| There are many reasons for this page. While
there is
much information on Muscular Dystrophy on the internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedreich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or story? Send
it here
I'm afraid there was no way to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get to a good
homeopath
as soon as possible"
August
2006
Stopped the remedies I was on. Started testing paper
remedies.
Tues Aug 1 2006.
Still feeling uneasy at night (feet, mainly right feels bent at the
ankle, I keep turning over to try and ease the feeling but it doesn't
help). Right leg was bouncing when I put foot down on the floor (has
started happening more again recently, actually is an old symptom).
Very difficult to get feet off the floor when I walk (actually seems to
be a little worse). Am trying to keep knees bent a little so they don't
lock when I sit down (gives the sensation that legs are weaker).
Thurs Aug 3 2006. Yesterday was first day without any remedies after
the two days or Arnica. Have felt very weak, legs tired and sore (guess
it could be considered pain but not real bad). Right ankle and foot
feels like weight and pressure are on it in bed, if the covers touch
foot it feels like a heavy weight. Itching in bed like something is
biting me all night. Knees still locking up and feet feel stuck to the
floor. Right ankle still turns bad when I stand or walk. Had been
starting to have trouble holding bladder again, took a dose of Equips.
(low potency), don't really like dealing with that separately but it
always seems to work.
Fri Aug 4 2006. Went to bed early last night and slept late today.
Still very sleepy but had a bad headache when I got up from laying in
bed too long. Had a lot of itching and burning yesterday, looked today
and have some bites of something and they are like blisters, took a
dose of Apis for it. Started the Arum Met and Causticum today. Feet and
knees still doing the same thing so it's difficult to stand and move
around.
Sat Aug 5 2006. The itching was very bad last night. Am starting to
think it is worse from sweating (Trying to keep dry to test that
theory, also took a dose of Nat Mur). Walked more than usual today and
legs feel sore.
Sun Aug 6 2006. Itching was still terrible last night, made it
difficult to go to sleep. The Nat Mur didn't help, tried Thus Ox today.
Haven't seen any real improvement in the leg strength or anything so
far. Bladder has been good since the Equips on Thurs. Ankles look
swollen to me.
Mon Aug 7 2006. Stayed up late last night then had trouble going to
sleep. Soaked in the bath with baking soda in it, main itching was
better but behind right knee was driving me crazy itching. Bladder
still good, ankles still weak (worse on right side). Knees still stiff
and locking up.
Tues Aug 8 2006. Got up earlier today, still feel weak in the legs.
Itching wasn't bad last night (I think part of the reason I've had so
much trouble with it is that I sweat in the groin area, bends of the
knees and feet and those areas are always moist, they never feel dry
which irritates any skin eruption. Knees still stiff, right ankle still
turning and ankles are swelled. Have been making an effort to walk
more, have to go slow trying to pick toes up (almost impossible without
shoes on, I do better wearing shoes which seems a little odd because my
feet are heavier with shoes).
Wed Aug 9 2006. Slept late today. Want to do things but feel weak.
Knees don't want to bend. Right ankle still turning when I walk.
Sun Aug 13 2006. Have been very tired and sleepy. Legs hurting some
today and couldn't keep balance long enough to get dressed this
morning. Right leg feels weaker than left but both legs stiff and knees
locking. Right ankle still turning if I stand or walk.
Mon Aug 14 2006. Cramp in left calf when I got up today. Very tired all
day but not sleepy tonight or at least don't feel like I can sleep.
Started feeling depressed yesterday, feeling alone and hopeless about
life. It won't last but has been an issue for two days now, I hide it
from the people around me because it's not something they should have
to deal with.
Wed Aug 16 2006. Knees still locking & can't bend them to sit down
at times, right ankle still turns, ears have never stopped ringing,
right ankle swelled, left foot and ankle swelled (left foot was broken
years ago). Fighting depression and worry. Don't seem to have much
enthusiasm for anything.
