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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


Apr 2004
  This month I took the remedy that seems to work for me when I have trouble holding my bladder (last time I took it was almost a year ago). Plus I started taking the next remedy my homeopath suggested, it's in an LM potency which is taken a little differently (precise measurements, and taken on a more regular basis)

Thurs April 1 2004. Went to bed at 3:30am, got up at 10:15am. Very tired and sore when I got up. Have been drinking lots of water. Kept pitching forward when I tried to bend to pull pants up so balance is way off. Legs feel very weak and tired. Having an emotional crises starting about 7:30pm. Dragging feet when I walk and frequent urination tonight.

Fri April 2 2004. Ended up staying up all night (was tired but couldn't go to sleep). Took Equisetum 5c at 10am today. Legs very tired and sleepy all day. Right ankle turning easily and still having frequent urination. Have had a sore spot in my stomach occasionally for awhile, left side just under bottom rib, sore and bloated feeling.

Sat April 3 2004. Went to bed at 4am, got up at 12:30pm. Legs tired today, kept catching my feet on each other. My wife says it happens more when I try to rush so I won't keep other people waiting. Right ankle still turning when I stand. At times I can't seem to lift my foot off the floor. Took remedy in 7c potency late tonight.

Sun April 4 2004. Went to bed at 4:30am (was still awake at 7am). got up at 12:30pm. Had trouble even sitting up in bed (was tired and sore). Have no ambition or desire to do anything (have to force myself). Will take the remedy in 9c potency late tonight. 

Mon April 5 2004. Went to bed at 4:30am, got up at 12:30pm. Very tired, don't seem to get rested from sleep. Have been drinking a lot of water so bladder gets full but have been able to hold it ok. Took remedy in 12c potency at 12:30 tonight. Have been very thirsty for several days. I drink a couple glasses of water every night.

Tues April 6 2004. Went to bed at 4:30am, got up at 10am. Both shoulders had pain when I started to get up (worse on right side). Bladder has been good. Stools have been loose and mostly gas. Very tired (want to take a nap but can't fall asleep). Right foot felt like it was stuck to the floor a couple of times today. Ears ringing (was louder last night). Took the 15c tonight. Sneezed a little today.

Wed April 7 2004. Went to bed at 3:30am, got up at 11am. Was getting a left sided headache before I went to bed, from back to front. Very stiff when I got up. Clothes seem to rub, left groin area, neck tight on left side. Nose plugged up when I got up, discharge pretty clear but couldn't get much out so it seemed to be sticky. Took the 18c tonight. Bladder ok. Seem to be feeling very frustrated.

Thurs April 8 2004. Went to bed at 3am (was still awake at 6am), got up at 11am. Feet felt like ice all night and looked purple when I got up. Bladder was overfill and leaked as I got in the bathroom. Tried all day to take a nap but couldn't fall asleep. Took 24c tonight. Dragging toes. Was urinating more often today.

Fri April 9 2004. Went to bed at 3:30am, woke up at 9:30 but went back to sleep till 12:30pm. Bladder has been ok, stomach cramped a couple of different times and felt like I needed a stool but could only go a little. Had a right sided headache today, back of neck, temple and eye. Blew my nose and got some bright red blood from right side. Took 30c in late afternoon. Generally just feeling tired with no ambition.

Sat April 10 2004. Went to bed at 3am, woke up a couple of times early but went back to sleep, got up at 11am. Had the sensation of a short circuit in my head when I raised my head from the pillow during the night. Had an erotic dream last night. Picked foot up to put pants on this morning and felt a pull in low back, have had pain there ever since (very low back, just above tailbone). Bladder ok, still getting stomach cramps and an empty feeling in pit of stomach. Ears still ringing (worse at night). Took the 200c.

Sun April 11 2004. Went to bed at 1am, got up at 9:45am. Can't seem to get comfortable in bed, wake up frequently and have been waking up with a headache for several days (usually goes away after getting up). Bladder has been ok, even when I have to urinate have been able to hold it. Low back still sore. Still hyper extending knees (they snap back and lock when I stand). Every time I eat my stomach cramps. Took the 1M today.

