| There are many reasons for
this page. While
there is
much information on Muscular Dystrophy on the internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedreich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or
story? Send
it here
I'm afraid there was no way
to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point
here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I
asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
homeopath
as soon as possible"
June 2007
Still working with the Physostigma this month.
Wed June 6 2007. Bladder has
been better so far this month (a couple of urgent runs). Have started
having more trouble standing again (it had been a little better). Right
foot has been turning more the past few days and keeping me awake at
night. Neck was a little stiff and nose plugged up with a slight
headache today. It has been a week since I took the remedy and will
take it again tonight (8 succussions).
Thurs June 7 2007. Had trouble getting to sleep last night, feet felt
extremely cold. I finally did go to sleep then couldn't wake up.
Couldn't stand long enough to get dressed, seemed a little worse so
maybe it was a slight aggravation, will wait to see if it improves.
Sat June 9 2007. Couldn't sleep again. Stomach was very tight but
couldn't have a stool. Didn't want to get out of bed today. Balance bad
and legs weak, lost balance once and right leg gave out once today.
Tues June 12 2007. Have had a loose stool for a couple of days. Have
taken a couple of falls due to ankle turning or leg giving out.
Wed June 13 2007. Didn't sleep much last night. A common thing seems to
be that right foot hurts no matter which side I lay on and feet feel
very cold after I get under the covers.
Thurs June 14 2007. Slept a little more last night. Bladder was a
little irritable today. Ankles turning bad and can't bend my knees when
they do, as a consequence feet feel like they are stuck to the floor.
Right leg got tight today and started bouncing. Very difficult to raise
feet even while sitting. Taking remedy tonight (9 succussions).
Tues June 19 2007. Wasn't much but I could stand a little easier today.
Wed June 20 2007. Tired all day and legs were very weak. Had trouble
standing again.
Fri June 22 2007. Slept late, very stiff when I got up, ankles turning
bad (mainly right). Covers felt heavy on my legs, felt like I was
pinned down. Left arm hurt all night. Taking remedy tonight (10
succussions).
Wed June 27 2007. Left leg kept giving out on me yesterday. Knees
locking and wouldn't bend making it difficult to walk. Balance did seem
just a little better today.
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