Thurs Aug 17 2006. Difficult to sit down with knees locking (have to
just fall into seat). Legs don't feel very strong. Woke up early this
morning but went back to sleep and slept late. Finances bearing heavy
on my mind. Just can't seem to get myself to work on the computer
lately and I don't know if it's from feeling tired or my mental state?
Fri Aug 18 2006. Stopped the remedies I was on since I didn't seem to
be improving. Have to order the next ones as soon as I can. Knees still
stiff and won't bend. Feet have been burning and jerking (mainly later
in the day). Ears still ringing, feet feel stuck to the floor when I
walk.
Sat Aug 19 2006. This will be the first day off all remedies. Went to
bed a little earlier last night, got up earlier today. Right shoulder
was hurting when I went to bed (feels a little better today). Stomach
has been very sore today (painful), tried going to the bathroom (helped
some but it's still sore). Feet still feel stuck to the floor, ears
ringing bad and ears itching inside (feels like hair or dried wax), a
doctor told me they looked clear and suggested it was an indication of
allergies?. Feet and ankles still swollen.
Sun Aug 20 2006. Was up late last night, I was sleepy but in a bad
mood, probably wasn't as bad as the wife's mood so it was probably
better just staying away from her. Got up today with cramps in right
leg and a kink in my neck on the left side which isn't going away.
Can't bend knees, difficult to stand, ankles turn when I do. Right
shoulder still hurts (feels like it's in the bone).
Mon Aug 21 2006. Slept late, neck giving me trouble when I got up.
Still can't pick feet up, right shoulder a little better. Right leg
bounces when setting foot on floor. Feet feel hot (like they are
burning). Feet keep jerking, seems to be worse at night when I'm
sitting around.
Tues Aug 22 2006. Have been noticing that my feet hurt (feels like
pressure, covers heavy, can't get comfortable, unpleasant sensation?).
Keeps me awake, have to keep turning over trying to find a position I
can sleep in. Knees still didn't want to bend this morning (not quite
as bad as the last few days), did seem to be able to stand just a
little better. Since I have to wait awhile to order my next remedy
(waiting on finances) I have decided to do an experiment with a paper
remedy, if there is nothing to it I will only be taking a sip of water
now and then, if there is something to it, who knows? Starting with
Conium Maculatum 6c, took a sip this morning.
Wed Aug 23 2006. Feet didn't seem to hurt as bad last night, no other
changes in anything. Changed the potency on the paper remedy to 16c.
Thurs Aug 24 2006. Feet started hurting some late last night before
going to bed, took another sip of the paper remedy ( 16c ) and they
didn't bother me much when I went to bed. Feet did have the sensation
of being very cold. Changed the potency of the paper remedy to 30c
today. It isn't much but knees still stiff but it doesn't seem to be as
hard to bend them (could be just an impression). Ankles still turning
easily. May be just a little easier to pick feet up. It's hard to tell
for sure since it would be such a small change and one day isn't enough
to determine.
Fri Aug 25 2006. Feet hurt a little last night but not bad. Most things
seem about the same. Increased the paper remedy to 60c today.
Sat Aug 26 2006. Left foot hurt some last night in bed. All day
yesterday and last night I had the sensation I had to urinate. Feet
still felt stuck to floor. Neck was stiff when I got up today. Knees
still stiff and difficult to bend. Increased paper remedy to 160c today.
Sun Aug 27 2006. Couldn't sleep last night. Kept waking up. Legs felt
pretty weak when I finally got up, neck is stiff again with a bit of a
headache, sinuses plugged up some with some drainage down the back. Not
taking the paper remedy today just to see.
Mon Aug 28 2006. Woke up sore all over, hard to move and a headache
from back of neck. Changed paper remedy to 200c.
Tues Aug 29 2006. Woke up late, legs sore, neck stiff, starting to get
a headache from it. Eased up some after moving around. Didn't take
paper remedy today, knees and ankles stiff, almost impossible to get
around.
Wed Aug 30 2006. Didn't sleep at all last night. Changed paper remedy
to 1M.
Thurs Aug 31 2006. Went to bed at Midnight and slept till almost Noon
today. Nose has been plugged up. Legs were cramping when I got up today.
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