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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


May 2004
The last remedy didn't seem to do much so my doc had me do it all again. Got the new remedy right at the end of the month so the results won't be indicated till next month. In case you are interested the information I provided is HERE.

Sat May 1 2004. Went to bed at 3am, got up at 9:30am. Headache in back of neck, full bladder when I got up. Legs feel shaky but loose, tend to pitch forward when standing. Did good getting across bed last night. Was having a weird sensation last night (in the evening it kept feeling like someone was sticking me with a pin on my arms and was feeling it on my back last night), haven't had it so far today. Some groin discomfort since last night. Upper right arm and shoulder has sharp pains when I move it at times or lift something.

Sun May 2 2004. Went to bed at 12:30am, got up at 5am. Bladder has done very well today but constipated (stomach sore & only get some white foam). Knees have been locking up. Groin pain. Took remedy at 9:15pm (5 succussions).

Mon May 3 2004. Went to bed at 11pm, got up at 9am. Got up once during night. Back hurt so much was difficult to sit up, legs weak (hard to stand). Small stool with some foam. Trouble picking feet up. Legs have felt shaky all day. Took remedy at 9:30pm (5 succussions). Stool a little better tonight.

Tues May 4 2004. Went to bed at 12am, got up at 8am. No stool this morning (just gas). Legs feel weak. Knees lock making it difficult to go downhill. Took remedy at 9pm (5 succussions). Stool still small with some foam. Ears ringing very loud.

Wed May 5 2004. Went to bed at 12am, got up at 7:30am. Got up to urinate at 3am and had full bladder at 7:30am. Legs weak & wouldn't hold my weight when I got up, fell & took several minutes to figure out a way to get up. Couldn"t pick feet up today & ankles turning. Took remedy at 9pm (went up to 6 succussions).

Thurs May 6 2004. Went to bed at 11pm, got up at 9am. Got up twice during night. Legs weak, dragging toes & ankles turning. Sinuses draining-tongue coated a slick white when I first got up (not as bad after eating). Hurt feet walking up a ramp (top of feet about 2 inches in front of ankle - right foot worse). Forgot to take remedy.

Fri May 7 2004. Went to bed at 11pm, got up at 8:30am. Tongue coated (slick white from sinuses). Right foot still hurts if I try to lean forward mainly (very difficult to stand). Small stool but no foam. Took a dose of Ruta for the ankle, felt a little better - sore again tonight. Took remedy at 8:30pm (went back to 5 succussions since I hurt feet after going to 6).

Sat May 8 2004. Went to bed at 11:30pm, got up at 5am. Spent 11 hours on the road coming home. Lega stiff and sore, ankles turning. Bladder doing well but stomach sore.Took remedy at 9:30pm (5 succussions).

Sun May 9 2004. Went to bed at 3:30am, got up at 10:30am. Legs weak and very sore, ankles turning. Took remedy at 9:30pm (5 succussions).

Mon May 10 2004.Went to bed at 1:30am, got up at 10:30am. Legs weak and sore, dragging toes, ankles turning. Legs tired and sore (right knee sore - won't hold my weight). Slight headache late in the day. Feel very tired (drained and worried). Will take remedy if/when I get up to urinate.

Tues May 11 2004. Went to bed at 4am, got up at 10am. Was up a couple of times to urinate. Didn't take remedy last night. Had trouble going to sleep and was still very tired when I got up (worry over finances). Sore all over. Worn out emotionally and fighting depressiom. Dragging toes and ankles turning.

Wed May 12 2004. Went to bed at 2am, got up at 10:30am. Meant to take remedy when I gott up to urinate during the night but never got up. Made 2 days without remedy so I took it about 5:30pm today. Had a good stool for a change today. Legs feel tired but not much pain (hyperextending knees pretty bad) and toes on left foot turning out about 30 degrees when I walk.

Thurs May 13 2004. Went to bed at 2am, got up at 11am. Difficult to scoot across bed and legs stiff making it difficult to stand, balance off. Got up to urinate once last night. Back sore today. Ankles turning (mainly right). Difficult to lift feet from floor. Sit down to work and just don't have any interest.

Fri May 14 2004. Went to bed at 12:30am, got up at 9am. Took remedy ay about 11:30pm last night (went to 6 succussions). Woke up before the alarm but didn't feel like getting up. Very stiff, full bladder, trouble scooting across bed to get up. Legs stiff and hyperextending my knees pretty bad. Had a slight headache (left eye and base of skull left side).

Sat May 15 2004. Went to bed at 1am, got up at 12pm. Didn't want to get up (felt tired). Still hyperextending knees. Dragging toes today and legs tired...no pain. Eyes have felt grainy and tired. Mood has been a little down...seem to be able to cover it up around people but didn't want to leave the house.

