| There are many reasons for this page. While
there is
much information on Muscular Dystrophy on the internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedreich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or story? Send
it here
I'm afraid there was no way to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get to a good
homeopath
as soon as possible"
May
2006
Started a new regimen this month. Had some results, not as
much as I would have liked but time will tell.
Mon May 1 2006.
Less back pain today but still having trouble standing.
Tues May 2 2006. Have developed a blister on my lip (started feeling it
yesterday and didn't take anything for it so it got bad today). Have
trouble waking up in morning and feel very tired when I get up. Used
some Calendula creme on lip, will see how it is tomorrow.
Wed May 3 2006. Had trouble sleeping, feet and legs felt extremely
cold. Was very late when I went to bed and couldn't fall asleep for a
long time and finally had to get up to urinate even though I went just
before going to bed. Blister on lip has gone down some and doesn't feel
as bad so the Calendula seems to be helping some. Had trouble standing
to get dressed again. Taking the Calendula creme again tonight, lip was
a little better this morning but got more sore as the day went on. BC
tonight.
Sat May 6 2006. Slept too late today and had a headache when I got up.
Very weak and fell when I got up (took awhile to get back up). Headache
hung on all day even though I was taking silica which kept it to a
point where I could still function. Used the Calendula creme again last
night, blister is down quite a bit but still there. Was so weak today I
started on Calc Phos as a tonic to see if I can build myself back up.
Sun May 14 2006. Woke up tired and both shoulders very sore. Legs
feeling pretty weak with trouble picking feet up. Had a day a couple of
days ago where I could stand a little better but it didn't last.
Haven't taken any remedies for awhile now.
Mon May 15 2006. Still very tired when I got up, difficult to pick feet
up, balance and leg strength bad so standing up was a problem. Sore all
over. Will go back to the Bioplasma as a tonic.
Tues May 16 2006. Trouble getting up today. Don't seem to be getting
anywhere so I ordered the remedies I was told to get and will see how
it goes when they get here. Still haven't went back on the Bioplasma
but did take Calc Phos today.
Mon May 22 2006. Last two nights have been up 2 or 3 times to urinate
and it was urgent, have done better during the day so took a dose of
Equisetum tonight. Have been very stiff and had trouble standing,
getting in and out of the tub etc. Something popped in my chest on the
left side several days ago when I was lifting my granddaughter and that
has been very sore, have taken Arnica but didn't do it right away and
it had already settled sore. Remedies I ordered came today, will start
on them tomorrow.
Tues May 23 2006. Took first dose of Baryta Carb early this morning.
Didn't notice any real difference in anything. Took the second dose
tonight. Bladder was better last night. Legs sore and stiff when I got
up this morning. Could not stand without something to hold onto.
Wed May 24 2006.Was in bed for exactly 8 hours, felt like a slight
headache starting when I went to bed. Didn't go to sleep right away
(kept turning over and had to sit up to turn over). Was tired when I
got up and calves were sore (like they had been cramping). Took the
second two doses of Baryta Carb, now I wait two days to start the next
part. Had trouble standing to get dressed when I got up today.
Fri May 26 2006. Haven't noticed anything from the Baryta Carb. Started
the Aurum Met 30 this morning and will start Caust tonight. Slept late
today and woke up with a headache. Knees wouldn't bend so I pretty much
have to fall into a seat rather than sit.
Sun May 28 2006.Slept late again today. Woke up early but went back to
sleep. Haven't noticed any significant changes yet. It's possible that
standing was a little easier today but not real sure yet so continuing
with Aurum Met and Caust. |
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