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| There are many reasons for this page. While there is
much information on Muscular Dystrophy on the internet and various other
places. I wanted to provide a place where I could talk about what I have
learned about myself.
Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here. I invite anyone to share any knowledge they may have with visitors to this site. Simply email me Do you have a poem or story? Send it here I'm afraid there was no way to make this short as there
is lots of information here. Some may apply to many people and some only
to me. I have to make another point here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
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| Thurs Dec 1 2005. Took remedy before
going to bed (8 succussions, 2 tsps). Went to bed at 5am, got up about
12:30pm. Could stand ok, legs hurt all day, left hand was cramping quite
a bit tonight (I used to get that a lot). Kinda frustrated, irritable,
prefer being alone.
Fri Dec 2 2005. Went to bed about 4am, got up at 10am. Could stand this morning to get dressed (right ankle was trying to turn but was able to force foot flat). Was sleepy all day. Right hand cramped a little late in the day. Legs a little painful. Sat Dec 3 2005. Went to bed at 4:30am, got up at 10:30am. Could stand to get dressed, legs very tired. Irritable, mood not very good, prefer solitude. Legs hurt. Sun Dec 4 2005. Went to bed about 2am, got up at 12pm. Stayed in bed too long and head hurt when I got up (eyes hurt, neck and legs stiff, sinus congestion). Headache eased up after moving around. Right leg hurt, upper leg in front. Right leg would bounce when I put foot on floor while sitting. Could stand to get dressed (a little unsteady), right foot starting to turn while standing. Still prefer solitude. Mon Dec 5 2005. Slept late. Standing pretty much the same as yesterday. Back started hurting while in bed, just under right shoulder blade, even hurts to breathe deep (stress?). Tues Dec 6 2005. Slept on the couch, got up about 10:30am. Felt kinda stiff and weak when I got up. Had been constipated for a couple of days (stomach sore), finally went some late last night and released some gas today. Wed Dec 7 2005. Went to bed at 1:30am, got up at 6am. Some trouble standing this morning. Legs sore and stiff. Back has eased up a little. Thurs Dec 8 2005. Took remedy at 11:30pm (6 succussions, 2 tsp's in dilution glass, 1 tsp of that). Went to bed at midnight, got up at 9am. Difficult to stand, nose plugged up, eyes feel tired. Haven't noticed an improvement yet. Sun Dec 11 2005. Lay down on the couch at 7:30am, had to get up at 9am. Was tired all day. Most symptoms right sided today, right leg cramps, right hand cramps, right leg would bounce when sitting. Mon Dec 12 2005. Was pretty tired, went to bed at midnight, got up at 10:30am. Could stand to pull pants up but had to sit down right away, knees had started locking yesterday. Nose plugged up, slight headache, right side from eye around to back of neck on right side, low back pain, right side just above belt. Tues Dec 13 2005. Went to bed about 3:30am, got up at 9am. Was very upset and stressed when I went to bed and legs were weak and hurting, back hurt, arms and legs were itching. Legs still hurt when I got up, did manage to stand to pull clothes up. Left leg tended to bounce today. Thurs Dec 15 2005. Went to bed at 3am (Took remedy, 7 succussions, 2 tsps in dilution glass and 1 tsp from that). Slept late (not sure what time it was). Had trouble standing yesterday, that was improved today. Had a bad headache (back of neck and eyes, lasted all day and kept getting worse). Legs still stiff and urgent urination. Right hand started cramping tonight. Sat Dec 17 2005. Lay down on the couch about 6am, not sure what time it was when I got up. Eyes burn and head starts to hurt when I try to read. Right hand still cramping. Legs hurt ( having a lot of stress) and legs tired. Both legs tend to bounce and left leg jerks sometimes. Sun Dec 18 2005. Went to bed at 1:30am, got up at 10am. Very tired and stiff, got a cramp in left leg. Trouble standing. Knees didn't want to bend, right ankle turns whenever I try to stand on it. Nose plugged up, had electric sensation in neck and head when I sat up this morning. Sun Dec 25 2005. Have not felt good. Have a cold or the flu and none of the remedies I have tried have really worked. This is the third day, started with a raw chest and it hurt to even cough, from there it went to a sinus headache and drainage, now the sinuses don't drain much but have lots of pressure causing a headache. Can't go to sleep, sweat all night, very tired. Haven't taken the Lathyrus again, waiting for this to get better. Mon Dec 26 2005. Had trouble sleeping last night (was awake most of the night). Still plugged up and sinuses sore, as the day went on I developed a severe headache in the back of my head and neck (stress, eye strain?). Cough is loose, not too much sinus drainage, cold may be improving some, switched to Hepar Sulph this morning. Tues Dec 27 2005. Went to bed about 11:30pm, got up at 9am. Had trouble sleeping, mind wouldn't quit working. Didn't have a headache when I got up, do have some drainage, rattling in chest and a loose cough. Had trouble standing to get dressed this morning so if I don't take anything for the cold tonight I'll take the Lathyrus. Wed Dec 28 2005. Took Lathyrus (8 succussions, 2 tsp's from dilution glass). Cold much better, still have cough, nasal congestion. Thurs Dec 29 2005. Legs very weak. Cold still about the same, just congestion etc. ,doesn't feel like a cold anymore. Fri Dec 30 2005. Slept on couch, got very dizzy when I would sit up to turn over. Nasal congestion and cough about the same. Seems I screwed up taking the Lathyrus and it hasn't made any difference (trouble bending knees to sit down, right ankle turning when I stand or step, very stiff with some pain). Sat Dec 31 2005. Legs very weak, hard to stand, legs sore and couldn't pick them up off the floor. |
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