About Muscular Dystrophy Logo, Downriver Michigan
 
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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


Jan 2006
Still trying some different combinations with the Lathyrus this month. Not really sure if it's doing much or not as I had a pretty bad cold.
Sun Jan 1 2006. Difficult to get to my feet this morning. Legs hurt all day. Trying to keep mood upbeat. Very tired all day.

Tues Jan 3 2006. Legs very weak, can't seem to pick feet up. Very tired and mood is down.

Wed Jan 4 2006. Lay down on couch about 5am, got up about 11am. Everything hurts (back, neck, head, shoulders, legs). Burning in neck when I turn my head. Dragging toes, can't pick feet up. Trying to keep mood up. Very tired and sleepy, legs hurt. Still have a cough.

Fri Jan 6 2006. Went to bed at 3am, woke up at 9am with stomach cramps. Had lots of trouble getting to my feet, legs very weak and hurting. Time to take Lathyrus again.

Sat Jan 7 2006. Took Lathyrus (9 succussions, 2 tsp's into dilution glass and took 1 tsp of that) Got up this morning with legs very weak, difficult to get to my feet. Both ankles turning on me. I was able to stand to get dressed even with ankles turning.

Sun Jan 8 2006. Hard to sit up this morning. Fell asleep on the couch last night and had the sensation I was on velcro, like I was stuck to it and couldn't move. Sinus pressure with headache in my eyes all day. Silica eased it up some, went from both eyes into left after 1 dose.

Mon Jan 9 2006. Slept on the couch again and didn't get up till about 11am. Legs very weak (kept stumbling and falling), legs just won't hold me up today. Not resting at night, I sleep but never feel like I've had and rest when I get up.

Sat Jan 14 2006. Still have some of the cough left over so I have been taking Kali Bi for it but the cough is holding in there. Have held off on the Lathyrus trying to get rid of the remnants of the cold. Have been having very weak legs with aching in them (at times very bad). Having trouble picking feet up and ankles turning. Am beginning to wonder if maybe there is a better remedy out there for me? Leg pain has been pretty extreme today (pain came in waves). Some burning in my neck when I turn my head. Sore all over, legs, shoulder (mainly left), tension in back of head and tired eyes.

Mon Jan 16 2006. Congestion this morning with the cough (wasn't as tough to cough up but felt hoarse after coughing). Ankles turning and difficult to stand or walk. Pain in legs. Stomach feels bloated after eating no matter what I eat.

Wed Jan 18 2006. Stayed up all night then only slept for a couple of hours. Almost couldn't stand up, legs are stiff, weak and sore. Having trouble picking feet up. Can put left foot down flat, right ankle turns. Feet feeling cold (mainly left) and foot a leg keep jerking. Right hand was cramping today.

Sat Jan 28 2006. Haven't been sleeping well. Stay up all night then want to sleep all day. Very tired all the time. Legs weak. Mood not the best. Can't pick feet up most of the time. Haven't taken my remedy since Jan 7 and will have to take it to see if it helps. Stomach has been acting up (cramps and sore, left side).

Sun Jan 29 2006. Took remedy last night (10 succussions, 2 tsp's into dilution glass and took 1 tsp of that). Had sensation of insides being shaky after going to bed, was gone when I got up. I think I feel the same but I have noticed I did more today. Was still up all night and slept late. Stomach still sore but not quite as bad. Legs still weak and hurt some, neck stiff.

Tues Jan 31 2006. Have been a little more ambitious maybe. Still struggle with the tendency to put things off. Could stand this morning to get dressed, have some hand cramps and sore all over (overexertion?). Clothes always seem to be twisted.

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