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There are many reasons for this page. While there is much information on Muscular Dystrophy on the internet and various other places. I wanted to provide a place where I could talk about what I have learned about myself.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedreich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"


June 2004
Tried a couple of different remedies without much luck. Then went to cell salt therapy which is different than straight homeopathy and will probably take some time. I intend to buy a book on it to keep informed on what the time frame will be etc.

 
Tues June 1 2004. Went to bed at 4am, got up at 8:45am. Woke up to sweat running off forehead, very tired. Difficult to get dressed (kept falling, could not stand unassisted and legs very weak). Back feels like it will break (lumbar region). Ankles turn, feet feel heavy and feels like they put a strain on ankles when I lay down. Not in a good place emotionally right now (have things to do and am simply too tired to do them so I feel guilty). Wanted to sleep all day but couldn't.

Wed June 2 2004. Went to bed at 2am, got up at 9am. Neck feeling stiff and slight headache. Took a couple of minutes before I could get out of bed. Very difficult to stand or walk, legs stiff and sore. Ankles turning. Eyes very tired. Headache kept getting worse, back of head in neck. Took Puls 30 about 5pm today, haven't noticed anything so far.

Thurs June 3 2004. Went to bed at 2am, got up at 9:30am. I'm not pain free but the pain isn't as bad. Back doesn't feel like it will break. Neck feels better. Stood up to get dressed without falling for the first time in awhile (still not stable but at least less unstable). Getting a headache from reading too much (overusing eyes). Ears still ringing loud.

Fri June 4 2004. Went to bed at Midnight, got up at 8am. Back hurts some but not bad. Balance not as good as yesterday. Neck still a little stiff and eyes still a little sore. Left nostril plugged when I got up (nothing would come out). Ears still ringing. Feel ok except for the sore eyes but still can't make myself deal with certain things. Mood very down.

Sat June 5 2004. Went to bed at Midnight, got up at 10am. Back hurting more, difficult to stand. Stomach making strange noises. Had some diarrhea early afternoon (slimy texture). Had right sided headache. Legs weak (couldn't bend to pick up something from floor). Ears ringing loud (very intense). Find myself staying to myself (not interested in any contact with people).

Sun June 6 2004. Went to bed at 2am, got up at 9:30am. Took remedy again before bed (in water 10 succussions), got up at 4:30 to urinate (got dizzy and legs felt weak and shaky). Legs weak today, could stand without falling but it took all my concentration. Ears still ringing loud. Still tend to favor being alone (avoid contact with people).

Mon June 7 2004. Went to bed ay 4:30am, got up at 9am. Very difficult to stand (kept falling). Legs sore. Ears ringing and feel dizzy. Knees locking up making it difficult to sit down or step. Fighting depression and unfortunately it feels like I'm losing.

Tues June 8 2004. Went to bed at 1am, got up at 10:30am. Was angry and down on myself when I went to bed for not being able to do what needs to be done financially. Didn't feel well when I got up, all the pain was back, back felt like it would break, legs stiff and sore, couldn't stand to pull clothes up, couldn't bend over. Legs sore (upper leg in back).

Wed June 9 2004. Went to bed at 3:30am, got up at 8am. Back doesn't hurt as bad. Legs sore. Wasn't easy but did manage to stand long enough to pull clothes up. Not sure about mood yet (still having trouble dealing with some things). Storms today and head and nose feel kind of plugged up.

Thurs June 10 2004. Went to bed at 12:30am, got up at 9:30am. Took 1M before bed. Was very cold when I went to bed (wasn't cold in the house). Woke up sweating, back and legs sore. Trouble standing to get dressed, knees wouldn't bend. Ankles (mainly right) turning bad and legs very stiff. Pain in right shoulder (now feels like from overwork, burning pain).

Fri June 11 2004. Went to bed at 2am, got up at 10am. Legs very stiff and sore. Trouble bending knees and standing. Feet and legs jerk occasionally today. Ears ringing very loud. No ambition to do things (have to really force myself to even check email). Legs are very tired feeling.

Sat June 12 2004. Went to bed at 1am, got up at 11am. Legs stiff and sore when I got up (that didn't ease up), slight headache (got better after moving around). Had to grab something to steady myself 3 times while getting dressed. Some pain in low back (right at belt line). Legs sore (back of legs at top).

Sun June 13 2004. Went to bed at 3:30am, got up at 9:15am. Right leg gave out twice while getting up. Legs tired. Legs and feet itched bad all night, have some sores on legs today (don't know if they are insect bites or something else). Took Bry 30 this afternoon (haven't noticed any difference yet). Problem of not wanting to deal with certain things is still with me (I even avoid my computer).

Mon June 14 2004. Didn't go to bed last night, felt tired but just couldn't go to sleep. Legs are tired as a result today. Still have those thoughts about bills etc. Ears ringing. Slept for about an hour sitting in my chair today. Nothing else has changed.

