About Muscular Dystrophy Logo, Downriver Michigan
 
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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


May 2007
Switched from Alumina to Physostigma this month.

Tues May 1 2007. Haven't been doing well on the Alumina, more pain, dark around eyes, seem very congested, weak, balance may even be worse, right leg cramps in morning and hands keep cramping. Waited to see if it was an aggravation but I don't think so. Did some muscle testing today with remedies I have used in the past so I will try Physostigma again but a higer potency than I used before. Took a 1M 10 succussions tonight while I wait on the 10M to get here.

Sat May 5 2007. Went to bed early last night and slept late today. Yesterday ears were really plugged up and heard low to normal tones in left ear and higher tones and background sounds in right ear. When I woke up today was sore all over and back hurt. Back pain never went away, started low back right side and moved to low back center as the day progressed. Since I slept so late I haven't went to bed. Took the 1M 11 succussions.

Fri May 11 2007. Back has eased up but feels like someone has beat me when I wake up, arms and shoulders sore, legs and feet stiff, head hurts. That eases up during the day but right shoulder never stops hurting completely. Taking the 1M tonight 12 succussions.

Sun May 20 2007. Very weak when I got up. Left arm has been sore, have to hold it close to body in bed. Right elbow tender, I feel it all the way down arm into middle finger. Have been very stiff and tired when I get up in the morning. Legs go into a spasm and I can't bend knees. Got a headache in the back of my neck today, seemed to be from being in the sun. Taking the 1M tonight 13 succussions.

Tues May 22 2007. Don't notice any difference with the 1M. Have been very sleepy and tend to get a headache late in the day but it has been hot which could explain it. Was finally able to order the 10M last night.

Sat May 26 2007. Got the 10M yesterday and made it up last night. Will take it before bed. Feet were swelled today, legs stiff and couldn't bend knees. Will see how I am tomorrow after the remedy.

Sun May 27 2007. Took first dose of the 10M last night. Didn't notice much difference today so will take a second test dose tonight.

Mon May 28 2007. Took second test dose last night (6 succussions). Slept very late today, legs were still weak and stiff. I will try a third test dose tonight.

Tues May 29 2007. Had a dream last night that a cop had pulled me over and was checking my registration etc. I remembered it because I haven't really driven a car in several years so it seemed like a positive note. Yesterday and today haven't been able to hold my bladder.

Wed May 30 2007. Took third test dose last night (7 succussions). Woke up with a full bladder and couldn't hold it, continued all day. Last night right foot hurt and kept me awake for a long time. Bladder problem may be an old symptom returning, have had an occasional day with the problem but not to this extent in awhile. I did feel like I could stand a little better getting dressed today. Will see how it goes tomorrow.

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