| There are many reasons for
this page. While
there is
much information on Muscular Dystrophy on the Internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedrich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or
story? Send
it here
I'm afraid there was no way
to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point
here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I
asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
homeopath
as soon as possible"
July 2007
The Physostigma seems to be helping some this month.
Tues July 3 2007. Ate at Sonic
yesterday and a blister popped up on my lip by the time I got home.
Tried my old stand by Nat Mur a couple of times. Today the blister is
not as sore but it is larger so I'll have to check into it. I seem to
be very sensitive to certain foods etc. Took remedy tonight (5
succussions).
Mon July 9 2007. Haven't seen much difference. Still have the blister
on my lip, it has dried up some but is still there. Will take remedy
again tonight (6 succussions).
Fri July 13 2007. Last 2 days knees have locked bad and I can't bend
them. Bladder has been bad, can't hold bladder and leak. Took a dose of
Equis last night but it hasn't corrected it, it has gotten a little
better. Both of those could be the return of old symptoms so I'll wait
on the remedy.
Sat July 14 2007. Woke up with a headache in the base of my skull
today. Bladder was a little better but still a problem once tonight.
Knees still won't bend. Taking the remedy tonight (7 succussions).
Sun July 15 2007. Woke up with the headache again but it went away.
Bladder has been ok today. Left hand cramped tonight. Ankles still
turning and knees stiff, but didn't feel quite as bad. Mood was down
today. Taking remedy again tonight ( 8 succussions).
Mon July 16 2007. Slept late but at least didn't have the headache.
Legs still stiff and knees won't bend. Ankles still turn when I stand.
Taking remedy again tonight ( 9 succussions).
Tues July 17 2007. Didn't feel much different today. I was able to
stand long enough to pull my pants up without falling so I'll hold off
on taking the remedy again. Bladder has been holding pretty good.
Wed July 18 2007. Could still stand to pull pants up again today,
wasn't real steady but still better than before. Will still hold off on
the remedy.
Fri July 20 2007. Managed to stand to pull pants up today but just
barely and ankles turned bad. Will take remedy tonight (10 succussions).
Sat July 21 2007. Was able to stand to pull pants up, a little unsteady
but ankles didn't turn as bad. Last night right foot hurt (felt like
covers were heavy no matter which side I laid on).
Sun July 22 2007. Could stand a little more steady this morning even
though I was very stiff, sore and weak. Right foot didn't hurt as much
last night but it did itch. Mood was pretty down today. Will continue
to wait on remedy. Hoping to see the span between taking the remedy
increase and the positive changes to be better each time.
Wed July 25 2007. Could still stand to pull pants up today but seemed
to be a little worse so I'll take the remedy tonight (11 succussions).
Seems that my feet swell when I don't wear shoes.
Thurs July 26 2007. Could stand longer today. Ankles were turning
pretty bad though. Left foot still seemed swelled, a little less than
yesterday.
Fri July 27 2007. Had trouble standing today. Legs very weak and ankles
turning. Eyes felt strained all day with pressure and pain around eyes
and stiffness in back of neck left side.
Sat July 28 2007. Could stand a little better than yesterday. Right
ankle still turning when I stand. Humidity is high and head feels
plugged up. Last couple of nights feet have been very cold and covers
felt very heavy on feet and legs.
Sun July 29 2007. Could stand but was a little unsteady today. Feet
were cold again last night when I went to bed.
Tues July 31 2007. Standing was a little more difficult today but was
able to do it. Didn't want to get out of bed and have been tired all
day. Last few days have been pretty plugged up and getting sinus
headaches at times, never as bad as the ones I used to get. For the
last 3 days I've had loose stools, mainly just water and a lot of
pressure and a sore stomach. It may be starting to improve.
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