| There are many reasons for this page. While
there is
much information on Muscular Dystrophy on the internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedreich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or story? Send
it here
I'm afraid there was no way to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get to a good
homeopath
as soon as possible"
July
2006
The cold was apparently allergies. Don't seem to be
making anymore progress. Watching things to try and see any change.
Sat July 1 2006.
Cold still there. Didn't do too bad all day but neck is stiff tonight
and starting to get a headache from it. Nose feels like it is about to
start running. Haven't really noticed anything different today from the
Aurum Met and Caust. Had some trouble standing this morning but that
isn't unusual. Noticed a bite on inner part of leg this morning
(probably a spider bite), took a dose of Apis.
Sun July 2 2006. Was reading up on Caust last night and it said Caust
and Phos don't follow each other well, (had been taking Phos for the
cold), stopped the Phos in case it was interfering. Spider bite
hadn't improved so tried a dose of Ledum for it. Switched to Silica for
the cold, still have the cold but haven't had the headache.
Mon July 3 2006. Cold moved to next level overnight, discharge has
turned green and lumpy. Noticed last night that ankle wasn't turning
quite as bad. Still feel weak and knees don't want to bend. Covers
still feel heavy on legs and feet and still have to sit up to turn
over. Have been sleeping ok, maybe too well because I don't wake up
early.
Wed July 5 2006. Went to the fireworks last night. Was a rainy day
today so everyone was bored including me. Had some sneezing, coughing
and stuffy nose again today, seems that it may be more than just a cold
so am trying to cover allergies, hay fever etc. today. Balance not real
good, ears ringing and always feels like there is something in my ears
(wax, hair etc.).
Thurs July 6 2006. Had trouble going to sleep then slept late. Legs
very weak when I got up (difficult to pick them up). Taking a remedy
for allergy/hay fever and noticed that nose doesn't run as bad outside
in the open air as it does indoors. Legs very stiff all day (trouble
bending knees), ankle turning when I stand.
Sun July 9 2006. Mentals not real good today (kind of down and easily
irritated). Trouble picking feet up, very little pain. Had a dream last
night that I was walking along with no trouble. Difficult standing to
dress this morning, very tired. I think humidity is up today, getting a
little bit of a headache in right eye.
Mon July 10 2006. Seemed to sleep ok last night. Woke up about 10 am,
had scratched left leg with toenails of right foot in my sleep, left
leg was cramping when I woke up. Didn't have a lot of energy but did
get out and ride my ATV most of the day. Didn't want to do it but
forced myself to take care of some bills tonight. Not seeing any real
increase in leg strength but can at least force myself to do things
where many days I just can't make myself do them.
Tues July 11 2006. Went to bed late and woke up early but didn't feel
rested. Legs have been jerking and shoes feel tight. Left hand keeps
cramping, probably from overuse. No real desire to do anything.
Mon July 17 2006. Past few days have been ok in some respects and not
so good in others. Have been getting out some and doing things but
emotionally have been down and easily frustrated. Feet have felt like
they are stuck to the floor (having trouble picking them up). Feet and
legs feel uncomfortable especially at night, covers feel heavy if that
makes any sense. Very difficult to stand, can't keep balance. Ears
still ringing pretty bad. Woke up with stiff neck and headache today,
headache eased up after moving around some but still feel very tired.
Tues July 18 2006. Got up today with an electric sensation in my neck
and head (buzzing sound in my head). Both shoulders have been very
sore. Feet and legs feeling sore and uncomfortable. Did seem to be able
to stand a little better.
Wed July 19 2006. Ended up going to bed late so slept late today. Had
that electric sensation in neck and head when I sat up in bed (could be
neck is out causing that). Both shoulders still very sore. A little
more difficult to stand when I got up, knees locking and couldn't bend
them. Feet and legs still uncomfortable in bed. Shoes still feel tight
but need to wear shoes as it is a little better standing etc. Right
ankle still tends to turn when I stand.
Thurs July 20 2006. Had a little trouble going to sleep last night
(covers felt heavy). Had a dream this morning just before I got up that
I was walking normally, legs were very weak and tired when I did get up
(maybe I was really doing it in my sleep?). Neck still doesn't feel
right.
Sat July 22 2006. Feet bother me at night (covers feel heavy on them).
Seemed to be able to stand up ok today (well ok for me but probably
would seem bad for many other people). Legs and feet feel tired today.
Ears have never stopped ringing. Arms feel strong enough. Balance is
still off (even while sitting I may tend to fall over if I am not
touching something to give me a reference).
Sun July 23 2006. Slept kind of late today and I usually feel bad when
I sleep late. Had a headache early and neck and shoulders have been
stiff and sore as well as legs. Has been more difficult to move around.
Mon July 24 2006. Slept late again. Was getting another headache last
night (mainly in left eye) was difficult to get to sleep. Feel very
tired today.
Tues July 25 2006. Feet tired today and shoes felt tight. Have noticed
several different times that my clothes feel like they obstruct
movement of legs and I don't know if that is normal or not.
Wed July 26 2006. Legs have felt weaker today. Don't say anything to my
wife because she falls apart. I think it's just a bad day. Have had a
lot of gas today.
Thurs July 27 2006. Got up a little earlier today. Still not steady but
maybe a little better. Couldn't get comfortable to go to sleep last
night, covers felt heavy on feet and legs and feet felt cold. Next
remedy came today so I'm stopping for a couple of days so I can maybe
evaluate the results better.
Sat July 29 2006. Slept late, feel weak (even more than usual).
Everything seems harder to do. Right leg started bouncing when I put my
foot on the floor this morning. Bladder has been a little worse the
last couple of days (would have been ok for most people but it takes so
much effort for me to get to the bathroom).
Mon July 31 2006. Started Arnica CM 2 times a day for 2 days. Have felt
weak and not very energetic, sore and stiff. We will see how the Arnica
works.
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