About Muscular Dystrophy Logo, Downriver Michigan
 
Links
Poems
Alternative
Conventional
MD Home
Downriver Mall
There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


Nov 2003
This page starts from when I took the third remedy. Basically this one is to remove any traces of smallpox since I have a history of it in my family.
After this the Homeopath may reevaluate my case and decide where we go from here based on the symptom picture.
Fri Nov 14 2003. Went to bed at 2am, got up at 7:45am. Right shoulder hurt all night (was difficult to lay on right side). Legs stiff and sore when I got up. Restless but it hurts to try to move around. Eyes tired. Stomach sore (feels hard). Labored breathing (feels like at times I can't get enough air in lungs...nose is plugged up...not feeling like a cold just nose plugged up). Late afternoon left shoulder started hurting (top of shoulder, right at neck). Remedy came today...took the 200c at 8:45pm....legs felt nervous about 1/2 hour later but that is all I've noticed so far.

Sat Nov 15 2003. Went to bed about 2:30am, got up at 9:45am. Bladder was full but didn't have any trouble holding it. Water had a metallic taste to it last night, nose stuffed up but nothing comes out, have a bad taste in back of throat from it. Drainage feels stringy. Back is sore and clothes feel twisted and uncomfortable. Had a spell for about 3 hours tonight where toes on left foot were pulling up (some pain but felt unusual). Legs still sore but pain seems a little less. Took remedy 1M at 1am.

Sun Nov 16 2003. Went to bed at 3am, got up at 11:30am. Had headache from laying on right side without turning over all night (eased up some after moving around). Right shoulder pain. Legs more sore than painful. Some pain in upper legs (just under buttocks). Ears still ringing. Took remedy 10M at 10:25pm. Left foot jerking for a few minutes about 8pm tonight. Headache has gotten worse as the day went on...mainly in left temple and left eye, very sleepy but couldn't go to sleep.

Mon Nov 17 2003. Went to bed at 4am, got up at 11am. Was difficult getting up (stiff). After I moved around a little I feel a little less sore than yesterday and before. Ears still ringing (last night sounded like a clicking in left ear, right ear ringing same as always (left ear was ringing but impression I get is clicking was basically a volume change). Mental's: I have the desire to do things more than I had for awhile (haven't done it but I feel like I want to). Took remedy 50M at 9:30pm.

Tues Nov 18 2003. Went to bed at 3am, got up at 10am. Bladder was full but not urgent. Tried to lay back down but headache kept me awake. Pain would move around, back of neck, left side when sitting. Behind eyes and forehead when leaning forward and top of head when standing. Legs stiff but a little less pain. Headache got worse...couldn't lay down , pounding in back of neck (finally fell asleep for about an hour but headache was still there when I woke up), hurt less at times sitting but was still there, standing up would pound in back of neck and top of head. Would affect eyes at times (sore behind eyes and just above eyes). I get a bad taste from drainage in back of throat.

Wed Nov 19 2003. Went to bed at 3:30am, got up at 9:30am. Headache is pretty much gone but low back is very sore. Had not been having the groin pain for awhile but feels a little tender today. Legs stiff and have the urge to stretch. Headache not as bad today (occasionally had pain in base of skull, back of neck or in eyes). Took a nap for about an hour and right arm and shoulder hurts now from laying on that side.

Thurs Nov 20 2003. Went to bed at about 4:30am, woke up at 9am, got up at 10am.n Neck sore (felt like the headache back), eased up from running hot water on neck and head in the bath. Legs stiff but little pain. Had trouble bending knees but not painful at least. Still black under eyes but get the impression it is lighter and closer to surface. Have a place on neck (looks more like a blister than a pimple).

Fri Nov 21 2003. Went to bed about 5:30am, got up at 9am to urinate, went back to bed till 11:30am. Legs feel weak and still sore...still no real pain but feet won't lift up from floor (dragging them over everything). Feel depressed, tired and feeling guilty, don't want to be around anyone, just want to be alone. Blister on neck is going away and not sore anymore.

Sat Nov 22 2003. Went to bed at 4:30am, got up at 10:45am. Woke up still depressed (had trouble going to sleep). Back hurts, legs feel very weak. Worked on a couple of things and legs started hurting and left hand cramped. Have felt very tired and sleepy all day.

Sun Nov 23 2003. Went to bed at 3am, got up at 11am. Legs stiff and weak feeling. Ears still ringing. Left knee starting to hurt again (Worked some yesterday and may have pushed it too far). Still just down...don't want to be around people.

Mon Nov 24 2003. Went to bed at 4:30am, got up at 10am. Not interested in going to bed at night. Mood is still kinda down. Legs stiff, knee feels ok so far today. Having trouble picking feet up and legs sore (top part, back of legs near hips). Ears still ringing.

Tues Nov 25 2003. Went to bed at 4am, had to get up at 8:30am. Very tired but tried taking a nap and it didn't happen. Sore all over, legs, back etc. Ears ringing. Knees won't bend. Having some groin pain. Legs have started hurting today and got a burning pain when I turned my head (neck, left side, pinched nerve?). Have been very thirsty and drinking water etc dose not appease it.

Wed Nov 26 2003. Went to bed at 3am. got up at 11:15am. Woke up a couple of times to turn over, no dreams that I can remember. Legs stiff (they hurt a little), ankles turn (stand on outside edge of feet)...knees would not bend so I could correct that. Head feels spaced out, no headache but it feels like just before I get one. Legs hurting more, getting more difficult to walk from being so stiff.

Thurs Nov 27 2003. Very stiff and sore today. Trouble walking because of it.

Fri Nov 28 2003. Went to bed at about 5am, was very tired but couldn't sleep, got up every couple of hours to urinate (had not had much to drink all day Thurs), finally got up at 12pm (had only cat napped). Very difficult to move. Bladder is still giving me trouble today. Knees lock and will not bend making it very difficult to lift feet without putting extra stress on back.

Sat Nov 29 2003. Not moving well today. Ankles turn and dragging toes. Not very enthused with life.

Sun Nov 30 2003. Went to bed at 3am, got up at 9am. Legs stiff, sore and hurting. Knees crack when I bend them or stand. No ambition to do anything. Ears still ringing. Shoes feel very tight. Ordered next remedy today.

Continue

This page was created by tnt-computer.com © 2003-2006 All Rights Reserved 
for comments on this page email webmaster@tnt-computer.com