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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


Jan 2003
The remedies here are to clear up some things from vaccinations I got as a kid, plus the detox I started towards the end of the month is all geared towards getting rid of toxins etc. Based on some of my research I'm convinced that with any type of chronic condition a person has tendencies which are inherited plus many of the toxins (drugs, vaccines, chemicals in food, water and the air etc.) could play a part so the idea here is to counteract as much of that as possible. My homeopath has advised me that it may bring out some things that will be tough to live with but I'm willing to do that in order to improve..

Thurs Jan 1 2004. Went to bed at 2:30am, got up at 10am. Had a couple of drinks for new years, had a headache from neck tension when I went to bed. Woke up a couple of times during the night. Bladder holding ok (never feels empty though). Have had shoulder pain for awhile (top front of shoulder mainly, feels like it goes right into the bone). Have been getting gas pains (empty feeling in stomach and it feels sore). Stools have been dark and smell sour. Testicle pain is starting again (left side today) feels like something pressing on that side, plus underwear rubbing on left.

Fri Jan 2 2004. Went to bed at 2:30am, got up at 11am. Ears ringing very loud most of the day. Legs weak. Catching feet on each other while walking. Depressed and seem to say things that upset people (not sure if that's my problem or theirs).

Sat Jan 3 2004. Took remedy 200c at 3am. Went to bed at 4am, got up at 11am. Stomach was sore when I went to bed and was still cramping and making noises when I got up. Was mainly gas. Shoulders hurt last night to the point where the pain kept me awake when laying on either of them (mainly right, pain into the bone...pain worse with pressure). Burning back pain today, low on left...worse with movement, better laying on right side.

Sun Jan 4 2004. Went to bed about 6:30am. got up at 12pm. Ears ringing very loud. Stomach felt a little upset and empty when I went to bed. Legs feeling a little better. Feels like I'm close to getting a headache tonight. Having trouble picking up toes when I walk and legs are getting sore. Feet and lower legs feel cold (kinda numb).

Mon Jan 5 2004. Went to bed at 1:30am, got up at 11am. Had trouble going to sleep...legs painful on whichever side I laid on, feet and lower legs felt cold and toes painful (felt like they were pulling up). Burning pain in back (worse while getting up or sitting down). Knees were locking up while standing or trying to step today (knees would not bend). Felt like I was about to get a headache (left side, neck to occiput to left temple and eye). Have the urge to work on things around the house but not the drive to actually do it.

Tues Jan 6 2004. Went to bed at 2am (was still awake at 6am), got up at 11am. Have to raise up to turn over and the back pain is worse then. Left hand cramped last night (had not had that for awhile). Tired today, legs stiff. Took a nap today and slept better than I have been at night.

Wed Jan 7 2004. Went to bed at 2am, got up at 10am. Was up at 5:30am to urinate. Pain on left, back has eased up some when I sit up but low middle (spine) hurts when I move (feels like it could break). Have the tendency to stretch legs out. Legs get very stiff and tend to stand on outside edge of feet (mainly right) within a couple of minutes.

Thurs Jan 8 2004. Went to bed at 3am, got up at 9:30am. Was up every 2 to 3 hours to urinate. Had to get up at 9:30 because of pain all over (worst was low back, right shoulder and legs). Have had to urinate frequently all day and legs are hurting, left knee painful when I straighten leg.

Fri Jan 9 2004. Took remedy 1M at 1am. Went to bed at 3am (ears ringing loud, right ear itching inside, left foot...top just behind toes itching...scratching did not help, got up at 11am. Did not have to get up through the night. Legs stiff, weak and painful when I got up. Ears not ringing as loud today, left foot not itching as bad but still a little, right ear stopped itching. Feet were very cold all night last night and still all day today. Can't seem to be able to pick feet off the floor.

Sat Jan 10 2004. Went to bed at 3:30am, got up at 11:30am. Sore all over when I woke up, neck stiff, back and legs hurting. Took 4 tries to get to my feet. Legs hurt some and feel numb.

Sun Jan 11 2004. Went to bed at 3am, got up at 12pm. Headache, backache and legs hurt when I got up. Sat down and left leg started bouncing. Stomach rumbling and feel pressure. Headache got worse as the day went on...started base of skull, left side and spread to left temple and left eye then started spreading across forehead, dark rings around eyes darker. Difficult to move due to stiffness and pain in legs and back plus headache is worse with any movement.

Mon Jan 12 2004. Went to bed about 4:30am. got up at 11:15am. Headache finally went away and dark around eyes while still dark is a little lighter than yesterday. Stomach feels queasy but no stool just a little gas. More urge to urinate, after a couple of drops always escapes no matter what I do. Right shoulder hurts, worse from movement. Took remedy 10M at 12:10am.

Tues Jan 13 2003. Went to bed at 5:30am (had trouble getting to sleep), got up at 12:30pm. Had trouble getting to my feet (legs too weak to push me up). Legs sore, headache (from laying on left side...better after moving around, was from neck). Stomach queasy, groaning noise and empty feeling, pressure in anus but no stool and even no gas release. Still have dark circles around eyes and ears ringing loud. Very sleepy and starting to get headache in left eye.

Wed Jan 14 2004. Went to bed at 1:30am, got up at 8:30am. Stomach very sore (forced me to get up), no stool just a little gas. Legs feel weak and dragging toes plus hard to get feet off floor. Toes pulling up while sitting. Have no ambition to do anything (maybe because I just feel extremely tired). Moving very slow (knees snap on each step...hyperextended). Left knee hurts today when I step (just below kneecap). Have had to urinate often today (can't hold bladder as well).

