| There are many reasons for
this page. While
there is
much information on Muscular Dystrophy on the Internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedrich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or
story? Send
it here
I'm afraid there was no way
to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point
here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I
asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
homeopath
as soon as possible"
Sept 2007
The Physostigma still seems to be helping some this
month.
Sun
Sept 2 2007. Have still been plugged up. Itching all over. Mood has
been down. Having trouble standing and bending knees. Taking
remedy tonight (8 succussions).
Mon Sept 3 2007. Got up a little
earlier today. Knees seemed to be locking up a little worse (could be a
slight aggravation from the remedy, will reduce the succussions next
time). Off balance when I stood up and mood was down and kept falling
asleep all day.
Tues Sept 4 2007. Seemed to stand a little
better today. Gums hurt when I try to chew. Start sneezing at times but
nose wasn't plugged up as bad. Peanut butter cookies gave me heartburn.
Wed
Sept 5 2007. Ankles started turning bad yesterday but I think it was
partly the shoes I was wearing. Talked to a Kinesiologist today and
verified the remedy I'm taking is still a good choice. Have been taking
Bioplasma the days I don't take the remedy. Not as much sinus drainage
today.
Thurs Sept 6 2007. Woke up with stiff neck and a headache
today. A couple of rough times holding bladder. Legs felt like wood
(very stiff). Trouble standing again. Taking remedy tonight ( 7
succussions).
Fri Sept 7 2007. Legs still stiff. Left foot
started jerking last night and it's still doing it. Bladder has been a
little better today. Still getting a pain in my neck. Ankles still
turning making it difficult to stand.
Sat Sept 8 2007. Neck is
still stiff. Bladder ok. Right ankle still turning. Have been pretty
bored but at the same time don't have much desire to do anything. Foot
still jerking. Feet have been getting very cold in bed.
Sun Sept
9 2007. Neck is still stiff. Right ankle still turns. Bladder was ok
today. Feet haven't jerked as bad today and feet were not as cold last
night. Got outside for awhile today which felt good, has been too hot
to be out much.
Mon Sept 10 2007. Neck still stiff with a
headache. Ankles still turning. Knees won't bend. Bladder ok. Feet got
cold today and swelled. Will take remedy tonight ( 8 succussions ).
Wed
Sept 12 2007. Feet were very cold last night. Knees still won't bend
and legs feel very stiff. Bladder is ok and stools are firmer. Anytime
I don't wear shoes my feet swell up.
Thurs Sept 13 2007. Feet
cold again last night, seemed to get colder rather than warmer under
the covers. Can't stand on right foot because the ankle turns, can
stand on the left but not the right. Slept late and was sleepy all day.
Fri
Sept 14 2007. Feet were cold last night. Right ankle not turning as bad
but left is worse. Knees still stiff and difficult to pick feet up.
Sat
Sept 15 2007. Feet were cold again last night. Both ankles turning
today. Legs very stiff. Tired all day then perk up at night and can't
sleep.
Sun Sept 16 2007. Feet were cold last night. A lot of
sinus drainage when I got out of bed with a bad taste and odor from it.
Couldn't stand to get dressed, had to sit down hard. If things don't
improve I'll take the remedy tonight before bed. Taking remedy tonight
( 9 succussions).
Mon Sept 17 2007. Left foot was warm last
night, right foot was cold. Stay up very late then can't sleep when I
do go to bed. Was able to stand a little better to get dressed but
haven't noticed any difference in any other respect.
Tues Sept
18 2007. Feet both felt warm to the touch last night but right leg was
cold. Could stand better to get dressed today. Still had trouble
getting to sleep last night. Ankles were both turning today but maybe
not as bad, not sure yet. Will be watching. Legs still pretty stiff.
Wed
Sept 19 2007. Feet were warm to the touch last night but had the
sensation of being cold. Stood ok to get dressed today. Ankles turning
but not too bad. Legs still stiff. Still had trouble going to sleep
last night even though it was very late. Sinuses were pretty bad today.
Thurs
Sept 20 2007. Couldn't stand quite as well today. Feet were warm last
night but legs were a little cold. Feet tended to slide when I would
stand. Fell asleep faster but had trouble getting up. Was wet with
sweat when I woke up. Sinuses still bad today.
Fri Sept 21 2007.
Had some trouble standing today. Feet and legs felt cold last night.
Right leg has started jerking tonight. Was up late last night and even
though I slept late it still didn't come out to 8 hours, I never seem
to sleep 8 hours but the longer I stay in bed makes the stiffness worse
when I get up. Will take remedy tonight (10 succussions).
Sat
Sept 22 2007. Got up a little earlier today. Didn't sleep well because
of my arms itching bad. Stood up a little better than yesterday but
couldn't stay standing for long. Had a headache all day (back of neck,
left side). Very congested when I got up.
Sun Sept 23 2007.
Slept late today. Had trouble standing. Right ankle turning bad. Remedy
doesn't seem to be doing anything this time. Will take another dose ( 3
succussions).
Mon Sept 24 2007. Went to bed very late and slept
late today. Had a terrible time going to sleep. Feet felt cold
especially right foot, if the covers touched right foot they felt
heavy. Got a spasm in right hip and leg sometime before I got to sleep.
Could stand better when I did get up so it seems the remedy is helping
some this time. Ankles turn a little but now both are the same which is
better.
Tues Sept 25 2007. Ankles turn a little more today but
still better than before. Headache in left eye tonight. Remedy still
seems to be working.
Wed Sept 26 2007. Ankles still turning some but I am able to stand a
little better still so I'll wait.
Sat
Sept 29 2007. Ankles starting to turn worse again. Had trouble standing
today. Feet starting to get cold at night again and having trouble
going to sleep at night, I get tired and sleepy but can't go to sleep.
Think it's time for the remedy again (4 succussions).
Sun Sept
30 2007. Ankles still turning bad today. Remedy didn't seem to do
anything this time so I'm trying an experiment. I'll take a dry dose to
see what happens.
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