About Muscular Dystrophy, Personal Log July 2008

There are many reasons for this page. While there is much information on Muscular Dystrophy on the Internet and various other places. I wanted to provide a place where much of that information could be located easily.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedrich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

If you read as much as I have from the conventional medical field you tend to lose hope of a treatment or cure.

My feelings are do as much as you can. I never accept what the doctors tell me and I do things they say I can't do. My younger brother never let his condition stop him as long as he could keep going he did and attempted things even I didn't consider.

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"

July 2008

Have been taking Merc and Sul as an intercurrent for feet swelling. Swelling has improved.

Wed July 2 2008. Left ankle felt sore on outside edge where it laid om the bed. Very tired all day with gas but unable to have a good stool. Right knee hurt for a while tonight. Left foot jerked some. Started getting a headache today from the sun.

Thurs July 3 2008. Pretty stiff and sore when I got up today. Left leg weak and sore when I would stand, right ankle turning. Left leg hurt with feet burning (feet swelled). Very sleepy all day.

Sat July 5 2008. Covers felt heavy on legs last night. Left hand cramped yesterday. Legs weak, difficult to stand. Left foot hurts today and has been jerking. A bit of a headache on left side of head from the humidity. Feet swelled yesterday and today. Lips feel like they are going to blister. Forgot to take Merc last night so am taking it tonight.

Tues July 8 2008. Took Sul last night. Feet and legs were cold last night. Had to get up every couple of hours to urinate. Have had gas pains and frequent runny stools for a couple of days, still get the gas pains but stools are better today. Left foot is burning tonight.

Thurs July 10 2008. Had to have a stool before I could go to bed last night, went 3 times today but at least it isn't watery now. Left leg hurts when I stand and feels very weak. Left foot jerking tonight. Ears have never stopped ringing.

Fri July 11 2008. Legs weak today (left worse). Feet swelled a little while after I got up (left worse), right ankle turning bad, felt like left was too swollen to turn. Got overheated in the car again and developed a headache in left eye from it. Kept feeling like there is something in my left ear and ears are still ringing. Taking Merc tonight.

Sat July 12 2008. Still wore out from getting too hot yesterday. Still have the headache in left eye (sinus?), ears still ringing (sinus?). Legs have been hurting lately and ankles turning, can't pick feet up. Stomach keeps getting sore.

Sun July 13 2008. Everything hurt today, feet, legs, arms, neck. Ears still ringing. Have been getting lightheaded whenever I stand.

Mon July 14 2008. Feet didn't feel too cold when I touched them last night but had the sensation of being cold as ice, they hurt. Legs hurt today and left leg still very weak. Ears still ringing. Stomach pressure and gas today with constipation. Taking Sul tonight.

Tues July 15 2008. Trouble holding bladder last night (kept leaking). Legs were so weak when I got out of bed they wouldn't hold my weight. Seemed like things were a little worse but it settled down late in the day. Will see if it continues to improve.

Fri July 18 2008. Feet have hurt some. Left leg still pretty weak and ears still ringing. Got hot in the car again and have been very tired since. Taking Merc tonight.

Sat July 19 2008. Turned over in bed last night and back cracked about 3 times. Feet had sensation of being cold and covers felt heavy. Took a long time to go to sleep then slept late. Wanted to sleep all day. Ears ringing and feet kind of hurt.

Tues July 22 2008. Feet got ice cold after going to bed last night, kept me awake and legs and feet hurt. Finally fell asleep this morning. Ears were ringing louder than usual yesterday. Ate some chips late today and had stomach problems tonight (rumbling, stool was just foamy water (almost clear)). Sore spot in back of neck neck, right side. Left hand cramped some tonight. Feet haven't been swelling as bad. Taking Sul tonight.

Fri July 25 2008. Left foot had sensation of burning around the front of foot with pain. Last couple of nights right foot feels cold while left feels warm. Stomach still sore but not as bad. Back was hurting when I went to bed last night. Can't pick feet up today and neck is stiff with a slight headache. Taking Merc tonight.

Wed July 30 2008. Feet were ok last night but the night before they were ice cold to the point where they hurt. Have been having trouble falling asleep then can't wake up in the morning. Seems when I start sweating I can't stop. Legs jerk at times mainly from left foot. Arms have been itching bad. Nose keeps running. Feet haven't been swelling as bad.