About Muscular Dystrophy, Personal Log Jan 2008

There are many reasons for this page. While there is much information on Muscular Dystrophy on the Internet and various other places. I wanted to provide a place where much of that information could be located easily.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedrich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

If you read as much as I have from the conventional medical field you tend to lose hope of a treatment or cure.

My feelings are do as much as you can. I never accept what the doctors tell me and I do things they say I can't do. My younger brother never let his condition stop him as long as he could keep going he did and attempted things even I didn't consider.

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"

Jan 2008

Working with a remedy I used several years ago but in a higher potency. Made contact with a homeopath who has agreed to work with me. Suggested a remedy and I ordered it. Hopefully will have good news by next months post.

Tues Jan 1 2008. Mouth doesn't feel as blistered. Ankles still not turning too bad. Stomach still gets sore (gas pains?) Legs still stiff. Legs hurt in bed at night, couldn't get comfortable and woke up with a stiff neck and got a bit of a headache late in the day.

Wed Jan 2 2008. Couldn't go to sleep all night because of gas pain. I'll learn to avoid beans and such some day but I like them. Was tired all day from lack of sleep but ankles seem to be holding ok.

Thurs Jan 3 2008. Got up at a normal time today. Feet and legs felt cold in bed but I did go to sleep pretty fast. Ankles didn't turn as bad as usual today. Started getting a headache tonight (left eye).

Sun Jan 6 2008. Last 2 or 3 nights both feet and legs were cold when I went to bed. Left would warm up in a few minutes bur right stayed very cold for a long time. Starting to sleep late again (remedy wearing off?). Ankles turning bad last night (remedy wearing off?). Waking up with headaches (seems to be from neck). Last night was having dreams (first one I was walking down a long dark hallway, wasn't using a walker or anything, was getting very tired and having trouble picking feet up, had to work at it. Haven't been dreaming much for awhile but the way I was walking takes me back a few years). All in all I'm thinking I'll hold off on taking the remedy again and see what happens.

Mon Jan 7 2008. Both feet were cold to the touch last night but left wasn't bad, right felt so cold it hurt even though they felt the same when I would touch them. Could hold ankles today but right foot would turn. Had a lot of trouble going to sleep last night even though it was very late when I went to bed. Was starting to get a stiff neck and headache when I got up.

Wed Jan 9 2008. Feet felt warm to the touch last night but right foot hurt like it was cold. Bladder was full when I got up. Head hurt (sore feeling). Ankles turning bad today and feel sore all over. Back was hurting yesterday.

Fri Jan 11 2008. Feet didn't feel as cold to the touch last night but right foot hurt like it was in ice. Ankles were still a little better today. Balance still not good enough to stand without something to hold onto.

Sat Jan 12 2008. Hit my knee last night, still hurts. Woke up a couple of times and got up hurting and sore all over. Ankles were turning and balance wasn't good. Ordered Calc Phos LM1 to try. Will take 30C tonight.

Sun Jan 13 2008. Feet were warm to the touch last night and didn't hurt for a change. Still sore when I got up. Stomach was sore last night, had trouble going to the bathroom today. Slept late but was still sleepy and tired all day. Ankles didn't seem too bad, legs still weak and balance still bad.

Mon Jan 14 2008. Feet were warm to the touch last night. For a short time they had the sensation of being cold. Stomach hurt, pressure like I had to go to the bathroom, got up early in the morning and tried to go but couldn't. Stomach bloated with pain, constipated. Took a dose of Nux Vom 30 and went within an hour. Bladder has been bad but it seems to get worse from drinking Folgers coffee.

Tues Jan 15 2008. Feet were cold when I went to bed but they warmed up in a little while. They did still hurt like they were cold for an hour or so after they warmed up. Didn't want to get out of bed and felt tired all day. Stood up to pull pants up with nothing to hold onto. Couldn't manage it again the rest of the day. Shoulders still sore as well as some discomfort in my low back (left side).

Wed Jan 16 2008. Feet were cold last night when I went to bed. Left foot warmed up but right stayed cold and hurt. Couldn't sleep and was awake for a long time even though I was very tired. Got woke up early so I only got a couple hours sleep. Felt weak all day and had back pain up around right shoulder blade. Trying a dose of Arnica 30 for it tonight.