Thurs Jan 15 2004. Went to bed at 5am, got up at 11:30am. Back of neck (left side) hurting plus headache on left side. Right shoulder painful. Still have sore stomach (no stool, just gas). Eyes tired and ears ringing last night. No ambition still...just too tired to do anything. 

Fri Jan 16 2004. Went to bed at 5am, got up at 11:30am. So tired I didn't do anything all day. Had headache all day.

Sat Jan 17 2004. Went to bed ar 3am, got up at 6am, went back to sleep till 11am. Very tired still and sore all over. I think the legs are so tired they hurt. Pain and leg fatigue has not went away in some time.

Sun Jan 18 2004. Went to bed at 3:30am, got up at 11:30am. Worried today. Right shoulder pain is pretty bad. Legs still hurt but I haven't moved around much. Ankle still turning and tend to stand on outside edge of right foot. Went to bed with a headache last night and still had it when I woke up this morning.

Mon Jan 19 2004. Went to bed at 2am, got up at 8am. Legs not hurting as bad. Neck was stiff and sore when I got up but eased some after moving about. Finally had a stool last night. Was standing today and both ankles turned and left knee locked and right foot started to slide, could not bend the knee to shift my weight and had to support myself with arms to get my feet under me. Had some raw onion with dinner tonight and put me in the bathroom for a stool, certain foods seem to do that to me.

Tues Jan 20 2004. Went to bed at 5:30am, got up at 11:30am. Worry keeping me awake last night. Today legs are tired and stiff (no pain), trouble picking feet up. Shoulder (right) sore with use, ok when not moving it. Ears ringing loud and vision blurred (see a shadow around the bottom of everything).

Wed Jan 21 2004. Went to bed at 3am, got up at 12:30pm. Right shoulder hurts from sleeping on it (deep right into the bone, sharp pain). Legs feel weak and stiff but I did get up on the first try. Bladder holding good. Low back sore when I stand (eases up after I'm up). Balance is off a little more than usual.

Thurs Jan 22 2004. Went to bed at 5am, got up at 10am. Weird thing when I woke up I heard someone knock on the door but no one was there, a few minutes later the knock was real (was the phone guy), we weren't expecting anyone then after he left my wife was in the kitchen and I told her to answer the door about a minute before he knocked again. Legs feel weaker, get worse from standing for any length of time. It isn't major but I seem to have a little more ambition today.

Fri Jan 23 2004. Took next remedy 30c at 12:30am. Went to bed at 3am, got up at 11am. Had a headache from laying too long, eased a little after moving around. Stepped wrong last night and left leg gave out on me. Legs felt very weak this morning and were very stiff. Stomach gas pains, only passed a little water. Got the rest of this remedy today, will take the 200c tonight and the 1M tomorrow. The detox hasn't come yet. Had some drainage in back of throat this morning and sneezed some tonight and my eyes watered (like an allergic reaction). Took 200c at midnight.

Sat Jan 24 2004. Went to bed at 5:30am, got up at 11:15am. Sat up for a few minutes before getting to my feet, managed it on the first try for a change. Legs gave out and I fell in bathroom (probably just wasn't watching close enough), got up easier than I anticipated. Right shoulder is a little sore but doesn't hurt as bad. Right ankle still has tendency to turn. Bladder is holding good. Getting a raw feeling in my chest like I'm maybe catching a cold. Legs seem a little stronger about pushing myself up, dragging toes is no better or a little worse. Took 1M at 11 pm.

Sun Jan 25 2004. Went to bed at 3am, got up at 12:15pm. Never woke up or turned over after falling asleep. Laid on right side all night and all pain is on right side today, kink in neck, slight headache from it, right shoulder. Still feel a little raw in upper chest, nose plugged way in back, dried blood from right side, bad taste in mouth from coughing up phlegm (probably taste of dried blood). Stiff but still able to stand on first try. Working on picking toes up when I walk (is a conscious effort). Lots of sneezing today.

Mon Jan 26 2004. Went to bed at 2am, got up at 9am. Couldn't sleep on left side even with pain in neck and shoulder on right side. Back and legs sore today. Neck still stiff and legs (knees) pop when I start to move. Still having some problem with balance and picking toes up.

Tues Jan 27 2004. Went to bed at 3:30am, got up at 11am. Slept on right side again, right shoulder hurts, back hurts, headache and stiff neck on right side. Eyes tired, nose plugged up. Dragging feet. Did get to my feet on first try but was a big effort to do it. Seem to be catching a cold, lots of sneezing with clear bland discharge, headache forehead and eyes, stiff neck, eyes tired, physically tired and having trouble moving around, symptoms all right sided.

Wed Jan 28 2004. Went to bed at 6am, got up at 8:30am. Face is sore today around eyes. Started the detox today and have been in the bathroom about 5 times so far. Nose runs on right side and it burns a little. Hard to walk (feet feel heavy). Having some soreness in back and hips. Nasal drainage is starting to happen some on the left now and gums around teeth are sore. Very tired from no sleep.

Thurs Jan 29 2004. Went to bed at 12am, got up at 11:30am. Very sore when I got up, nose running, sneezing, discharge running from clear to dirty yellow. Could breathe from right nostril, left plugged. Back sore and legs sore. Feels like something restricting movement of legs when walking (feel it in upper legs). 

Fri Jan 30 2004. Went to bed at 7am, got up at 11am. Tired, shoulder (right painful, legs sore, back sore. Stomach making strange noises last night. Dragging toes still. Nose not running as bad (plugged up mostly on left side but can get some air in even on that side). Lips and mouth very dry, lips feel like they are cracking. Ears ringing pretty loud. Legs weak.

Sat Jan 31 2004. Went to bed at 3am, got up at 11am. Very sore, stiff and legs weak, ankles turning. Worse from use (exercise, walking or standing) Lips and mouth still dry. Ears ringing loud last night.

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