| There are many reasons for this page. While
there is
much information on Muscular Dystrophy on the internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedreich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or story? Send
it here
I'm afraid there was no way to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get to a good
homeopath
as soon as possible"
Oct
2006
Finished the new routine this month. Not much to report
unfortunately. I did start on some new vitamins this month, it will
take some time to work. I will keep the results posted.
Sun Oct 1 2006.
Legs feel very weak today. Woke up with a headache (fortunately not one
of the real bad ones). Back still hurts. Sometimes something will seem
worse before you start seeing improvement so will have to pay
attention to how weak the legs feel.
Mon Oct 2 2006. Left hand was cramping last night from using it (old
symptom),happened again tonight, left leg cramping when I got up today
(old symptom). Legs feel weak and knees wouldn't bend (can't explain it
but it feels different, kind of how it felt a couple of years ago).
Feet slide when I sit down because knees won't bend.
Tues Oct 3 2006. Got up a little earlier today but seemed even harder
to stand. Knees still very stiff and can't seem to pick feet up. Take
the remedy again tonight.
Wed Oct 4 2006. Took remedy last night before going to bed. Kept waking
up lightheaded,dizzy and with sensation of electric current in head and
neck (happened 3 different times). Slept late and legs were very weak
when I got up. Had a slight headache all day.
Thurs Oct 5 2006. Felt like something in left ear all night (got a tiny
bit of wax out today). Feet and legs were cold last night but didn't
seem to be as bad as it had been. Normally whole foot would hurt in
bed, last night it was the big toe on both feet. Legs still very weak
today. Overall there are a couple of things that may be a little
better. Next dose of the remedy is Sunday. Bladder was a problem today,
couldn't hold it, always felt full, going frequently, took a dose of
Equis 7c and it settled down in an hour or so.
Fri Oct 6 2006. Feet just felt a little cold last night, legs felt good
(much better than it had been). Went to sleep a little faster than I
had been. Had gas all day yesterday. Slight headache today and quite a
bit of congestion. Both ankles turning making it difficult to stand,
knees don't want to bend making it difficult to sit down.
Sat Oct 7 2006. Feet and legs were very cold again last night. Had gas
and a sore stomach when I went to bed (still sore today, could be from
having pizza for dinner). Bladder felt full all night but didn't want
to get up (at least I could hold it after taking Equis on Thurs). Took
a dose of Nux V today for the gas pains (hasn't made a difference so
far). Legs still weak and knees still don't want to bend.
Mon Oct 9 2006. Slept late again. Hit left knee last night and it's
pretty sore. Legs feel weak, balance is way off so can't stand for
long. Stomach is sore again.
Tues Oct 10 2006. Woke up early but went back to sleep and slept late
again. Feet didn't feel very cold last night. Neck has been sore, legs
still pretty weak.
Wed Oct 11 2006. Went to bed earlier than usual but still slept late.
Took remedy last night, next dose is Sunday. Was getting a headache
when I went to bed but it went away. Legs very weak this morning, both
ankles turning (right ankle was worse), could not put right foot down
flat.
Fri Oct 13 2006. Felt off more than usual when I got up today. Legs
pretty weak and off balance (maybe more of a problem with attitude and
will). Ordered some new vitamins Wed night and will start evaluating
them when they come in as well as doing a little research on vitamins
and Fredrichs Ataxia.
Sat Oct 14 2006. Legs and feet were painfully cold last night, right
foot and ankle hurting. Legs were very weak when I got up today.
Vitamins came today, took one this afternoon, now we wait to see if it
helps.
Sun Oct 15 2006. Can't tell any difference so far. Took another vitamin
today and next dose of the remedy. Neck is a little stiff, legs aren't
as painful but knees still won't bend. Ears seem to be ringing louder
today than they had been. Next dose of the remedy is Friday.
Mon Oct 16 2006. Seemed to have a strange kind of headache last night
and still today, maybe from the vitamin E? Legs felt even weaker than
usual today (didn't seem to be as cold last night). Knees still
difficult to bend, when I sit down feet slide because I can't bend the
knees.
Wed Oct 18 2006. Since I've been taking the vitamins my stools have
been a little more regular and easier but they also have more of an
odor. Right foot and ankle hurt at night in bed like something heavy is
on it. Knees still won't bend and legs still feel weak. Ears still ring
very loud.
Thurs Oct 19 2006. Stomach was sore when I got up from mid stomach all
the way down into testicles. Legs felt very weak, didn't feel like I
could stand. Have been feeling very light headed, dizzy and ears
ringing loud (seems to get worse at night in bed). Right foot and ankle
still bothered me last night but didn't seem to be quite as bad.
Fri Oct 20 2006. Stomach sore again last night and this morning. Foot
and ankle a little better last night. Legs felt weak this morning.
Sinuses have been pretty plugged up. After taking remedy today I could
taste it with a little heartburn. Took remedy again tonight, next dose
is on Wed.
Sat Oct 21 2006. Legs felt very weak today. Left hand cramping. Ankle
and foot felt OK last night. Very quick tempered today. Had some
sneezing last night and today.
Sun Oct 22 2006. Legs weak today. Right ankle not turning as bad but
when it does turn I can't bend knee to pick foot up to correct it. Nose
has been very plugged up.
Mon Oct 23 2006. Very difficult to stand when I got up, legs stiff like
wood, feet would slide because knees wouldn't bend. Right foot and
ankle didn't bother me much last night. Nose pretty plugged up today.
allergies?
Tues Oct 24 2006. Very difficult to stand again when I got up, knees
wouldn't bend when I sat back down, legs stiff like wood. Had a
headache (from my neck), ears ringing, sinuses plugged (had a red tint
when I spit it out).
Wed Oct 25 2006. Forgot to take my vitamin yesterday and right leg
bothered me last night. Legs very weak again this morning.
Fri Oct 27 2006. Forgot vitamin again yesterday. Yesterday was a bad
day, had no drive to do anything, would normally call it bored but
there were things to do so I guess it was depression. Today I
remembered the vitamin and have at least been able to make myself do
things. Legs are still stiff.
Sat Oct 28 2006. Right ankle turning very bad today (couldn't stand
without holding on to something). Legs felt very weak.
Sun Oct 29 2006. Didn't sleep much last night, kept waking up and
dreamed I was running all night, this morning I was sweating when I
woke up. Legs have been tired, weak and hurting all day like I really
did run all night.
Mon Oct 30 2006. Must not have dreamed last night. Legs were weak when
I first got up but could stand a little better to get dressed. Was a
nice day so I spent a big part of it outside riding my atv.
Tues Oct 31 2006. Couldn't go to sleep last night. Bladder was full all
night, had trouble waking up this morning. Had trouble standing, ankles
turning easily and knees wouldn't bend. Head was sore where I would lay
it down. Legs were cold all night.
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