About Muscular Dystrophy Logo, Downriver Michigan
 
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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


Oct 2005 
Moving up in potency. Started with the LM1 towards the end of the month.
Oct 1 2005. Went to bed at 2am, got up at 11am. Trouble standing, moving and getting dressed. Head hurts again (mostly sore). Mood is not very good. Will take remedy later. 

Wed Oct 5 2005. Took remedy on the 2nd (9 succussions). My son came to visit and we were out doing things for a couple of days. Went to bed at 1am, got up at 10:30am. Legs have been sore today. 

Thurs Oct 6 2005. Went to bed bed at 3am, got up at 9:30am. Bent forward in the chair in the bathroom and kept going and hit my head pretty hard. Having trouble bending knees. Took the remedy late afternoon (10 succussions). Don't notice anything yet. 

Fri Oct 7 2005. Lay down on the couch at 4am, got up and went to bed at 6am, got up at 10am. Dragging feet (difficult to walk). 

Tues Oct 11 2005. Dragging feet since Fri, ankles turn (worse on right). Notice a knot on outside edge of right foot, looks like a bone spur but it doesn't hurt. Legs have been tired and they hurt. 

Wed Oct 12 2005. Took remedy 30c (11 succussions) about 12am before going to bed at 1:30am. Got up at 9:30am. Had a headache (back of neck with a feeling that something was moving around in my head causing balance problems). Was unable to stand without holding onto something. Legs not hurting as bad today. Having some hand cramps. 

Thurs Oct 13 2005. Went to bed at 3am, got up at 10am. Have been tired all day and mood is down. Could not stand for long getting dressed (losing balance). Picking feet up difficult. 

Mon Oct 17 2005. Have had trouble sleeping, last night feet and legs were cold just about all night. Got up today and just couldn't stand long enough to pull pants up. Was having so much trouble I took remedy again (12 succussions). Maybe a little better tonight? The LM came today but I'll have to wait to try it now. 

Tues Oct 18 2005. Went to bed very late (4:30am), could not go to sleep, finally fell asleep sometime after 7am and had trouble waking up at 11:30am. Head was sore when I woke up and never went away all day. Could stand a little better getting dressed today but could only stand on outside edges of feet. 

Thurs Oct 20 2005. Went to bed late again. Didn't get up till about noon. Could stand to get dressed but very unsteady on my feet all day. 

Fri Oct 21 2005. Went to bed very late. Stomach was giving me trouble. Legs and feet felt colder after getting in the bed than they did before going to bed. Knees cracked some when I bent them. Slept late and had a headache when I got up (I think it was the weather). Could stand some but legs were in a spasm and couldn't bend knees making it difficult to get dressed. 

Sat Oct 22 2005. Went to bed late again and didn't get up till noon. Feet were warm when I went to bed. I had the feeling they got cold after getting under the covers yet they were warm to the touch. Legs were very stiff when I got up, knees difficult to bend and with legs tight and straight was difficult to reach down to pull pants up. Legs feel tired and having trouble lifting toes when walking. 

Sun Oct 23 2005. Went to bed at 5am, got up at noon. Had a headache. Very tired and unsteady. 

Mon Oct 24 2005. Went to bed at 3am, got up at 9:30am. Took Lathyrus LM1 at about 2am (6 succussions, 1 tsp from dilution glass). No headache when I got up, woke up earlier than I had been. I'm tired but seem to have more ambition. Still had trouble standing to get dressed but for some reason didn't feel as unsteady. Guess I would have to describe it as overall sense of feeling better even though the physical symptoms are not changed much. 

Tues Oct 25 2005. Went to bed at 3am (kept waking up), got up at 10:30am. Had a headache when I got up (it was rainy outside). Headache went away after about a half hour. Legs are sore (maybe because I did more yesterday). I woke up at 9:30 but turned over and went back to sleep. Back is sore today, legs sore and weak feeling, mentals not as optimistic as yesterday but really not depressed or anything, worry about finances etc. 

Wed Oct 26 2005. Went to bed at 3:30am, got up at noon. Mainly just tired today. 

Thurs Oct 27 2005. Went to bed at 4:30am, couldn't go to sleep for a long time, got up at 11:15am. Legs are very tired, dragging toes and have a muscle spasm in left leg behind knee. 

Fri Oct 28 2005. Didn't go to bed last night so I'd be ready for bed tonight. May have dosed off for an hour or so on the couch but no sleep. Very tired all day with a bad headache (I think it was caffein withdrawal because had some coffee late in the day and the headache eased up). Legs very weak, no energy. 

Sat Oct 29 2005. Still didn't go to bed till 3:30am, I did sleep a little better, got up at 10:30am. When I got up had cramps in both calves (symptom from some time back). Still have the bone spur on outside of right foot (new but started before taking the Lathyrus LM). Have a strange sensation in right leg (have had it before but it's hard to describe, not really pain but it does feel like a sensation in the bone, lower leg outside, starts at about the top of the calf muscle and goes down almost to the ankle). Right ankle still turns easy (no change). Eyesight still the same (see ok normally but words blur when I read unless I put on reading glasses (that is probably age). Stomach has been feeling strange (feels hungry but I don't have much desire to eat...have had for awhile. Stomach makes noise and cramps and gets sore, I go in the bathroom but am never sure if I can go or not, I do have a lot of gas.) Ears ring (Has always been constant, a couple of days it seemed to be louder this week, noise is internal, if I plug ears the ringing stays at the same volume). 

Sun Oct 30 2005. Went to bed about 5am, got up at noon. Back sore, legs tired, not much ambition. Ears ringing. Everything pretty much the same as yesterday, nothing new, old or different. 

Mon Oct 31 2005.Went to bed at 5am, (can't seem to go to sleep), got up at noon. Legs sore and weak. Stomach was all messed up all night. Not in a very good mood (everything irritates me). 

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