Sun May 16 2004. Went to bed at 5am, got up at 11:30am. Took remedy (6 succussions) when I went to bed...couldn't go to sleep (kept waking up every few minutes till about 7:30). Noticed right knee on outside edge was very sore (no bruise), hurt when I touched it or bent it. Had some raw vegatables at dinner and stomach feels bloated and have gas. Legs feel sore and balance is off.

Mon May 17 2004. Went to bed at 1:30am (took remedy, 6 succussions before bed), got up at 11:30am. Kept waking up during the night. Have had a headache all day (back of neck and head), Very stiff when I got up, locking knees and ankles turning. Pain in both knees (left just below kneecap and right behind knee, not bad pain).

Tues May 18 2004. Went to bed at 2am, got up at 10:30am. Back hurt, legs stiff but at least no headache. No ambition at all today, wanted to just go to sleep but couldn't. Have no idea where the day went (I haven't done a thing). Ears ringing all day, internal as plugging ears didn't diminish the volume.

Wed May 19 2004. Went to bed at 6am, got up at 11:45am. Legs very weak (left leg gave out and legs wern't strong enough to get back up). Had trouble going to sleep (kept having unpleasant thoughts). Ears still ringing (maybe not quite as loud as yesterday but close). Getting feet caught on each other today. Very tiired and sleepy.

Thurs May 20 2004. Went to bed at 3am, got up at 11am. Legs felt weak when I got up. Sore spot in back of neck, down low right in center. Dragging toes pretty bad today with some pain around left kneecap. A couple of urgent trips to urinate tonight (twice within less than an hour), bladder feels full even right after urinating. Have the feeling people's complaints or aggravations are aimed at me.

Fri May 21 2004. Went to bed at 1am, got up at 9am. Legs weak (felt like they would give out under my weight). Right shoulder sore. Bladder a little problem (going a little more often). Legs feel sore and ankles turning (mainly right). Hard to pick feet off floor. Ears ringing loud.

Sat May 22 2004. Went to bed at 2am, got up at 9:45am. Sore everywhere (legs, back, groin, arms and neck). Very bad headache with nausea (neck pain, top of head and into eyes). Very tired and sleepy all day. Ears still ringing. Noticed I would drop things I was holding and not realize it till I looked.

Sun May 23 2004. Went to bed at 11:30pm, got up at 10am. Still have neck pain but not quite as bad. Legs stiff and back weak. Ankles turning and hyperextending knees. Legs still sore, neck pain (back of neck left side). Ears still ringing. Had a sneezing spell today.

Mon May 24 2004. Went to bed at 11:30pm, got up at 9:45am. Neck was painful all night and I kept waking up. Pain has moved from my neck into low back now. Legs are tired. Stomach feels empty with some nausea. Neck still tender and sore down into shoulders (both sides). Kept feeling like I was getting the headache back all day. Mood is down (worry). Ears ringing. Legs kept jerking as I was sitting trying to nap.

Tues May 25 2004. Went to bed ay 6am, got up at 11am. Legs very weak and shaky when I got up. Worried the whole time I was trying to sleep (mind too busy to fall asleep). Feet and legs icy cold in bed keeping me awake. Ears still ringing. Still have tendency to fall forward while trying to stand (getting dressed etc).

Wed May 26 2004. Went to bed at 11:30pm, got up at 8:45am. Back pain (lumbar region). Legs weak and shaky, ankles turn easily (mainly right). Tend to fall forward when I stand to pull clothes up. Eyes are getting sore and feels like a headache starting.

Thurs May 27 2004. Went to bed at 3am, got up at 8:30am. Legs feel even weaker today, difficult to stand, right ankle turning.

Fri May 28 2001. Went to bed at 3:30am, got up at 10am. Very tired and moody. Legs sore. Ankles turning. Both hands cramping (right hand worse, hurts when I put pressure on it or try to use it).

Sat May 29 2004. Went to bed at 2am, got up at 11am. Right forearm kept me awake itching like something was biting me (finally took some AP and it started easing up and I could sleep). Legs feeling pretty weak today and still have lots of worry. Feel reluctant to go around people.

Sun May 30 2004. Went to bed at 2am, got up at 9am. Legs very stiff and sore. Neck stiff, eyes sore, slight headache. Pain when getting to my feet (legs and low back). Feel tired and want to sleep. Woke up last night and when I raised my head got that electric feeling in my neck and head.

Mon May 31 2004. Went to bed at 2:30am, got up at 9:30am. Back feels like it's about to break. Nose stopped up, mouth very dry, dark circles around eyes. Kept waking up all night feeling like I was getting a headache. Legs feel very weak and shaky.
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