|There are many reasons for
this page. While
much information on Muscular Dystrophy on the Internet and various
places. I wanted to provide a place where much of that information
be located easily.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Ataxia. I have spent some time looking for information and possible
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
If you read as much as I
have from the
field you tend to lose hope of a treatment or cure.
My feelings are do as much as you can. I never accept
what the doctors tell me and I do things they say I can't do. My
younger brother never let his condition stop him as long as he could
keep going he did and attempted things even I didn't consider.
Do you have a poem or
I'm afraid there was no way to make this short as there
is lots of information here. Some may apply to many people and some
only to me. I have to make another point here...I use homeopathic
remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
asked the homeopath one
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
as soon as possible"
a remedy I used several years ago but in a higher potency.
Made contact with a homeopath who has agreed to work with me. Suggested
a remedy and I ordered it. Hopefully will have good news by next
Jan 1 2008. Mouth doesn't feel as blistered. Ankles still not turning
too bad. Stomach still gets sore (gas pains?) Legs still stiff. Legs
hurt in bed at night, couldn't get comfortable and woke up with a stiff
neck and got a bit of a headache late in the day.
Wed Jan 2 2008. Couldn't go to sleep all night because of gas pain.
I'll learn to avoid beans and such some day but I like them. Was tired
all day from lack of sleep but ankles seem to be holding ok.
Thurs Jan 3 2008. Got up at a normal time today. Feet and legs felt
cold in bed but I did go to sleep pretty fast. Ankles didn't turn as
bad as usual today. Started getting a headache tonight (left eye).
Sun Jan 6 2008. Last 2 or 3 nights both feet and legs were cold when I
went to bed. Left would warm up in a few minutes bur right stayed very
cold for a long time. Starting to sleep late again (remedy wearing
off?). Ankles turning bad last night (remedy wearing off?). Waking up
with headaches (seems to be from neck). Last night was having dreams
(first one I was walking down a long dark hallway, wasn't using a
walker or anything, was getting very tired and having trouble picking
feet up, had to work at it. Haven't been dreaming much for awhile but
the way I was walking takes me back a few years). All in all I'm
thinking I'll hold off on taking the remedy again and see what happens.
Mon Jan 7 2008. Both feet were cold to the touch last night but left
wasn't bad, right felt so cold it hurt even though they felt the same
when I would touch them. Could hold ankles today but right foot would
turn. Had a lot of trouble going to sleep last night even though it was
very late when I went to bed. Was starting to get a stiff neck and
headache when I got up.
Wed Jan 9 2008. Feet felt warm to the touch last night but right foot
hurt like it was cold. Bladder was full when I got up. Head hurt (sore
feeling). Ankles turning bad today and feel sore all over. Back was
Fri Jan 11 2008. Feet didn't feel as cold to the touch last night but
right foot hurt like it was in ice. Ankles were still a little better
today. Balance still not good enough to stand without something to hold
Sat Jan 12 2008. Hit my knee last night, still hurts. Woke up a couple
of times and got up hurting and sore all over. Ankles were turning and
balance wasn't good. Ordered Calc Phos LM1 to try. Will take 30C
Sun Jan 13 2008. Feet were warm to the touch last night and didn't hurt
for a change. Still sore when I got up. Stomach was sore last night,
had trouble going to the bathroom today. Slept late but was still
sleepy and tired all day. Ankles didn't seem too bad, legs still weak
and balance still bad.
Mon Jan 14 2008. Feet were warm to the touch last night. For a short
time they had the sensation of being cold. Stomach hurt, pressure like
I had to go to the bathroom, got up early in the morning and tried to
go but couldn't. Stomach bloated with pain, constipated. Took a dose of
Nux Vom 30 and went within an hour. Bladder has been bad but it seems
to get worse from drinking Folgers coffee.
Tues Jan 15 2008. Feet were cold when I went to bed but they warmed up
in a little while. They did still hurt like they were cold for an hour
or so after they warmed up. Didn't want to get out of bed and felt
tired all day. Stood up to pull pants up with nothing to hold onto.
Couldn't manage it again the rest of the day. Shoulders still sore as
well as some discomfort in my low back (left side).
