Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"

Thurs Nov 3 2005. Went to bed at 5:30am, got up at 11am. Basically the same as yesterday. Couldn't go to sleep when I went to bed. Felt worse after sleeping than I did before. Both knees stiff (very hard to bend knees). Balance pretty bad. Right ankle turning making it difficult to stand (bad balance makes it even worse). Stomach always feels like I need to go to the bathroom.

Fri Nov 4 2005. Was up all night again. Went to bed at 6am, got up at 11:30am. Took a while to get to sleep. Was tired and stiff when I got up. Knees and ankle the same. Nothing better or worse.

Sat Nov 5 2005. Went to bed at 2am, got up at 11am. Legs were cramping when I got up, headache and nose stuffy. Leg cramps eased up (now they are sore), headache went away after getting up, nose cleared some.

Tues Nov 8 2005. A homeopath that I respect suggested that I do a test series of three doses of the Lathyrus since a single dose hasn't seemed to do much. Took the first one tonight about 2am (8 succussions, 1 tsp from a 4 oz dilution glass).

Wed Nov 9 2005. Physically feel the same. Mood not good, feel pushed around and taken advantage of.

Thurs Nov 10 2005. Legs pretty stiff and sore. Back sore. Nothing better. Will take the second test dose tonight.

Fri Nov 11 2005. Took LM1 (second test dose), 9 succussions, 1 tsp from 4 oz dilution glass at 2 am when I went to bed. Got up at 9am (earlier than usual), had a headache (eased up after getting out of bed), legs sore and stiff. Not really sure what the remedy is doing, feel pretty much the same but I did get up earlier so that is different.

Sat Nov 12 2005. Got up about 11am today but didn't feel good, stiff weak legs, headache. Mood not good, worried.

Sun Nov 13 2005. Didn't get up till after noon today. Legs very weak, stomach strange (lot of gas). No Ambition, still worried.

Tues Nov 15 2005.Took remedy at 5am before going to bed (12 succussions). Got up at 11am. Legs still very stiff, had headache when I woke up (went away after getting up). Balance seemed a little better, could stand to pull pants up (hadn't been able to do that recently). Feeling pretty bored. 

Wed Nov 16 2005. Went to bed about midnight, got up at 10am. Could stand to pull pants up again but other than that felt pretty unsteady. Very down all day. Legs tired, dragging toes and ankles weak.

Thurs Nov 17 2005.Lay down on the couch at 6am, got up at 8:30am. Was a rough day, I was tired, my wife was not in a good mood.

Fri Nov 18 2005. Went to bed at 2am, Got up at 10:30am. Very stiff when I got up. Still very tired. Legs feel weak and neck is stiff. Mood down.

Sat Nov 19 2005. Went to bed at 2am, got up at 8:30am. Very tired, took a hot bath and it felt like I felt worse for it. Depressed today, things just don't seem right.

Sun Nov 20 2005. Went to bed at 3am, got up about 11am. Had bad gas late before going to bed. Mood is a little better but feel physically weak.

Mon Nov 21 2005. Went to bed at 3:30am, got up at 10:30am. Had gas and loose stool before going to bed (like an explosion). Very stiff when I got up. Noticed a pimple on my face next to nose and it feels like one inside tip of nose (right nostril), the one inside feels sore. Mood is not good or bad, kinda blah. Worried about finances but trying to deal with them rather than ignore them. Legs are weak, balance off (couldn't keep balance long enough to pull pants up this morning). Dragging toes pretty bad. Ears ringing loud (that never stops).

Tues Nov 22 2005. Went to bed at 5am (had trouble going to sleep...restless and feet and legs were cold), got up at 12pm. Very stiff and weak, couldn't stand long enough to pull pants up. Have been very bored. Stools are starting to be less loose. Everyone here has been down with a cold and loose stools seemed to be part of it, I didn't have any of the other stuff.

Wed Nov 23 2005. Went to bed at 2:30am, got up at 12pm. Stayed in bed to long and had a headache when I got up, still bothering me 2 hours later, normally goes away after getting up but not this time (probably hanging on due to stress). Stomach is making growling noise. Legs are weak and shaking today, couldn't manage to stand to get dressed this morning. Legs shake and bounce when I put feet on the floor.

Fri Nov 25 2005. Took remedy (6 succussions, 2 tsps from dilution glass) at 12:30am before going to bed last night. Got up at 9:30am (slight change). Could stand to pull pants up (improvement). Had headache when I woke up (same). Headache would go away but would come back from wearing reading glasses (same). All in all a small improvement but nothing dramatic.

Sat Nov 26 2005. Went to bed about 3am, must have been noon or later when I got up. Have had a headache all day (stress mostly I think, sore eyes and tight in my neck). Could not bend down to pull my clothes up when I got up. The improvement seems to still only last a day.

Sun Nov 27 2005. Went to bed at 3:30am, (took remedy before bed 7 succussions, 2 tsps.), got up at 10am. Headache was pretty bad when I went to bed, had trouble going to sleep. Woke up and headache was much better although eyes were still a little sore and neck was still a little stiff. Left leg had a cramp when I got up. Legs felt weak and had trouble standing but it was a little better than yesterday.

Mon Nov 28 2005. Could stand to pull clothes up this morning. Felt weak but still felt better than usual so I didn't repeat the remedy.

Tues Nov 29 2005. Went to sleep on the couch at 4:30am, woke up about 9am. Felt like I would have been able to stand except for right foot and ankle turning. Bump on outside edge of right foot uncomfortable because when foot turns it puts weight on it.

Wed Nov 30 2005. Went to bed early and still didn't get up till 10:30am. Still haven't repeated the remedy since it did still feel like maybe I was doing a little better. Back hurts today, under right shoulder blade, even hurts when I take a deep breath. Could stand some this morning but pretty unstable.

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