at 10:30am. Bladder is ok, stomach cramps, went to stool (strong odor and stomach would ctamp as I passed it). Tongue feels blistered (looks ok), I think it may be an allergic reaction to something but I haven't figured it out yet. Legs are still sore and it's still difficult to stand from a sitting position. >p>Wed Apr 27 2005. Went to bed at 2:30am, got up at 8:30am. Neck was very sore when I went to bed (Sore pain rignt into middle of shoulders), did not ease up overnight. Finally eased up sometime today. Ears ringing all day. Ankles still turn worse after a bath and are better after putting shoes on.

Thurs Apr 28 2005.Went to bed at 3:30am, got up at 9am. Headache (back of neck and base of skull). Still very sleepy but I know the headache would get worse if I don't get up.

Fri Apr 29 2005. Never really went to bed because I kept falling asleep on the couch and never got up, don't know why I was so tired but I couldn't wake up. Finally got up at about 7am. Still sleepy though and if I sit on the couch I want to close my eyes. Bladder is ok today. Did notice again that ankles tend to turn worse after getting out of the bath. Keep feeling that headache come back a little that I was having yesterday (could be from sinus and eye strain mainly). Left foot is still swollen (no pain just swollen).

Sat Apr 30 2005. Went to bed at 1am (couldn't keep my eyes open), got up at 9am (had a headache from laying that long). Headache eased up after moving around some. Legs felt sore and stiff. Couldn't keep my balance to stand and pull my pants up. Took Lathyrus at 11:30am (5 succussions, 2 tsp's).

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