Tues June 15 2004. Went to bed at 2am, got up at 11am. Very stiff and sore when I got up. Couldn't stand on my own. Noticed 3 or 4 more small spots on my legs last night and had some itching again (had not been out to get any insect bites this time). Had my wife look at them to see if they were anything like measles etc (she said no).

Wed June 16 2004. Went to bed at 2:30am, got up at 8:30am. Legs feel very weak today, couldn't stand on my own and couldn't bend over to pick anything up from the floor (that is always a problem). Knees won't bend. Ankles turing bad since last night. Ears never stop ringing (is constant so I only really notice it when it's pretty loud). Legs have been even more tired and weak today.

Thurs June 17 2004. Went to bed at 3:30am, got up at 1pm. Had trouble going to sleep (worry), still on my mind when I got up. Legs tired and weak. All symptoms still with me but intensified because of the mental stress.

Fri June 18 2004. Went to bed at 3am, got up at 11am. Very stiff and sore when I got up, legs and low back. Stood up to get dressed and fell back on bed, knees wouldn't bend. Cell salts came today got them in 2 times. Took first dose in late afternoon, wife seemed to think I was walking a little better after a couple of hours (I'm not sure yet), legs still feel sore but should know a little better tomorrow.

Sat June 19 2004. Went to bed at 1am, got up at 11:45am. Had trouble sleeping (maybe still stress and worry). Legs sore but seemed more stable when I stood up. Spots on legs seem to be going away (not as many and the ones still there look smaller). Mood doesn't feel much better. Legs still sore tonight.

Sun June 20 2004. Went to bed at 1am, got up at 10:30am. Everything left sided today, stiff neck, headache and nose plugged up. Legs stiff and some low back pain, good news is that I could get up from a chair easier so legs seem to be a little stronger.

Mon June 21 2004. Went to bed at 12am (was still awake at 3am), got up at 7am. Not easy to stand, legs very sore, knees hard to bend. Although legs are sore it does feel easier to step. Stomach is sore (even after a stool).

Tues June 22 2004. Went to bed at 1am, got up at 8am. Started getting a stiff shoulder and neck on right side last night, settled in overnight. Right ankle turning bad since last night. Legs still sore but knees seem to be bending a little better. Slight headache tonight from working on a computer all day, dealing with tech support etc.

Wed June 23 2004. Went to bed at 1:30am, got up at 8:15am. Very stiff, knees hard to bend, unable to step flat much of the time (ankles turning). Had headache all day (was around cats and dogs for hours yesterday) Nose plugged up. Have been very tired all day and unstable on feet.

Thurs June 24 2004. Went to bed at 1:30am, got up at 9:15am. Knees and back popped and cracked when I stood up last night. Had headache, stiff neck (left side) and sore back and legs when I got up this morning. Headache eased up after moving around, back eased up some, legs still feel sore. Right knee got sore towards end of the day.

Fri June 25 2004. Went to bed at 2:30am, got up at 9:40am. Started on Bioplasma (all 12 cell salts) last night. Legs felt tired this morning and left knee gave out when I stood up, didn't have the headache though. Legs feel tired and weak but seems a little easier to get up and not much pain, do still drag toes.

Sat June 26 2004. Went to bed at 2:30am, got up at 9:30am. Slept on right side, woke up with stiff neck (right), pain in right knee (unable to support my weight on that leg), slight pain in back (right side). Ears ringing loud the last couple of days (so loud it's hard to hear other things). Right leg felt weak all day (felt stiff in top back of leg).

Sun June 27 2004. Went to bed at 2:30am, got up at 9am. Slept on left side (while that knee didn't hurt when I got up it was weak). Left knee gave out while trying to pick a shoe up from floor, fell but knee didn't hurt like it used to. Some low back pain but no headache so far. Have a couple of spots on left foot. Feels like maybe a pimple on tip of nose, one inside nose and maybe behind right ear. Feet feel cold tonight.

Mon June 28 2004. Went to bed at 4:15am, got up at 9:45am. Slept on right side and right knee and shoulder were sore when I got up. Pain eased up after awhile, weak feeling in right leg stayed and right ankle turning (difficult to step flat on that foot). Have caught my feet on each other a couple of times today.

Tues June 29 2004. Went to bed at 2:30am, got up at 8am. Both knees hurt when I got up (knees hurt if I locked knees but legs would not hold my weight if I didn't). Couldn't stand long enough to pull clothes up. Very tired. Mental state may be a little better. Not doing well sitting down (knees won't bend and I end up having to fall into a seat with legs stiff). Slight headache and ears ringing.

<>Wed June 30 2004. Went to bed at 2:30am, got up at 8am. Slept on right side and right knee was sore when I got up. Feet and legs feel tired. Eyes very tired and nose has been plugged up. Legs feeling pretty weak today.
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