Thurs Jan 17 2008. Right foot was cold and left warm last night. Went to sleep without too much trouble but got up weak, tired, stiff neck, headache in left eye and pain in left shoulder blade, lasted all day and into the night. Have noticed one thing since I've moved to the country, my fingernails are growing, right hand is good, only thumb and index finger on left hand. The only thing I can think of that may have a bearing on that is I drink well water now (no flouride). This has happened over the last 3 years.

Fri Jan 18 2008. Right foot cold and left warm again last night. Legs weak when I got up today. Left ankle starting to turn again. Time for remedy again but am waiting for the higher potency to get here. If it doesn't get here tomorrow I'll take what I have.

Sat Jan 19 2008. Feet were ice cold and hurting last night. Left got warm to the touch after an hour or so but right was still like ice. Had trouble going to sleep because of it. Back pain all day today, first in right shoulder blade then it moved to low back on right side. Ankles were turning again. Calc Phos LM1 came today so I mixed it up in a 2oz dropper bottle, took 3 drops at 5 succussions at 3am.

Sun Jan 20 2008. Feet felt warm last night for the first time in a long time. Went to sleep pretty fast. Back hurt all day, mainly low back but some in shoulder blades too. Stomach sore all day with pressure. Legs felt pretty much the same. Will wait and see how feet feel tonight.

Mon Jan 21 2008. Left foot warm, right was a little cold but it warmed up pretty fast. Woke up with a cramp in left calf and a stiff neck with headache. Headache lasted all day. Ankles started turning again today. Stomach still bothering me, gas pains, bloating etc. Taking remedy again 3 drops at 6 succussions 2:30am.

Tues Jan 22 2008. Right foot was cold for awhile last night. Haven't noticed much difference in any other respect. Had a discussion today with a kinesiologist and while the results were unusual and not something I would normally consider I'll try it. Once a day for a month. I will watch things as I know when to stop if there is a big improvement or an aggravation. Not a routine I would reccomend to someone else, I'm willing to risk the aggravation even though I'm not looking forward to one. 6 succussions 3 drops.

Wed Jan 23 2008. Feet were the same last night. Did have a sore neck when I got up and feel a slight headache now. Not standing any better yet. 6 succussions 3 drops again tonight.

Thurs Jan 24 2008. Feet were like ice last night and hurt which kept me from going to sleep. I have noticed I have been holding bladder better. Legs felt pretty tight when I got up. Still having trouble standing (lose balance). 6 succussions 4 drops tonight.

Fri Jan 25 2008. Feet were cold when I went to bed, left warmed up in a little while but right stayed cold for awhile. Everything was pretty much the same. Woke up a couple of times during the night. Stomach bothered me some all day. 7 succussions 3 drops.

Sat Jan 26 2008. Left foot warm last night, right not as cold. Stiff neck and headache when I got up today. Still can't stand without something to hold on to. Stool dark, sticky and smelled sour, stomach was making noise before I went. 7 succussions 4 drops tonight.

Sun Jan 27 2008. Feet were warm when I got in bed, after a few minutes them seemed cold but not cold to the touch. Had some trouble getting to sleep again. Still having trouble standing and feet and legs get stiff and hurt at times. 8 succussions 3 drops tonight.

Mon Jan 28 2008. Feet were warm when I got in bed then right foot got cold (not as bad a usual). Got up a little earlier today but was sleepy all day. Everything else was the same. 8 succussions 4 drops tonight.

Wed Jan 30 2008. Had a terrible time going to sleep last night. Left foot warmed up but right stayed cold for a long time. Groin area itched and woke me up a couple of times. Kept turning over trying to get into a position where I could go to sleep. When I did finally get to sleep had a hard time waking up and getting out of bed. Legs were weak and I couldn't stand.
Have been talking to a homeopath and have another remedy to try. Ordered it tonight.

Thurs Jan 31 2008. Had trouble getting up today, very tired and arms and shoulders were sore and hurting. No change lately. Hopefully the remedy will get here soon.