|There are many reasons for
this page. While
much information on Muscular Dystrophy on the Internet and various
places. I wanted to provide a place where much of that information
be located easily.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Ataxia. I have spent some time looking for information and possible
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
If you read as much as I
have from the
field you tend to lose hope of a treatment or cure.
My feelings are do as much as you can. I never accept
what the doctors tell me and I do things they say I can't do. My
younger brother never let his condition stop him as long as he could
keep going he did and attempted things even I didn't consider.
Do you have a poem or
I'm afraid there was no way to make this short as there
is lots of information here. Some may apply to many people and some
only to me. I have to make another point here...I use homeopathic
remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
asked the homeopath one
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
as soon as possible"
a remedy I used several years ago but in a higher potency. The other
thing is I at least seem to be maintaining my current
level of function.
Dec 1 2007.
Feet and legs still hurt last night and kept me awake. Still having
some weakness and difficulty standing today. Feet still feel swelled
(shoes are tight).
Sun Dec 2 2007. Feet and legs hurt for awhile last night but feet
didn't seem to be swelled up as bad when I got up (had taken a dose of
Nat Mur before going to bed). Still having trouble standing but may not
be as bad. Mood still down.
Mon Dec 3 2007. Legs stiff all day. Legs and shoulders have been sore
for a few days. Ankles turning some today. Still having a hard time
Tues Dec 4 2007. Right ankle turning bad today. Couldn't stand today
(legs weak and balance even worse than usual). Lots of sinus drainage
causing a bad taste and smell. Shoulders still sore and legs weak. Time
for remedy again (4 succussions).
Wed Dec 5 2007. Right leg was sore when I got up (like it had been
cramping). Right ankle turning making it hard to stand. Did seem a
little more able to stand to get dressed, it wasn't good but better
Thurs Dec 6 2007. Legs sore again when I got up. Right ankle was
better, left was turning. Felt tired all day and even though I felt
like I didn't want to do anything I still managed to do a couple of
things and started thinking about doing things.
Fri Dec 7 2007. Left leg hurting like it was cramping during the night.
Ankles would turn at times. Very tired all day.
Sat Dec 8 2007. Legs sore, neck stiff, arms and shoulders sore. No
energy but had a desire to work on something.
Sun Dec 9 2007. Legs very stiff, sore all over. Difficult to stand long
enough to pull pants up.
Mon Dec 10 2007. Don't seem to be sleeping well and for a few nights
feet have felt ice cold after getting in bed. Legs seem very stiff and
sore, knees won't bend and can't pick feet up. Right ankle tends to
turn. Time for remedy again (5 succussions).
Tues Dec 11 2007. Trouble going to sleep last night (gas pains). Still
tired when I did get up. Ankles not turning as bad today. Still had the
gas pains, bloated feeling, pants very tight, took a dose of Lyc 30c
and it eased up (started feeling things in stomach and pain and
Wed Dec 12 2007. Legs weak and sore when I got up. Still sore and knees
still won't bend but seem to be able to stand just a little better.
Thurs Dec 13 2007. Neck and shoulders sore today. Some back pain.
Seemed able to stand a little better till I hit my knee on a doorway
then I couldn't stand on that leg.
Sat Dec 15 2007. Went to see the Christmas lights last night. I'm
paying for it today, everything is sore, back, neck, legs, shoulders.
Was able to stand to get dressed today.
Sun Dec 16 2007. Very sore and weak when I got up. Ankles turning to
the point where I had trouble stepping because of the ankles turning
and not being able to bend knees. Time for remedy again 6 succussions).
Mon Dec 17 2007. Still sore and stiff. When I wake up in the morning I
tend to streach out and usually get a cramp in right calf. Did seem
better able to stand today.
Tues Dec 18 2007. Same as yesterday.
Wed Dec 19 2007. Trouble sleeping last night. Slept late and woke up
with a bit of a headache and pain around right shoulder blade. Was
still able to stand better. Legs still very stiff.
Thurs Dec 20 2007. Back not hurting as bad today. Could still stand
better than usual. Still kind of tired. Legs stiff and knees still
don't want to bend.
Sat Dec 22 2007. Feet were cold the last couple of nights. Bladder was
a little worse today stopping me from being able to take a nap for over
about an hour. Was still able to stand ok, was very sleepy all day.
Sun Dec 23 2007. Stomach cramps all day. Difficult to stand without
losing balance and ankles turning bad. Time for remedy again (7
Mon Dec 24 2007. Had a lazy day. Stomach still giving me trouble. Left
ankle a little better but right still turning.
Tues Dec 25 2007. Left knee gave out soon after getting up, seemed
better later on. Everything else pretty much the same.
Thurs Dec 27 2007. Had trouble going to sleep last night. Left leg
cramping when I got out of bed, couldn't hold weight. Once the cramp
went away it was better. Left hand cramped tonight. Took a dose of Mag
Fri Dec 28 2007. Always feel more tired when I wake up in the morning
than I did when I went to bed. Standing was no better or worse than
yesterday, Neck and shoulders have a lot of pain. Took a dose of Calc
Phos 30c, it helped a few years ago and much of it matches so I'm
testing it again.
Sat Dec 29 2007. Got up earlier today than usual. Didn't really notice
much else. Legs still very stiff and knees wouldn't bend. Will take
Calc Phos 2 more times unless I notice a substantial difference. Took
the second dose of Calc Phos.
Sun Dec 30 2007. Woke up at 9am this morning but went back to sleep.
Standing seemed to be maybe a little better. Left arm is sore near the
shoulder, right doesn't hurt as much as it had been. Took 3rd dose
Mon Dec 31 2007. Got up earlier than usual. Ankles weren't turning as
bad today but legs would twist when I would stand (a little better I
think). Now I wait and watch. Ate some wheat toast today and inside of
mouth feels like it has blisters, a dose of Nat Mur will hopefully
correct that. I seem to be sensitive to wheat or dark breads.