| There are many reasons for this page. While
there is
much information on Muscular Dystrophy on the internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedreich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or story? Send
it here
I'm afraid there was no way to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get to a good
homeopath
as soon as possible"
Nov
& Dec 2006
Have been lax in keeping up a routine. One of my New Year
Resolutions is to be more dedicated to keeping track of things.
Nov
Wed Nov 1 2006. Legs weak and unsteady standing. Humidity must be high
the way my head feels. Having some pain in testicles, right arm and
chest. Very tired and sleepy but if I lay down eyes open and I can't go
to sleep.
Thurs Nov 2 2006. Forgot vitamin again yesterday. Had a headache when I
went to bed, woke up early and it was gone, went back to sleep and woke
up again with the headache again. Legs were cramping when I got up (not
taking my vitamin? not drinking enough water?). Had trouble getting
dressed, very stiff (trouble bending knees). Sinus drainage bad, thick,
sticky and stringy, wouldn't come up or go down.
Wed Nov 15 2006. Was out of town for a few days so the log is way
behind. Haven't noticed any improvement from the last protocol. I think
I'm going to try sticking with the vitamins and going back on Bioplasma
for awhile and see how it goes.
Thurs Nov 16 2006. Slept about 9 hours last night which is more than
I'm used to. Was very plugged, stiff and sore when I got up. Started
Bioplasma today, starting with 4 3 times a day. Low back is sore from
sitting, have a pain in my back around right shoulder blade that hurts
all the way to the front, difficult to breathe deep or turn to the
right.
Fri Nov 17 2006. Very off balance when I got up, difficult to move
around. Back still hurts around right shoulder blade but is worse in
front. Only managed the Bioplasma once yesterday.
Wed Nov 22 2006. Forgot my vitamin the last couple of days. Remembered
it today. Couldn't get to sleep last night. Kept tossing and turning,
pain and discomfort in left testicle. Slept late today because I was
awake all night. Stomach has been sore all day.
Tues Nov 28 2006. Kind of down today. Legs very stiff, ankles turning
and knees won't bend. Keep forgetting my vitamin and the Bioplasma for
some reason. Have been noticing a change in my finger nails for awhile,
they are growing on my right hand only one growing on left hand (the
nails growing is new).
Thurs Nov 30 2006. Thought I broke right foot last night but a couple
of
doses of Arnica seemed to help. Having some bone pain, left elbow, left
wrist, right knee and some in the right foot but that isn't as bad as I
was afraid it would be. I keep forgetting my vitamin and the Bioplasma
so I can't say if it would make a difference or not. Will make a much
more concentrated effort in Dec.
Dec
Tues Dec 5
2006. For the past few days I've had a headache everyday when I get up.
Seems to be from my neck, no matter how I lay I get a headache on the
side I lay on. Legs are really stiff and knees won't bend. Difficult to
stand without falling. So dizzy that I even fall over sometimes when
I'm sitting down.
Wed Dec 6 2006. I tried something a little different last night, I took
1 Bioplasma pill and put it in a bottle of water, succussed it and took
a sip before bed. I still had a little trouble going to sleep, knees
still cracked when I bent them, I still had a bit of a headache when I
got up (but not as bad), right arm and shoulder still hurts (no
difference). Overall I feel a little better. I'll continue with it and
see what happens.
Thurs Dec 7 2006. Took the Bioplasma I mixed up 4 times yesterday. Head
wasn't hurting bad when I got up, but still a little. Right shoulder
still pretty bad but I can deal with it. Legs still feel very weak.
Tues Dec 12 2006. Have been taking the Bioplasma 2 to 3 times a day.
Energy level seems to still be down. Trouble getting out of bed with
legs very stiff and weak.
Fri Dec 15 2006. Still wake up stiff and sore, I burned myself a couple
of days ago and started taking Rhus Tox because it has blisters and
stiffness associated with it. Seems to help with the stiff and sore
part at least a little.
Sat Dec 16 2006. Have been very drug out today. No energy.
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