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| There are many reasons for this page. While
there is
much information on Muscular Dystrophy on the internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here. I invite anyone to share any knowledge they may have with visitors to this site. Simply email me Do you have a poem or story? Send it here I'm afraid there was no way to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further. |
| Thurs Feb 2 2006. Lay down
very late, couldn't go to sleep and when I did didn't wake up till
late. Legs weak and not real motivated to do much. Very tired but just
can't sleep at night. Sat Feb 4 2006. Didn't go to bed Thurs night and forced myself to stay awake all day yesterday figuring I'd sleep last night. Still didn't go to bed till 2:30 in the morning. Legs feel very weak today and have some pain in them. Trouble bending knees to sit down. Got up at 9:30am and still feel sleepy. Sun Feb 5 2006. Very stif, sore and tired today. Mood not good. Bored and depressed. Mon Feb 6 2006. Slept on couch, had trouble getting to my feet, very weak legs. Felt like a headache all night (head sore, left side). Tues Feb 7 2006. Slept late and had a headache when I got up (right side), finally went away. Legs very weak and balance pretty bad. Legs hurt and feel very weak. Thurs Feb 9 2006. Woke up earlier today with leg cramps. Legs very weak. Have been sore everywhere. Fri Feb 17 2006. Have been pretty down the past few days, can't sleep well, wake up hurting all over, legs stiff and sore, ankles turn, hard to bend knees. Headaches the past couple of days. Took Lathyrus 3 days ago but it didn't seem to do anything. Sat Feb 18 2006. Lay down on couch about 5:30am. Lose track of time and don't go to bed. Feels like I'm laying on velcro (can't move). Can't find a way to lay without it being sore. Sun Feb 19 2006. Went to bed about 3am, slept till about 11am. Legs stiff, trouble bending knees. Tues Feb 28 2006. Have been experimenting for the past few days with olfaction (smelling the remedies). Haven't been happy with the results of the Lathyrus and have tried both Ruta and Plumbum Met with a few days between each. Not much in the way of results so I'm reworking my case myself to see if I come up with anything (Self treatment for something chronic isn't a good idea but I don't have much choice right now). Continue |
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