| There are many reasons for
this page. While
there is
much information on Muscular Dystrophy on the Internet and various
other
places. I wanted to provide a place where much of that information
could
be located easily.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Friedrich's
Ataxia. I have spent some time looking for information and possible
treatments
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
email me
If you read as much as I
have from the
conventional medical
field you tend to lose hope of a treatment or cure.
My feelings are do as much as you can. I never accept
what the doctors tell me and I do things they say I can't do. My
younger brother never let his condition stop him as long as he could
keep going he did and attempted things even I didn't consider.
Do you have a poem or
story? Send
it here
I'm afraid there was no way to make this short as there
is lots of information here. Some may apply to many people and some
only to me. I have to make another point here...I use homeopathic
remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
I
asked the homeopath one
day who
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
homeopath
as soon as possible"
Jan 2009
Was having trouble
with a cold. Hurt finger. Didn't make much headway this month.
Thurs
Jan 1 2009. Right foot was a little cool last night but it didn't burn.
Had to keep turning over to ease the leg pain. Very stiff when I got
up, stiff neck and headache. Ears still ringing loud. Left foot jerking
tonight. Taking Con tonight.
Fri Jan 2 2009. Right foot cold last night but not painful. Went to
sleep a little faster. Bladder has been a problem all day, seemed to be
full constantly. Neck was stiff all day and kept getting a slight
headache in left eye. Ears ringing. Gas pains tonight but kind of
constipated.
Sat Jan 3 2009. Lay down on the couch last night rather than going to
bed. Feet hurt and I kept waking up with an electric sensation in my
neck and head. Ears ringing very loud. Have had the bladder problem for
a couple of day and found out today that my wife has been using Folgers
coffee recently and that brand will run me to the bathroom whenever I
drink it. Left foot started hurting tonight (feels like shoe is tight
and foot burns).
Mon Jan 5 2009. Stayed up all night, everything hurt. Legs very weak
today. Ears still ringing. Bladder still a problem today (still same
reason). Hands started cramping again today. Taking Plb Met tonight.
Tues Jan 6 2009. Feet felt cool and to touch was the same. Legs were
kind of cold. Have a sore on my tail bone that is very sore. Bladder
was
a little better. Stomach is very sore.
Wed Jan 7 2009. Feet were a little cool last night. Woke up with an
electric like sensation in my neck and head in the middle of the night.
Had a really strange dream just before waking up this morning. Bladder
has been better. Ears ringing louder than ever. Legs and feet have hurt
some today. Stomach has been sore.
Thurs Jan 8 2009. Feet felt cold last night and hurt. Couldn't get
comfortable. Neck was stiff when I got up. Bladder was full all day,
urinating frequently. Ears ringing loud.
Fri Jan 9 2009. Right leg and foot cold last night, left was warm.
Tossed and turned all night (sun was coming up was the last thing I
remember). Right leg and foot hurt when I would turn on left side and
right shoulder hurt when I turned on right side. Nose has been plugged
with a bad taste in mouth. Ears ringing loud.
Sat Jan 10 2009. Feet were warm enough last night. Lightheaded all day,
dizzy and sinus problems. Got a pain in left temple a couple of times.
Ears still ringing.
Mon Jan 12 2009. Couldn't sleep last night. Getting a sore throat today
with burning in right nostril. Ears ringing loud. Taking Con tonight.
Fri Jan 16 2009. Cold got really bad. Nose plugged up, head hurts. eyes
get sore, dizzy and tired all the time. Jammed finger on left hand
causing pain and swelling. Having trouble sleeping even though I'm
extremely tired. Cold is just now starting to ease up. Have to change
remedies as symptoms change.
Sun Jan 18 2009. Cold is maybe a little better, wake up with a stiff
neck and headache, eyes get sore and am still very tire with a
persistent cough. Ears ringing very loud. Swelling a little better on
left hand and a little less pain after taking some Arnica Fri Night.
Last night right foot was warm and left was like ice (just the opposite
of what it normally is).
Wed Jan 21 2009. Still have the cough. Nose runs frequently and some
sneezing. Ears still ringing loud.
Fri Jan 23 2009. Slept on the couch last night. Feet hurt all day after
left hand hurting all night. Took a dose of Con last night. Still
plugged up all the time. I can breathe through my nose some now at
least. Ears still ringing loud.
Mon Jan 26 2009. Feet were ok last night. Still have stuffed up nose.
Ears still ringing loud.
Wed Jan 28 2009. Right foot was a little cold to the touch last night,
left was warm. Woke up with a lot of congestion and a headache in base
of skull. Left hand still hurts. Tired and sleepy all day. Ears still
ringing. Taking Arn for the pain and swelling of hand.
Thurs Jan 29 2009. Slept on couch last night. Left hand hurt pretty
bad. Had to cut my ring off today because of the swelling. Ears still
ringing.
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