| There are many reasons for this page. While
there is
much information on Muscular Dystrophy on the internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedreich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or story? Send
it here
I'm afraid there was no way to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get to a good
homeopath
as soon as possible"
June
2006
Finished the new regimen this month. Had some results,
not as
much as I would have liked but time will tell. Started the regimen a
second time to see if the effects will be cumulative. Difficult to
evaluate as I caught one of those summer colds that tend to hang on.
Fri June 2 2006.
Main things I have noticed is maybe my emotional state has been a
little better from the Aurum Met. I had been getting leg cramps in bed
after taking the Causticum but I have also been getting on and off an
atv and riding some so I am probably using the leg muscles more. Had a
restless night last night and had a bit of a headache and sore legs
today.
Tues June 13 2006. Have been out of town for a few days and away from
my computer. Have had some good days and bad days so not sure what to
make of it yet. Have felt like doing more but it has been mainly mental
so far. Some discomfort in bed, wake up with neck and shoulders stiff
and sore. Restless legs in bed, covers feel heavy, big toe on right
foot hurts (worse when laying on right side). Keep turning over and
have to sit up to turn over. Right ankle still turns easily.
Wed June 14 2006. Slept on the couch and it felt like I was on velcro
and couldn't move. Right foot still a problem at night and right ankle
turns easily when I stand on it. Feet feel cold after I get under the
covers, not always cold to the touch but a cold sensation. I did drive
some today, didn't go too bad although my reaction time still isn't
what I'd like but I will still be working on it. I think maybe the
Causticum is working more on the mental than the physical so far.
Fri June 16 2006. Was out all day and walked quite a bit. Stomach was
very sore and couldn't have a stool.
Sat June 17 2006. Didn't go to bed till very late, woke up with a cramp
in left calf. Legs felt very weak and had trouble holding my weight.
Stomach was still sore.
Mon June 19 2006. Feeling weak in the legs pretty bad today, mood is
down. Ears ringing and just a slight headache. Had stomach cramps and
loose stools last night. Neck stiff and shoulders and upper arms sore.
Having trouble picking feet up. Have no real desire to do anything.
Tues June 20 2006. Still felt weak and sore this morning. Stool not so
loose today but difficult to expel. Shoulders still very sore (I think
my neck is out causing much of that). Very emotionally sensitive and
having trouble dealing with any kind of stress. Feel like something is
happening but can't spot it.
Wed June 21 2006. Got up a little earlier today. Left shoulder very
sore and neck still stiff. Whole body stiff. Right knee hurting a
little when I was going to bed.
Thurs June 22 2006.Woke up with very stiff neck and left leg cramps
when I stretched out. Legs feel weak yet I seem to be able to stand a
little easier. Neck is still very stiff.
Sat June 24 2006. Finished the 4 weeks of Causticum last night.
Difficult to really tell anything as I have been getting a cold for the
last few days and I'm extremely tired and light headed. Even though I
feel very weak and have trouble picking feet up I seem better able to
stand but that is all I've been aware of. Stomach is very sore and
having trouble having a stool, mouth very dry, nose running clear
usually, get a headache and dizzy if I lean forward.
Sun June 25 2006. Heard from the homeopath I've been talking to and he
advised me to repeat the program I was on. Will start again tomorrow.
Was feeling ok today with the cold (have been taking Gels for it).
Later in the day got a little rougher with the sneezing and runny nose.
Mon June 26. Slept late today but it was restless (I was awake early
but didn't want to get up). Took the Baryta Carb today (haven't noticed
anything). Cold seems worse today, rained all day and nose has been
runny (clear discharge), cough (tickle in throat), sneezing. Trying Nat
Mur now since it comes up for many of my problems anyway.
Tues June 27 2006. Took second day of Baryta Carb. Still haven't
noticed anything.
Wed June 28 2006. Had a doctor appointment today to get the results of
the blood tests and everything they ran last month. It had been about 6
or 7 years since I'd been to a conventional doctor because I won't take
prescriptions. He informed me that there was nothing he could find to
treat me for and suggested I keep doing what I've been doing since I'm
in pretty good shape by all their standards. The cold is still hanging
on, nose isn't running as bad but sinuses are plugged up and tend to be
very sleepy and light headed.
Thurs June 29 2006. Second day without any remedies other than what I'm
taking for the cold. Tomorrow I start the 4 weeks on Aurum Met and
Causticum. The only thing I really noticed after the last time is even
though my legs still felt really weak I did seem to be able to stand a
little easier and on the mental level I started doing things I had
given up on, they weren't easy to do but with some persistence I did
manage to do them.
Fri June 30 2006. Started Aurum Met 3X day this morning. Woke up with
headache from the cold, stuffy nose, dizzy. Had a stiff neck with a
headache all day, nose running on and off, violent coughing a couple of
times. With the cold symptoms it's difficult to evaluate the other
stuff. Caust 1 time tonight.
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