| There are many reasons for this page. While
there is
much information on Muscular Dystrophy on the internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedreich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or story? Send
it here
I'm afraid there was no way to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get to a good
homeopath
as soon as possible"
Sept
2006
Started a new routine this month. No results as of the
end of the month.
Sun Sept 3 2006.
Had a headache yesterday that just got worse all day, mainly back of
neck and head. Finally went to sleep last night and it was pretty much
gone when I got up today, still a little stiff in my neck but I can
live with it. Haven't been taking the paper remedy, have been stiff in
the legs, hard to bend knees, some pain in upper left arm (feels like
the pain is in the bone) it comes and goes, head is congested, ears
ringing.
Tues Sept 5 2006. Knees and legs very stiff, knees won't bend. Drainage
down the back of my throat, ears still ringing.
Wed Sept 6 2006. Stomach was very sore last night, went to the bathroom
and it eased up some but didn't go away completely, still sore today.
Left temple sore when I went to bed, that is okay now. Knees still
stiff, maybe not as bad.
Thurs Sept 7 2006. Stomach is still very sore (to the point of being
painful). Knees won't bend to sit down. Ears ringing. Mentals seem to
be okay (I keep thinking I can do things rather than thinking I can't).
Fri Sept 8 2006. Slept late, right leg bounced when I put foot down
getting up. Stomach still sore.
Sat Sept 9 2006. Started feeling like I was getting a cold last night.
Today have a sore throat on left side from nasal drainage, sneezing.
Last time it didn't go away till I took something for allergies so I
started with that this time. Allium Cep. 30c.
Tues Sept 12 2006. Still have the cold symptoms, nose runs at times,
plugged up other times, occasional cough and tickle in throat. Don't
feel rested in the mornings and seem to stay tired all day. All normal
symptoms are the same.
Fri Sept 15 2006. Didn't feel well at all yesterday, still have some of
the cold symptoms. Had a bad headache yesterday, didn't ease up till I
took a nap. Got back up and much of the headache was from my neck.
Started to feel a blister on my upper lip on right side yesterday
afternoon. I get them now and then, didn't treat it yesterday because I
was just too tired and feeling bad. Still there today so took a dose of
Nat Mur 30c. Within an hour the blister was almost gone. Neck still
feels out of place but head doesn't hurt too bad. Nose still stuffed up
and have a little bit of a cough but I still believe it's allergies/hay
fever. This time of year I believe it's a common problem.
Sat Sept 16 2006. Blister was down to where I could barely tell where
it was this morning. Neck still giving me problems.
Sun Sept 17 2006. Neck still stiff. Blister gone completely. Legs and
feet hurt in bed. Knees don't want to bend making it difficult to stand
or walk. Coughing up some phlegm from chest.
Mon Sept 18 2006. Slept late because I was up late. Nose still plugged
up a little, coughing some. Knees still stiff. Mentals seem okay.
Tues Sept 19 2006. Legs and feet felt uncomfortable in bed last night.
Head hurt some from tension in my neck from the position I was sleeping
in. Cough is a little looser. Nose still gets stuffed up. Legs feel
like wood, knees won't bend.
Thurs Sept 21 2006. Legs and feet were icy cold last night. Woke up
sweating (head and neck). Neck very stiff with headache. Difficult to
move, legs stiff and can't pick feet up.
Sat Sept 23 2006. Started a new routine today, I'll wait to see how it
works out before saying much about it.
Sun Sept 24 2006. Feet and legs have been very cold in bed. Seems to be
even harder to move my feet.
Mon Sept 25 2006. Finished two days on the one remedy. Now I wait till
Thursday to take the second. Very difficult to keep balance in the dark
even when holding onto something.
Tues Sept 26 2006. Got up a little earlier today. Feet and legs were
very cold last night, for awhile was a sensation but recently they were
even cold to the touch. Legs still stiff but may be just a little
better.
Thurs Sept 28 2006. Legs and feet cold last night, right foot hurts
keeping me awake and covers feel very heavy. Took first dose of the
second remedy today, next dose is Tuesday. Both ankles turning bad
today, very difficult to stand.
Fri Sept 29 2006. Feet and legs being so cold keeps me awake at night.
Don't notice any difference in anything so far but it has only been a
day.
Sat Sept 30 2006. No improvement yet. Back has been sore and stomach
sore.
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