|There are many reasons for
this page. While
much information on Muscular Dystrophy on the Internet and various
places. I wanted to provide a place where much of that information
be located easily.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Ataxia. I have spent some time looking for information and possible
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
If you read as much as I
have from the
field you tend to lose hope of a treatment or cure.
My feelings are do as much as you can. I never accept
what the doctors tell me and I do things they say I can't do. My
younger brother never let his condition stop him as long as he could
keep going he did and attempted things even I didn't consider.
Do you have a poem or
I'm afraid there was no way to make this short as there
is lots of information here. Some may apply to many people and some
only to me. I have to make another point here...I use homeopathic
remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
asked the homeopath one
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
as soon as possible"
Didn't make much
headway this month.
Feb 2 2009. Right foot and leg cold last night, left was warm. Left
hand still hurts but I can at least see the knuckle a little. Ears
still ringing. Taking Plb Met tonight.
Thurs Feb 5 2009. Feet hurt last night. Left hand still hurts and ears
still ring. Loose cough is hanging on.
Fri Feb 6 2009. Legs very stiff last night. Couldn't bend knees when I
got up and felt very weak. Nose has felt plugged all day (a little
blood from right side). Left hand still hurts, right hand hurts at
times too. Taking Con tonight.
Sat Feb 7 2009. Slept late. Both hands hurt today and right shoulder
hurt to move it. Starting to feel depressed. Ears still ringing.
Sun Feb 8 2009. Slept late but felt tired all day. Right foot a little
cool last night. Both hands hurt all day again. Ears ringing loud.
Tues Feb 10 2009. Feet were warm but right foot felt very cold. Got up
earlier today. Hands still hurting and ears still ringing.
Wed Feb 11 2009. Right foot felt so cold last night it kept me awake,
foot was warm to touch. Very stiff and sore when I got up. Ears still
ringing and hands still hurt.
Fri Feb 13 2009. Slept late today. Had a sore stomach all day. Ears
ringing very loud. Stiff neck and pain in right shoulder when I reach
back. Left hand cramps when I use it plus the pain is still there.
Sat Feb 14 2009. Couldn't go to sleep last night so was up all night.
Was very tired and sleepy all day. Left hand still hurts and ears still
ringing loud. Sore stomach all day again. Feet seem to be swelling
Sun Feb 15 2009. Fell asleep pretty quick last night. Legs were
cramping when I woke up. Shoulders are sore and left hand still hurts.
Ears still ringing.
Mon Feb 23 2009. Not much has happened. Left hand still hurts and ears
ringing very loud. Legs very stiff and can't pick feet up.
Tues Feb 24 2009. Didn't sleep much last night. Ears still ringing
loud. Holding bladder was a problem all day. Starting to get a headache
in left eye tonight. Hit left knee earlier, hit it pretty hard. Took a
dose of Arnica right away and it feels much better. Left hand still
Sat Feb 28 2009. Can't seem to get good sleep. Wake up very stiff and
feels like a pressure headache in my eyes all the time. Ears ringing
very loud. Left hand still hurts (aching pain), difficult to use it for