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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


Feb 2004
Mostly just doing the detox now and won't be getting another remedy till after I finish the detox and wait. Seems that I had to decrease the number of drops of the detox to keep from having my legs ache bad (made it more difficult to walk)
 
Sun Feb 1 2004. Didn't go to bed last night...just dozed a little in my chair. Was tired all day but only napped for a few minutes at a time. Legs feel weak and ankles turning so it's difficult to walk. Have been having worse pain which keeps me from sleeping. Sinus blockage which tastes very bad (have nothing to compare the taste to).

Mon Feb 2 2004. Went to bed at 5am, got up at 11am. Fell asleep finally because I needed to. Was pretty stressed and mind was in overdrive. Keep hearing my stomach making weird noises (maybe from detox). Stools have been more regular and a little easier to pass (very dark). Still have the taste in mouth and nose is plugged but not running as much and less sneezing. Not as much leg pain but knees still lock and ankles turn. Shoulder pain still pretty bad and ears still ringing.

Tues Feb 3 2004. Went to bed at 6:30am, got up at 1pm. Layed too long, had a headache (left occiput around to left eye). Feel a little dizzy from headache and stomach feels empty. Legs feel weak but not much pain for a change.

Wed Feb 4 2004. Fell asleep on couch at about 11pm, got up at 10am. Had trouble sitting up or getting up (sore all over). Still feel my neck out on left side but at least don't have the headache but it does feel like it could start again. Blister popped out on upper lip last night (upper lip, right side about 1/4 inch from corner), got bigger overnight (I would say maybe from the detox but I have had it happen for years so I don't know). Very down today.

Thurs Feb 5 2004. Went to bed at 2am, got up at 10:30am. Neck sore from laying too long (eased up after moving around some). Made a paper remedy last night and mood is a little better today. Blister on lip is still there, sticks out about 1/4 inch but it isn't as tender (maybe it's just throwing off toxins). Low back is sore. Ankles turning easily. Can't bend down to pick something up from floor (legs and back give out).

Fri Feb 6 2004. Went to bed at 4am, got up at 9:30am. Still felt tired and sleepy after I got up. Right shoulder hurts (feels like right in the bone). Bladder has been fine. Stools have been mostly liquid the last couple of days (lots of gas). Blister on lip is smaller today. Ears ringing (was very loud last night). Right ankle turning frequently.

Sat Feb 7 2004. Went to bed at 3:30am, got up at 10am. Feel the urge to stretch legs while sitting. Right ankle still turning. Feel tired but not much pain for a change. Ears not ringing quite as loud. Blister on lip feels a little smaller. The bad taste from sinus drainage has to be metallic. Ears ring louder later in the day and at night. Sleepy all day but haven't been able to fall asleep.

Sun Feb 8 2004. Went to bed at 3:30am, got up at 11:30am. Had a little diarrea last night (felt a little better for it). Had some sneezing and runny nose last night. Very stiff when I got up (sore all over). Legs pretty weak. Tongue not coated as bad (starting to see more pink, was always coated either dirty white or kinda yellow before) I think the detox is working. Developed a lot of tension in back of neck and back of head late today. Blister smaller (I had used some Calendula cream on it last night). Ears not ringing too loud so far today (always seems louder at night).

Mon Feb 9 2004. Went to bed at 2am, got up at 11:45am. Woke up sweating and very sore, had trouble sitting up and even more getting up. Had to go have a stool as soon as I got up. Nose plugged up, got some blood out when I blew my nose. Blister on lip is very small now (almost healed), tongue very pink (almost no coating).

Sun Feb 15 2004. Have been out of town all week so there are just generalities for the last week. Felt better mentally, good appetite, regular stools. I did have a little more trouble picking feet up plus some instances of catching feet on each other and not being able to untangle them without backing up to where I got them caught. Didn't sleep much all week but was getting up much earlier in the morning and going to bed earlier (probably because I didn't have a computer lol). I had more of a desire to get outside (it was warmer weather where I was). Back and legs did hurt some for a few days. Got back in town tonight...noticed ears ringing as I got closer to home and had not noticed it all week while I was gone. Bladder was very good on the trip back (only went once on a 10 hour drive and wasn't an emergency then but bladder was very full). Wasn't able to take the detox all week as it was in my coat pocket and I didn't have it with me all week. Woke up with swollen glands and a headache Wed morning and took one dose of a remedy, started feeling better in just a little while, headache went away in about an hour and swollen glands were gone by the next morning. Started taking the detox again this evening so I'll have two doses for today (I did notice my tongue looked like it was coated a little more the last couple of days).

Mon Feb 16 2004. Went to bed at 4am (had trouble getting in a position where I could fall asleep), got up at 12pm. Woke up with headache on left side (eye and neck), back pain on left side and left leg weak (left leg has been weak for a few days). Have some back pain on right side but don't notice it much because left is so much worse. Headache has gotten worse as day goes on (felt like it would ease up some if I could take a nap but have been unable to fall asleep). More frequent urination today (every 1 or 2 hours). Nausea after hours of the headache. Tongue isn't coated much (Purple on edges and under tip with a crack down the middle). Blister on lip is just a small spot and is almost completely gone.