Wed Jan 16 2008. Feet were cold last night when I went to bed. Left
foot warmed up but right stayed cold and hurt. Couldn't sleep and was
awake for a long time even though I was very tired. Got woke up early
so I only got a couple hours sleep. Felt weak all day and had back pain
up around right shoulder blade. Trying a dose of Arnica 30 for it
Thurs Jan 17 2008. Right foot was cold and left warm last night. Went
to sleep without too much trouble but got up weak, tired, stiff neck,
headache in left eye and pain in left shoulder blade, lasted all day
and into the night. Have noticed one thing since I've moved to the
country, my fingernails are growing, right hand is good, only thumb and
index finger on left hand. The only thing I can think of that may have
a bearing on that is I drink well water now (no flouride). This has
happened over the last 3 years.
Fri Jan 18 2008. Right foot cold and left warm again last night. Legs
weak when I got up today. Left ankle starting to turn again. Time for
remedy again but am waiting for the higher potency to get here. If it
doesn't get here tomorrow I'll take what I have.
Sat Jan 19 2008. Feet were ice cold and hurting last night. Left got
warm to the touch after an hour or so but right was still like ice. Had
trouble going to sleep because of it. Back pain all day today, first in
right shoulder blade then it moved to low back on right side. Ankles
were turning again. Calc Phos LM1 came today so I mixed it up in a 2oz
dropper bottle, took 3 drops at 5 succussions at 3am.
Sun Jan 20 2008. Feet felt warm last night for the first time in a long
time. Went to sleep pretty fast. Back hurt all day, mainly low back but
some in shoulder blades too. Stomach sore all day with pressure. Legs
felt pretty much the same. Will wait and see how feet feel tonight.
Mon Jan 21 2008. Left foot warm, right was a little cold but it warmed
up pretty fast. Woke up with a cramp in left calf and a stiff neck with
headache. Headache lasted all day. Ankles started turning again today.
Stomach still bothering me, gas pains, bloating etc. Taking remedy
again 3 drops at 6 succussions 2:30am.
Tues Jan 22 2008. Right foot was cold for awhile last night. Haven't
noticed much difference in any other respect. Had a discussion today
with a kinesiologist and while the results were unusual and not
something I would normally consider I'll try it. Once a day for a
month. I will watch things as I know when to stop if there is a big
improvement or an aggravation. Not a routine I would reccomend to
someone else, I'm willing to risk the aggravation even though I'm not
looking forward to one. 6 succussions 3 drops.
Wed Jan 23 2008. Feet were the same last night. Did have a sore neck
when I got up and feel a slight headache now. Not standing any better
yet. 6 succussions 3 drops again tonight.
Thurs Jan 24 2008. Feet were like ice last night and hurt which kept me
from going to sleep. I have noticed I have been holding bladder better.
Legs felt pretty tight when I got up. Still having trouble standing
(lose balance). 6 succussions 4 drops tonight.
Fri Jan 25 2008. Feet were cold when I went to bed, left warmed up in a
little while but right stayed cold for awhile. Everything was pretty
much the same. Woke up a couple of times during the night. Stomach
bothered me some all day. 7 succussions 3 drops.
Sat Jan 26 2008. Left foot warm last night, right not as cold. Stiff
neck and headache when I got up today. Still can't stand without
something to hold on to. Stool dark, sticky and smelled sour, stomach
was making noise before I went. 7 succussions 4 drops tonight.
Sun Jan 27 2008. Feet were warm when I got in bed, after a few minutes
them seemed cold but not cold to the touch. Had some trouble getting to
sleep again. Still having trouble standing and feet and legs get stiff
and hurt at times. 8 succussions 3 drops tonight.
Mon Jan 28 2008. Feet were warm when I got in bed then right foot got
cold (not as bad a usual). Got up a little earlier today but was sleepy
all day. Everything else was the same. 8 succussions 4 drops tonight.
Wed Jan 30 2008. Had a terrible time going to sleep last night. Left
foot warmed up but right stayed cold for a long time. Groin area itched
and woke me up a couple of times. Kept turning over trying to get into
a position where I could go to sleep. When I did finally get to sleep
had a hard time waking up and getting out of bed. Legs were weak and I
Have been talking to a homeopath and have another remedy to try.
Ordered it tonight.
Thurs Jan 31 2008. Had trouble getting up today, very tired and arms
and shoulders were sore and hurting. No change lately. Hopefully the
remedy will get here soon.