| There are many reasons for this page. While
there is
much information on Muscular Dystrophy on the internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedreich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or story? Send
it here
I'm afraid there was no way to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get to a good
homeopath
as soon as possible"
Jan
2007
Have had to start rethinking my case. I will be trying
different things because I don't seem to be doing any better.
Fri Jan 5 2007. For 2007 I'm trying to be
more consistent with my log. I had started slipping last year. Have
been having trouble sleeping for some time now and it certainly isn't
because I'm not tired, in the past week there has been two nights I
haven't even went to bed. When I do go to sleep I don't get up till
afternoon. I started taking my Antioxidant Factor again today. Yes I do
read my own pages take a look at alternativemd.html.
Sun Jan 7 2007. Had trouble getting up today. Slight headache all day.
Have been down all day. Left elbow was sore all night and middle finger
on right hand has been very sore (in the knuckle). Balance has been
worse today and legs feel weak. Back hurt all day yesterday.
Mon Jan 8 2007. Still weak and difficult to get dressed today. Can't
pick feet up. Had watery stool a couple of times yesterday and once
today before it started to ease up. Was searching for information today
and ran across something that caught my eye so I'll try it again.
Details at http://www.homeoint.org/seror/patho1900/lathyrus.htm
Tues Jan 9 2007. If there has been any change I can't see it but
mentally may be better. Still very stiff and weak feeling. When I set
right foot down the leg bounces (maybe because the ball of the foot
hits first?).
Wed Jan 10 2007. Still very weak today. Stools still loose. Have been
tired and sleepy all day even though I slept late. This was the third
day of the remedy I started on Monday.
Fri Jan 12 2007. Didn't take the remedy Wed night or yesterday.
Yesterday I seemed able to stand a little better but last night I
couldn't sleep because my legs ached. Taking the remedy tonight to see
what happens.
Sat Jan 13 2007. Had the problem standing to get dressed today. Legs
felt very weak. Pretty stiff. Took the remedy twice today.
Wed Jan 17 2007. Have been taking the remedy before bed at night. Moved
up from 12c to 30c. Stomach has been sore all day.
Thurs Jan 18 2007. Took the 30c last night. Woke up today with leg
cramps today so I'll wait and watch for now to see what happens next.
Stomach is still sore and haven't had a good stool so it may just be
constipation.
Fri Jan 19 2007. Wasn't doing very well today. Stomach still sore,
depressed, weak legs. Will try remedy again tonight.
Sat Jan 20 2007. Not good when I got up, weak legs and knees wouldn't
bend. Stomach still sore but seems a little better. Will do remedy
again tonight and probably tomorrow then wait and watch for awhile to
see if anything changes.
Mon Jan 22 2007. Took remedy for third day in a row last night. Woke up
with leg cramps again this morning. Stomach is still sore. I'll wait
and watch for awhile now to see if there is any difference. Legs are
very stiff and I have the tendency to stretch them. Feet and legs
bounce when I set my feet down when I sit (I think because the ball of
the foot hits first).
Thurs Jan 25 2007. Hadn't taken the remedy since Sun night. Legs stiff
and hard to move, almost fell tonight (balance was way off). Took
remedy tonight to see what happens.
Fri Jan 26 2007. Had a problem standing to get dressed. No improvement
so far since taking the remedy.
Sat Jan 27 2007. Took remedy again last night. Seemed about the same
today or a little worse: Couldn't stand without holding something,
ankles turned bad, couldn't bend knees and couldn't pick feet up (felt
like feet were stuck to the floor).
Sun Jan 28 2007. Had trouble getting up today, fell back asleep and had
a headache when I got up. Legs were weak and hurt. The remedy doesn't
seem to be helping so I went back to something that helped a few years
ago, Calc Phos 6X 3 times a day. We will see if that does anything.
Mon Jan 29 2007. It isn't much but legs feel just a little stronger
today. Slept late again and felt a headache all day and my eyes are
sore. Left elbow sore and right arm hurts. Right ankle still turning
easy. Took Calc Phos 3 times today.
Wed Jan 31 2007. Not sure if there is any improvement but I feel like I
can pick feet up just a tiny bit better and even though right ankle
still turns it doesn't seem to turn as bad.
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