Mon April 12 2004. Went to bed at 2am, got up at 8:15am. Have trouble falling asleep because I can't find a comfortable position to sleep in. Don't feel rested when I wake up. Knees lock when I stand making it difficult to reach down even to pull my pants up. Bladder is ok. Stopped to look outside this afternoon and went to step, I went but left foot wouldn't lift and I fell forward (I did catch myself and got up fairly easily). When I walk today right foot stays straight but left foot turns out about 10 degrees and left knee has a slight pain (used to be much worse). Right shoulder still has pain worse when I reach behind me.

Tues April 13 2004. Went to bed at 3:30am, got up at 10:45am. Had heartburn last night and most of my pain today is a burning type pain (stomach, right shoulder etc). Bladder a little worse today. Had some diarrhea once this afternoon. Catching feet on each other today. Legs feel weak. Getting a headache tonight (mainly in left eye), am tired and not in a real good frame of mind (worry).

Wed April 14 2004. Went to bed at 3:30am, got up at 11:30am. Headache got worse overnight, woke up at 8am and it felt like the top of my head would explode, went back to sleep, when I got up was mainly left sided (back of head, temple and around eyes, worse on left). Finally late in the day took some sil 30c, headache started to ease up late in the evening after the third dose. Didn't drink much so I wouldn't have to get up to urinate (didn't have the strength).

Thurs April 15 2004. Went to bed at 12:30am, got up at 8:15am. Felt good not having that headache. Feel like maybe I have a little more ambition today. A little sore from sitting all day yesterday. Tues and Wed felt like a pimple inside right nostril, today feels like that is gone but feels like nose is blocked way in the back, nothing comes out. Bladder has been ok today.

Fri April 16 2004. Went to bed at 3:30am, got up at 9:15am. Felt like I would have gotten a headache had I stayed in bed. Legs are sore. When I pull my legs up in bed knees pop (sounds loud to me). Ears ringing. Still have the tendency to stand on outside edges of feet and lock knees. Sat outside in the sun today for a long time, skin is red and looks like a burn but it feels ok. Bladder has been good.

Sat April 17 2004. Went to bed at 4:30am, got up at 11am. Lost balance and fell after getting up (must have still been half asleep). After I got up from falling, wife commented on my standing on outside edge of feet and ankles turning. Knees locking pretty bad today, very difficult stepping down steps etc. when knees are locked. Have noticed I catch my feet on each other today (I have pushed myself more because the weather was nice). Bladder has been good. Still no ambition to do things that need to be done.

Sun April 18 2004. Went to bed at 3am, got up at 9:30am. Have had a pretty lazy week, weather has been pretty nice and I've stayed outside a big part of it. Bladder good, have had gas but unable to pass a stool. Was starting to get a headache from the sun today so I moved to the shade and it went away.

Mon April 19 2004. Went to bed at 4am, got up at 10:30am. Very stiff and hard to move this morning (back, legs arms etc.). Gas pains, sore left lower stomach down to groin on left side, empty feeling in stomach. Feet started jerking last night and are still doing it. Toes pulling up last night in bed. Shoes feel tight and feet have a burning sensation (loosening them didn't change anything. Have a headache (top of head), not bad pain, think it may be from a change in weather (has been very windy since last night). Ordered next remedy today.

Tues April 20 2004. Went to bed at 3am, got up at 11:15am. Stomach has felt empty all day (eating doesn't correct it). Not a headache really just pressure in top of head and around eyes. Ears have been ringing very loud all day.

Wed April 21 2004. Went to bed at 3am, got up at 9:30am. Got up once to urinate last night (have been getting up once most nights lately). Had a headache and backache when I got up (very stiff, hard to move). Tendency to fall forward when I bend down even while sitting. Headache eased up after moving around. Headache came back (mainly just a sore feeling). Pick feet up high because my toes drop (trying not to drag toes). Haven't done anything today but feel very tired, eyes blur when I read. Remedy not here yet.

