| There are many reasons for this page. While
there is
much information on Muscular Dystrophy on the internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedreich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or story? Send
it here
I'm afraid there was no way to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get to a good
homeopath
as soon as possible"
March
2006
Have been working on my
own case
because I just can't sit
and do nothing so I will be trying different things. Not my preference
but can't find anyone in my area.
Wed March 1 2006.
Had a terrible headache yesterday and fell asleep on the couch early.
Woke up several times through the night. Had trouble last night and
early today with involuntary urination (would leak with no urgent
feeling). Got better later in the day. Head feels much better although
neck is still pretty tight. Will try Caust. tonight.
Thurs March 2 2006. Took Caust 30C dry dose last night. Woke up with a
headache from a stiff neck and a cramp in right calf that was pretty
extreme. Both eased up after moving around. Will have to wait and see
(could have been an aggravation so will see if it improves). Didn't
feel any stronger today but I did seem to be able to make myself do
more. Right ankle still turns when I step with the right foot.
Fri March 3 2006. Didn't have the cramp in my leg this morning but it
felt really tight like it had cramped. Didn't have quite as much
ambition today. Ankle still turns and noticed that in the dark I can't
feel if I'm urinating so have to be careful. I'll still wait to take
Caust again and will move to a water dose when I do.
Sun March 5 2006. Have had really sore legs last 2 days. Very difficult
to pick feet up. No cramp in leg today I think it's about time for the
Caust. again.
Mon March 6 2006. Took Caust. 30c when I went to bed. Legs very weak
today, can't pick feet up, knees lock and I can't bend them, balance
bad, bladder still feels full after urinating.
Tues March 7 2006. Difficult to wake up today. A lot of leg pain and
soreness. Hard to stand from weakness and pain.
Wed March 8 2006. Pain in right hip woke me up today, very difficult to
turn over, pain in other respects was a little less. Have been very
sleepy all day and legs are sore tonight.
Sat March 11 2006. Can't sleep last 3 nights, get up to urinate two or
three times, go to bed at 3 or 4 am and wake up about 7:30 am and can't
go back to sleep for the pain in right leg, starts at the top and
radiates all the way down. Feel like I could sleep all day till I try
then the pain starts again. Got a headache today from being in the sun
without a hat, finally went away tonight but back of neck is still
tight. Legs very stiff and weak.
Wed March 15 2006. Didn't sleep much, went to bed very late and got up
early, pain in right leg (hip high but in front around to groin area).
Very tired all day. I have to reevaluate my case again.
Thurs March 16 2006. Went to bed about 1:30 am, got up at 10 am with a
headache, the headache woke me up, couldn't lay on either side. Took
Sil 30c twice and it seemed to go away. Right leg still hurts, I think
it may be structural but my Chiropractor is in another state since I
moved. Have had a couple of problems holding bladder the last few days.
Fri March 17 2006. Got up earlier than I wanted to, very stiff, right
ankle turning bad, dragging toes, legs stiff and knees wouldn't bend,
balance bad, tired all day. Watery stools and excessive urination
(would leak without realizing it). Was looking at remedies for the
bladder problem and stool and selected arg-n and many other symptoms
fit, like craving sweets, there was mention of it being useful in
locomotor ataxia so I took a dose.
Sat March 18 2006. Bladder and stools still a problem, stools were a
little less watery. All the rest basically the same. Head has been
itching for a few days. Had been working in the yard and was sore, took
a dose of arnica.
Sun March 19 2006. Bladder and stools about the same. Head still
itching. Was very sleepy last night so went to sleep earlier than usual
but slept late still. Took 3 tries to stad when I first got up, legs
stiff and hard to bend knees. Decided to fall back on Equis for the
bladder since it always seems to help that.
Tues March 21 2006. Stools are better but bladder is bad, I don't feel
an urgency till I'm in the bathroom and the flow starts and I can't
hold it. Almost couldn't get to my feet when I got up this morning.
Looked at my stuff again and Caust keeps coming up, I tried it earlier
in the month and didn't really notice anything so I think I'll give it
another try. Legs sore and weak, right forearm pain. Took a dose of
Caust 30c at 4 am.
Thurs March 23 2006. Bladder seems better. Have some genital itching
and head still itches some. Right knee is bothering me (can't seem to
get it in a position where it doesn't hurt), not really pain just
uncomfortable. Having trouble standing today, balance is pretty bad.
Ordered some Bioplasma and it came in today so I'm going to try it for
awhile, 6 3 times a day.
Fri March 24 2006. Bladder was bad all night and most of the day today
(was up every 2 hours to urinate). Legs still stiff, knees locking but
I still got the impression they were a little more loose. Started
feeling like I was getting a head cold this afternoon (watery nose with
a burning sensation in back of nose, drainage down back of throat ,
feels like a sore throat coming on, some sneezing. Took 2 doses of
Allium C 30C so far, haven't noticed an improvement yet. The thought
occured to me that I may have started with too much Bioplasma and that
may be causing it so I'll hold off tomorrow and see if it stops before
continuing.
Mon March 27 2006. Had a rough weekend between the bladder, the cold
with headache and runny nose, weak legs and leg pain plus have been
sore all over. Have been taking the Bioplasma. Went to bed with a left
sided headache last night and still had it when I got up. Legs very
weak when I got up and had trouble getting up and getting dressed. Very
down mood.
Fri March 31 2006. Still have the runny nose. Bladder is better. The
Bioplasma seems to help the runny nose but only for a couple of hours
or so.
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