Tues Feb 17 2004. Went to bed at 2am (woke up at 6am with full bladder), got up at 11:30am. Took remedy at 1:30am last night. In 2 hours have had to urinate 4 times already, stomach feels very empty and uneasy. Blister on lip is almost completely gone. Legs feel tired but the headache finally went away. Bladder got better later in the day. Ears started ringing loud and headache trying to come back in the evening.

Wed Feb 18 2004. Went to bed at 4:15am. got up at 11am. Was lightheaded, stiff neck and weak feeling when I woke up. Didn't feel like I would be able to stand up so I sat for a few minutes. Did stand ok but felt unable to. Ears ringing loud. Stomach felt uneasy (last few days has felt that way before a stool). Stools smell sour. Noticed when I got back to town I wasn't black around eyes, have noticed the last couple of days the black circles are coming back. Eyes are tired tonight and feels like the headache is coming back. Bladder has been fine today.

Thurs Feb 19 2004. Went to bed at 3:15am, got up at 10:45am. Was lightheaded, stiff neck and weak feeling when I woke up. Didn't feel like I would be able to stand up so I sat for a few minutes. Had an unquenchable thirst late last night and drank 4 cups of water late so bladder was full when I woke up. Can barely tell where the blister was on my lip. Nose is pretty plugged up and ears ringing. Have no ambition. Legs a little sore and weak feeling. Legs get very tired from standing or walking and ankles turn.

Fri Feb 20 2004. Went to bed at 1am, got up at 8am. Took some time to move, both shoulders hurting from laying on them. Bladder ok. Legs sore and right ankle turns easily. Have been very tired all day. Ears ringing but doesn't seem to be quite as loud. Eyes tired and feel gritty.

Sat Feb 21 2004. Went to bed at 1:30am (was up to urinate at 3:30 and 5:30), got up at 11am. Woke up in pain all over (neck, back, shoulders, arms and legs). Had to urinate when I woke up but it took everything I had to stand up (leaked a little because it took so long to get there). More pain than I have had. No stool just lots of gas and very frequent urination today. Hard to stand up or walk due to pain and soreness. Frequent urination continued till late this evening and the sore tired feeling is still in my legs. Feels like I have discharges everywhere (urination, nose etc.), I'm thinking some of that may be the detox?

Sun Feb 22 2004. Went to bed at 4:30am, got up at 1pm. Didn't have to get up all night so bladder problem finally stopped. Has been difficult to pick my feet up, tend to either drag toes or when I can lift feet step very high (I think it's the gait they talk about people with ataxia having). Coating on tongue isn't as heavy (coated heavier on back of tongue, getting lighter as you go towards the tip of tongue, tip is kind of pink). Will reduce the detox to 1 drop 3X a day in water. Have been very thirsty and nothing I've tried so far quenches the thirst. Gas and rumbling in stomach early today. Ears started ringing loud again last evening. Legs sore in back, upper legs. Low back pain and right shoulder (back feels like it may break if I bend back, shoulder doesn't really hurt from using it just at times the way I move or something... pain feels like it's right in the bone). Don't seem to have much ambition to do anything (always had to force myself to do anything so this really isn't new). 

Mon Feb 23 2004. Went to bed at 3:30am, got up at 8am. Bladder being full woke me up so I just stayed up. Felt tired all day. Stool was mostly gas. Legs tired and dragging toes. Left knee pain when walking (old symptom). Stomach making gurgling noise. Ears ringing but so far not as loud today (seems to be louder at night).

Tues Feb 24 2004. Went to bed at 12:30am, got up at 8am. Right after I got up my legs almost gave out on me and I almost fell. Bladder has been good today. Stool was mostly gas and some foam. Some low back pain. Ear ringing got loud when I went to bed. 

Wed Feb 25 2004. Went to bed at 1am, got up at 8am. Very sleepy today, dragging toes and right ankle turns. Feet tend to slide so I must be off balance when standing. Bladder is ok, still have a lot of gas rather than a good stool. Feeling like a possible headache, base of skull right side (feels tight...maybe tension). If I really concentrate and walk very slow I'm able to pick feet up and step without dragging toes bad, right ankle still turns easily though.

Thurs Feb 26 2004. Went to bed at 2am, got up at 7:45am. Most symptoms are left sided today, left knee locks, Left foot drags worse, pain in left temple and back of neck. Bladder holding well. Last night sounded like water draining in stomach.

Fri Feb 27 2004. Went to bed at 2am, got up at 8am. Got up once during the night to urinate. Could hold bladder ok but had bladder pressure a few minutes after urinating. With concentration could pick feet up but get tired very fast. Have felt like sleeping all day. Head feels like I'm close to a headache.

Sat Feb 28 2004. Went to bed at 4:30am, got up at 10:45am. Still seem to be able to step better but legs are starting to ache again (will cut down on the detox). Bladder holding good. Ears ringing loud.

Sun Feb 29 2004. Went to bed at 5am, got up at 12:15pm. Stepping ok, bladder good. Sore when I went to get up. Right shoulder painful. Eyes have been tired all day. Legs stiff but pain wasn't bad today (Had decreased the number of drops of detox).

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