Thurs April 22 2004. Went to bed at 4am, got up at 10:30am. Made it all night without getting up. Cramp in left calf when I woke up, right leg felt weaker than left (tended to give out when I stood). Standing on outside edges of feet and locking knees when standing. Stomach pains (felt empty and needed a stool), stool soft with some burning but felt better for it. Toes pulling up while sitting. Since shoes have been feeling tight even when untied I am not wearing shoes today (drag toes worse without shoes). Ears ringing loud today. Took my remedy at 4:30pm.

A couple of hours after taking the remedy the ear ringing seemed to get louder for about an hour then went back to the level it was. Still loud but normal for me. Have a little more sinus drainage with a metallic taste. Have a stitching pain in right groin area and legs feel a little different, can't articulate how they feel different, just a feeling. Can't say for sure yet if it's from the remedy, just keeping notes.

Fri April 23 2004. Went to bed at 4am, got up at 11:45am. Made it all night. bladder good. Still have the metallic taste in my mouth. Tongue is mostly pink, only a few spots on it. Was still difficult to get up this morning. Back of legs a little sore but may feel slightly stronger. Balance still bad. Ears still ringing today. Feels like I'm able to step better, nothing major (I still have the back, knee and shoulder pain) just have the impression I'm stepping better.

Sat April 24 2004. Went to bed at 3am, got up at 11:45am. Got up once through the night, bladder was not too good till late afternoon today. Got up very sore all over (probably because I did more yesterday). Legs feel looser but there is some muscle pain. Seem to stand from a sitting position a little better. Stomach gets sore (from needing a stool).

Sun April 25 2004. Went to bed at 4:30am, got up at 11am. Shoulders and chest very sore. Trouble standing this morning (kept falling to the left or forward). Bladder gets full quick early in the day and gets better later in the day. Seem to have a little more resolve to do things. Stomach a little sore and making noises. Last couple of times I ate pizza I noticed my lips felt sore later in the night.

Mon April 26 2004. Went to bed at 2:30am, got up at 10am. Just got water for a stool last night. Had been unable to crawl across the bed for some time but was able to do it last night. Different story this morning (had trouble getting up). Seem to be dragging feet today and ears ringing loud. Back hurts and frequent urination early.

Tues April 27 2004. Went to bed at 2am, got up at 8:45am. Crawling across bed was more difficult last night, did not have to get up to urinate all night. Difficult to walk today (dragging feet), very sleepy all day. Bladder good but stomach sore with gas all day, stools mainly water. Craving fruit, ate quite a few raisins (may explain the gas and stools). Legs sore today.

Wed April 28 2004. Went to bed at 3:30am, got up at 10:30am. Am very down, lost interest in doing anything. Woke up with a headache and sinuses plugged up. Eyes kinda sore, trouble picking feet up. So many things I need to be doing and just no energy or motivation to do them. Knees have been locking worse again the last couple of days. Ears ringing very loud. Still get that metallic taste from sinus.

Thurs April 29 2004. Went to bed at 2:30am, got up ay 9am. Had a headache when I got up (left temple and top of head). Bladder was good till early evening then started urinating about every half hour. Was tired all day but ear ringing and headache kept me awake. Very sore tonight from overexertion (back and arms). Had an episode of worry during afternoon (over bills and things that need to be done around the house that I can't do).

Fri April 30 2004. Went to bed at 3am, got up at 9:30am. Did good crawling across bed last night even with the back pain. Woke up with headache (went away after a little while), plugged up, metallic taste in mouth, offensive breath, coughed up phlegm (white). Back and arms sore. Bladder seems ok. Remedy came today, I mixed it and took the first dose at 7:30 tonight, it has been 3 hours now and I haven't noticed anything (I may be feeling a little different in my attitude but it's too early to say for sure).
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