| There are many reasons for
this page. While
there is
much information on Muscular Dystrophy on the Internet and various
other
places. I wanted to provide a place where I could talk about what I
have
learned about myself.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedrich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
email me
Do you have a poem or
story? Send
it here
I'm afraid there was no way
to make this short
as there
is lots of information here. Some may apply to many people and some
only
to me. I have to make another point
here...I use
homeopathic remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I
asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
homeopath
as soon as possible"
Oct 2007
The Physostigma still seems to be helping some this
month. Not as much as I'd like. Started CO Q10 based on feedback from Matt
Mon
Oct 1 2007. Seemed to be able to stand a little better today. Ankle
still turned but at least I could force feet flat. Have been having a
stool regular which is a little different, has a sour smell. Have been
able to hold bladder even when it feels full very frequently.
Tues Oct 2 2007. Had to get up early so head has felt sore all day.
Seemed to be able to stand ok again. Right ankle tends to turn but I
was able to force it flat. Feet were pretty cold in bed last night. Had
the sensation of toes on right foot pulling up.
Thurs Oct 4 2007. Feet didn't feel as cold last night. Toes on right
foot still feel like they are pulling up at night. Left ankle seemed to
be trying to turn worse than right today. Standing was not quite as
good today but still better than it had been.
Sat Oct 6 2007. Didn't sleep much last night. Kept waking up. Ordered
some Co Q10 today to try.
Sun Oct 7 2007. Left leg was cramping when I woke up today. Neck was
stiff and had a headache in left eye most of the day. Both ankles
turning so bad I really couldn't stand. Will take the remedy tonight (3
succussions).
Tues Oct 9 2007. Had trouble going to sleep last night. Feet felt cold,
knees popped when I bent them after legs warmed up, right foot hurt and
couldn't find any way to ease it. Was unsteady getting dressed but
ankles didn't turn quite as bad as usual (left worse this time).
Wed Oct 10 2007. Knees still popping last night when I bent them. Feet
and legs cold. Had a bit of a stiff neck when I got up. Got the Co Q10
today and started with 200mg which I'll continue for a week then move
up in dose. I can't be sure but legs may feel a little stronger, didn't
seem to give out as fast, still locking knees when I stand and ankles
still turning but doesn't seem as bad as in the past.
Thurs Oct 11 2007. Feet were cold in bed but it didn't seem to bother
me as much. They got pretty cold after awhile which seemed strange, I
would have expected just the opposite. Took the Co Q10 200 mg again
today. Was getting a headache in the top of my head last night for
short periods and it was still happening today. Ankles felt like they
would turn todays but it was still better than before. Felt a cold sore
starting tonight, top left upper lip, took Nat Mur 30c which usually
works if I catch it in time but I can't be sure if I did or not yet.
Fri Oct 12 2007. Feet and legs were cold last night but it didn't hurt
like usual. Still had the blister on my lip today, put some Calendula
cream on it today and took another dose of Nat Mur tonight. Woke up
earlier today but didn't get up right away. Ankles still tend to turn a
little but I was able to keep them from turning all the way. 3rd day on
200 mg of Co Q10, seems things are a little better.
Sat Oct 13 2007. Feet and legs cold again last night, still didn't
bother me too bad. Blister is still on lip. Had a headache all day,
back of neck over top of head and into left eye. I'm beginning to think
maybe the Co Q10 is detoxing me. I seem to feel a little stronger,
ankles don't turn as bad, legs aren't giving out as bad. I'm sticking
with 200 mg for now because if I'm detoxing a higher dose might make me
feel bad because I would detox faster.
Sun Oct 14 2007. Blister still on lip. Stomach feels like I need a
stool but I haven't went today. Headache wasn't as bad today. Have
tension in neck tonight and starting to get a little bit of a headache.
Legs felt weaker today. Will take remedy tonight (4 succussions).
Mon Oct 15 2007. Blister is maybe drying up a little. Feet felt ok to
the touch in bed but the sensation of right foot being so cold it hurt,
kept me awake all night. Neck and head were stiff and hurting when I
got up. Legs felt a little stronger than yesterday.
Tues Oct 16 2007. Not much change in the blister. Feet didn't feel too
cold to the touch last night but the sensation was cold to the point of
hurting. Got up earlier today even though it was very late before I
went to bed. Will increase the Co Q10 to 400mg tomorrow.
Wed Oct 17 2007. Blister seems to be drying up some. Woke up with a
stiff neck, headache and stuffed up nose. Felt better after I had been
up for a little while. Had trouble standing for some time. Went up to
400 mg on the Co Q10 today, haven't noticed anything different so far.
Sun Oct 21 2007. Had a rough weekend, ankles turning bad and very
difficult to get around. Trouble standing. Still on 400 mg of Co Q10.
Time for the remedy again (5 succussions).
Mon Oct 22 2007. Feet felt cold last night and big toe on right foot
hurt (like it was pulling up). Got out of bed today and put right foot
on the floor and it started bouncing, then when I put left foot on
floor it started bouncing too. Hands have cramped and been sore all day
(mainly right). Ankles still turning but not as bad.
Tues Oct 23 2007. Feet didn't feel as cold last night. Toes did feel
like they were pulling up some. Legs still bounced today but not as
bad. Balance was still off so I had trouble standing but it wasn't bad
if I had something to hold on to. Blister is mostly gone just a rough
spot where it was. Ankles didn't turn too bad.
Wed Oct 24 2007. Following the routine Matt had sent for the Co Q10 I
went up to 600 mg today. Last night legs felt colder than feet. Went to
bed very late and only slept for 4 or 5 hours. Legs didn't bounce much.
Standing was a little better today and ankles turned but was a little
better. Have noticed today that I don't feel as tired but I am very
sleepy.
Thurs Oct 25 2007. Left leg bounced when I got up. Feet were very cold
after getting in bed and it kept me awake. Ankles weren't turning too
bad today.
Fri Oct 26 2007. Feet got very cold after getting in bed last night,
made it difficult to go to sleep. Have been okay today, a little tired.
Balance still not too good.
Sun Oct 28 2007. Feet didn't feel as cold last night. Felt weak today
and yesterday evening. Had trouble standing, ankles not turning bad but
knees wouldn't bend. Will take remedy tonight ( 6 succussions ).
Mon Oct 29 2007. Feet were a little cold last night but not too bad.
Had trouble falling asleep. Legs felt a little stronger today, still
had some trouble standing but it seemed to be more balance than
anything else. Ankles were pretty good.
Wed Oct 31 2007. Feet were warm when I got in bed then were cold in a
few minutes (just the opposite of what you would expect). Felt like I
was getting a headache when I went to bed. Still felt kind of sore all
day. Yesterday legs were sore. Went up to 800 mg of Co Q10 today.
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