| There are many reasons for
this page. While
there is
much information on Muscular Dystrophy on the internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedreich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or
story? Send
it here
I'm afraid there was no way
to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point
here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I
asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
homeopath
as soon as possible"
Apr
2007
Tried Alumina this month on the suggestion of a
homeopath
I talked to on line. Didn't notice any improvement.
Mon Apr 2 2007. Slept late
again today.
Legs very weak when I got up. Was sleepy all day. Stomach making weird
sounds tonight and had a very loose stool (like colored water). Ordered
Alumina LM1 tonight, seems the paper remedy didn't do much that I could
tell. I should have the remedy early next week and I'll see how that
goes.
Fri Apr 6 2007. Got up a little bit earlier today but was very lazy all
day. Legs jerked on and off all day and felt weak.
Sat Apr 7 2007. Had trouble falling asleep when I went to bed. Was
awake this morning but didn't want to get up. Legs very weak when I
did. Remedy was in the mail today so I made the solution and will take
the first test dose tonight. 5 succussions.
Sun Apr 8 2007. Slept late. Legs felt a little tight. Lay down on the
couch to nap and slept a long time but whichever side I was on that leg
would hurt and jerk. Haven't noticed any major difference so I'll take
a second test dose tonight. 6 succussions.
Mon Apr 9 2007. Slept very late today and woke up with a headache, back
of neck left side stiff, sore eyes (worse on left). Feet were cold last
night. No big difference so will take the third test dose tonight.
Third test dose 7 succussions.
Tues Apr 10 2007. Just about everything has been left sided for a few
days. Yesterday the headache and everything was on the left. Sore spot
in my back on left. Had trouble going to sleep last night because of
the headache, when I lay down on left side got very dizzy. Headache
went away after going to sleep. Haven't noticed much difference other
than the feeling that my ankles aren't turning quite as bad. Still
can't keep my balance standing.
Wed Apr 11 2007. Everything seems to be about the same today, ankles
turn but not as bad as before, right foot bounces but maybe a little
less, balance still bad but legs feel just a bit stronger. I'm sure it
will be a slow process but feel hopeful about it. Ate a couple of
Fritos and lips feel blistered from the salt, took a dose of Nat Mur
30c, will see if it goes away.
Thurs Apr 12 2007. Ankles seemed to turn a little easier today. Lips
were much better today (blistering went away). Legs were bouncing a
little worse again. Have been noticing this for awhile but I keep
forgetting to include it, nails on right hand growing where they never
did before, left hand only index finger, seems to have started growing
after moving to a rural area.
Fri Apr 13 2007. Ankles turning a little worse today (feels like it's
connected to knees locking because they are more difficult to bend).
Feels like the remedy is starting to wear off but I will wait a little
longer to take it to make sure.
Mon Apr 16 2007. Legs hurt all night in bed. Not real stable and legs
feel weak, can't seem to keep right foot straight (turns in when I
stand and ankle turns). Trouble bending knees to sit so I end up
sitting down hard. Seems like it's time for the remedy again 8
succussions.
Tues Apr 17 2007. Slept late today, got dizzy when I sat up. Right
ankle still turning and difficult to pick feet up. Legs are tired.
Stools smell sour and stomach has been sore. Feel pretty much the same
as yesterday.
Wed Apr 18 2007. Had a headache when I got up today (base of skull,
left side with pain into left eye and sinus pressure). Legs so weak I
had trouble getting to my feet and almost impossible to bend knees to
sit. Headache lasted all day. Started taking Bioplasma again to see if
it would help with the leg strength, plus yesterday left hand cramped
and the Mag Phos usually helps with that.
Sat Apr 21 2007. Feet hurt all night. Sensation of feet being cold to
the point of pain yet they were fairly warm to the touch (only seems to
happen after getting under the covers). Legs very tired when I got up.
Mon Apr 23 2007. Very sore all over today. Sinuses plugged up. Legs
very weak. Will take Alumina again tonight, 9 succussions.
Tues Apr 24 2007. Had a slight headache all day yesterday and last
night (eyes sore, probably sinus pressure?), still have it a little
today. Neck has felt out, sore and cracks when I turn my head with
soreness on left side down into shoulder. Took remedy last night, so
far no difference that I can tell.
Fri Apr 27 2007. Slept late, left leg cramped when I woke up and legs
got stiff when I tried to get up. Back hurt today from sitting. low
right side. Slight headache, felt dizzy and right eye kept seeming like
it had a film over it. Neck stiff on left side. Started having trouble
holding bladder tonight. Some of that may be old symptoms coming back
so I'll wait and see if they improve.
Mon Apr 30 2007. Woke up late again, had a headache,dizzy and stiff
neck. Very difficult to stand or even sit up. Left hand cramping
tonight. Wasn't hungry all day. Feet seemed okay the past few nights,
didn't sweat as much as usual. Will take Alumina again tonight 10
succussions..
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