| There are many reasons for this page. While
there is
much information on Muscular Dystrophy on the internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedreich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or story? Send
it here
I'm afraid there was no way to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get to a good
homeopath
as soon as possible"
Feb/Mar
2007
Had a cold in Feb and tried a few different things. Mar
heard from a Homeopath I had been talking to, tried a paper remedy
while waiting on the remedy.
Feb 2007
Sun Feb 4 2007. Have felt cold symptoms today, runny nose, sneezing.
First remedy I tried was Nux V because it matched the symptoms of the
people around me that were sick, next was Allium C. Neither one seemed
to help. Trying Nat M now because it has helped before. Didn't sleep
well last night, kept waking up. Ears have been ringing even louder
than usual. Feet have been cold at night but it's more a sensation
rather than actually being cold.
Thurs Feb 15 2007. Cold has been getting a little better finally. Nose
gets plugged up and discharge has turned green, have been using Kali
Mur now but only had it in 6X. Everyone else around me that had it has
been much worse. Haven't slept 2 or 3 nights in the last week. Left
elbow had been sore and noticed today it was bruised. Will take some
Arnica for that. Haven't been treating anything but the cold till it's
gone.
Sat Feb 17 2007. Legs very weak when I got up today, bladder full and
had trouble holding it. Head is still plugged up (Switched to Silica 6X
which seems to be helping it some). Have had a cold sore left upper
lip, took a dose of nat mur 30c the other day but wasn't quick enough
with it so it only stopped it from getting really bad, don't have any
Calendula creme right now (that usually helps it heal faster). Without
taking the Nat Mur they usually get much worse than this one has been.
Mon Feb 19 2007. Have been getting headaches for the past couple of
days (back of neck and head and in my eyes). Legs weak. Cold seems to
be getting better. Decided to try Plumbum Met again, I had LM 03 and
took it by olfaction.
Sun Feb 25 2007. Right shoulder hurts today, it's the side I sleep on
also I've been on the computer a lot lately and it may be from working
the mouse. I'm always up late and it takes awhile to go to sleep when I
do go to bed. Was standing to take pants down when I went to bed and
the left leg gave out. Feet felt cold to the point they hurt last night
but were only a little cool to the touch.
Tues Feb 27 2007. Neck is a little sore on left side. Sinuses plugged
up and some drainage. Ears ringing. Legs stiff and weak. Trying to
force myself to get things accomplished.
Wed Feb 28 2007. Took a bath last night and head and nose got very
congested in bed, woke up with a headache and some drainage. Legs are
very weak and shaky. The headache is more pressure. Ears ringing louder
than they have been the last couple of days. Took a dose of Physostigma
1M by olfaction today.
Mar 2007
Thurs Mar 1 2007. Got up a little earlier today. Was sore all over
especially right shoulder (the side I slept on). Right leg bouncing
when I put foot down on floor.
Sat Mar 3 2007. Slept late. Was up 2 or 3 times last night with a full
bladder, couldn't hold it. Stomach has been sore for 2 or 3 days now
and have had gas, feels like pressure and urgency to go but most times
when I do it's a small amount and mostly gas. When I get dressed legs
go stiff and it's difficult because I can't bend them. At night I
normally lay on the right side with knees bent, covers feel heavy like
they are holding legs down putting pressure on them, I pull feet up and
knees pop and crack. Feet have the sensation of being ice cold but they
are just slightly cool to the touch.
Mon Mar 19 2007. Have had some bad days since my last post, very weak
and unstable trying to stand. Stomach has been rumbling and stools have
been slimy. Was bad yesterday. Had a headache Sat, it wasn't as bad as
the ones I used to get but it lasted for about 24 hours. Today corner
of mouth is cracked and sore (left side). Last night I heard from a
homeopath I've been talking to, she went through some of my current
case and suggested a remedy for me. I don't have it yet so I'll have to
order it. In the meantime I made a paper remedy to see what happens.
Tues Mar 20 2007. Took a dose of the paper remedy last night. Haven't
noticed any change so I'll take number 2 of a series of 3 (called a
single split dose).
Wed Mar 21 2007. Took second of the 3 doses last night. No change
today. I had been out in a cold rain yesterday and was afraid I'd catch
cold. Took a hot bath and a dose of Gels and seem to be okay. Both feet
and ankles were swollen. Today only the left was swollen. A little
stiff and sore is all. Will take a third dose tonight.
Thurs Mar 22 2007. Took third dose last night. Still pretty sore today
and started thinking that maybe the soreness was due to the remedy to
some extent. Will wait about a week and see how it goes. Feet and
ankles didn't seem to be as swollen today but still very stiff and
difficult to get up. I do seem to be a little more inclined to do
things but I do still have to make myself do them. Hopefully the
soreness will ease up by not taking the remedy for a few days if it is
in fact an aggravation.
Sat Mar 24 2007. Haven't noticed any change yet. Worked out in the yard
and got pretty sore and tired. Feet and ankles seem ok as far as
swelling goes. Got a bad case of heartburn late in the day. Couldn't
seem to empty bladder all day but would leak.
Sun Mar 25 2007. Right leg hurt all night keeping me awake. Bladder
woke me up during the night, was full and had to rush, that hadn't
happened in awhile. Worked in the yard again today so I'll be sore
again tomorrow. Haven't been able to have a stool in a couple of days,
just gas and pressure.
Tues Mar 27 2007. Tired all day. Legs hurt in bad last night. Difficult
to stand. No energy all day.
Wed Mar 28 2007. Had trouble sleeping. Got up once to urinate. Legs
hurt and were restless all night. Right leg cramped when I got up this
morning. Have been down all day, not much to do and don't want anything
to do.
Sat Mar 31 2007. Right leg hurt keeping me from going to sleep last
night. Right leg cramped this morning again. I have been doubling up on
my vitamins this week but I was getting the cramps before so I don't
think that is doing it. Another down day, legs felt weak.
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