|There are many reasons for
this page. While
much information on Muscular Dystrophy on the Internet and various
places. I wanted to provide a place where much of that information
be located easily.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Ataxia. I have spent some time looking for information and possible
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
If you read as much as I
have from the
field you tend to lose hope of a treatment or cure.
My feelings are do as much as you can. I never accept
what the doctors tell me and I do things they say I can't do. My
younger brother never let his condition stop him as long as he could
keep going he did and attempted things even I didn't consider.
Do you have a poem or
I'm afraid there was no way to make this short as there
is lots of information here. Some may apply to many people and some
only to me. I have to make another point here...I use homeopathic
remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
asked the homeopath one
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
as soon as possible"
Left foot still
gives me some problems with swelling etc. I am working on it with some
June 2 2008. Feet were warm but right foot had sensation of being cold
last night. Stomach was extremely sore when I went to bed. Seem to be
very sore and legs feel weaker. Ears still ringing. Seem to be having
an aggravation so I'm stopping the Merc for a little while.
Tues June 3 2008. Feet were ok last night other than they hurt some and
I couldn't get comfortable. Legs were pretty weak when I got up and I
was sore and weak all over. Ears still ringing. No remedy.
Wed June 4 2008. Feet were ok last night. Went without shoes for awhile
today and feet got very cold and I had to put shoes on. Have no energy
today and legs are very weak. Can't move feet when I stand. Ears
ringing very loud. No remedy.
Thurs June 5 2008. No change for the better today, legs may have been a
little weaker and emotionally a little worse. Constipated but at least
stomach isn't too sore. No remedy.
Fri June 6 2008. Right foot was just a little cool last night. Got up
to urinate twice. Sore all over and legs so stiff I can't move when I
stand. No ambition (just can't seem to get myself to do my work). Was
very hot here today and felt like the heat and sun was giving me a
headache. Very tired and sleepy all day. Taking the Merc tonight.
Sat June 7 2008. Feet were ok last night. Right hand was cramping
before bed, still feel the effects of it. Right ankle was cramping when
I woke up. Couldn't motivate myself to do anything all day, I did try.
Legs still stiff and weak and ears ringing. Both feet jerking tonight
and left hurts a little. Won't take Merc again till at least next
Friday. Got very emotional tonight for no reason.
Tues June 10 2008. Feet were warm last night, kind of felt like they
were burning. Today they are swelled and burning again. Have been
getting up earlier and get very sleepy in the evening. It has been hot
here and I start getting a headache if I'm in the heat for extended
periods. Not sure because it is very minimal but maybe my legs are a
little stronger. Taking a dose of Nat Mur tonight because it feels like
I'm getting a sore on my lip.
Wed June 11 2008. Feet were warm with sensation of being cold last
night. Never got the sore on my lip (I think because I took Nat Mur in
time). Woke up with sore neck and headache today, was also very stiff
and legs were weak. Sinuses seem bad leaving a bad taste in mouth. The
feeling that legs may be a little stronger is gone. Legs sore when I
stand. Ears still ringing very loud.
Thurs June 12 2008. Right foot felt a little cool last night. Stomach
cramps and had to go to the bathroom before going to bed, then as soon
as I got up today. It was so hot today that I couldn't stop sweating
and left foot is swelled and hurting plus both hands have been
cramping. Ears still ringing.
Sat June 14 2008. Took Merc last night. Feet were swollen bad yesterday
(still are today), left foot much worse (red, tight and hurts to touch
top of foot), when I stand left leg is sore from foot up the back of my
leg. Right foot not swollen as bad and doesn't hurt to touch it. Seems
to have gotten worse since I got so hot Thursday. At night when I check
left foot feels warm, right feels cooler. Got up with a stiff neck and
headache again, yesterday the headache was in right eye, today was left
eye. Ears ringing loud, rained all day and humidity is up so that could
explain the congestion and eyes hurting. Taking a dose of Calc Carb
Sun June 15 2008. Left foot still swollen (hasn't bothered me as bad
today). Has been something of a down day, no ambition, felt sad most of
the day. Ankles turn when I stand and ears still ringing. Back hurt for
awhile today (right side, felt like it went straight through to ribs).
My homeopath suggested Sul 30c for swelling.
Mon June 16 2008. Feet felt warm last night. All I had was Sul 200c so
that is what I took. Left foot was still swollen a little when I got
up, right seemed okay. Sore when I got up and head had an electric
sensation when I sat up. Was dreaming while I was about half asleep
this morning, the main thing I remember about them is my legs were
strong and I could climb stairs fast. Ears ringing.
Tues June 17 2008. Took a second dose of Sul 200c before bed. Couldn't
sleep last night because feet felt ice cold. Feet have been painful,
burning sensation today. Not taking Sul again as that may be why. Very
tired today and ears ringing.
Wed June 18 2008. Woke up about 6:30AM with left calf cramping bad,
slept late after going back to sleep. Right leg cramped when I was
putting leg into pants getting dressed. Stiff neck and headache when I
woke up. Ankles turning (worse on right side). Left foot wasn't swelled
as bad, it did swell after being up for awhile and got a pain on
outside edge. Late in the evening feet started burning. Ears still
Thurs June 19 2008. Feet were ok last night but the covers did feel
heavy on feet and legs. Feet were only a little swelled when I got up.
Feet didn't hurt much all day. Ears still ringing. Just a hint of a
headache on right side tonight.
Fri June 20 2008. Feet were ok last night. Had to get up to urinate
about 2 hours after going to bed. Feet were swelled a little when I got
up but not too bad. Neck and head had electric sensation when I got up.
Ears ringing a little louder today. Arms have been itching today.
Taking Merc tonight.
Wed June 25 2008. Haven't felt well for 3 days now. Got very hot Monday
in the car, neck hurt, head hurt and couldn't stop sweating. Neck and
headache hasn't went away since. Kept waking up last night, went to bed
and got up in one hour, then 2 hours after that then 3 hours after
that, so I just got up. Get dizzy from standing or even moving. Stomach
has felt like there is a ball of something in it. Had a stool yesterday
but haven't been able to go since even though I feel constant pressure
and gas pains. Ears ringing louder. Mood very down today.
Thurs June 26 2008. Still have the headache and neck stiffness today
(not quite as bad), dizzy when I stand or move my head and ears still
ringing loud. Stomach feels a little better. Made it about six hours
before waking up last night, just stayed up when I did as head was
hurting and I feel worse when I wake up than I did before bed. Mood a
Fri June 27 2008. Made it through the night without having to get up.
Stiff neck and headache when I woke up (did get a little better after I
was up for awhile). Always feel more tired when I get up than I did
when I went to bed. Left foot a little swollen and sore, right foot was
okay. Feet swelled today and hurt because of it. Merc tonight.
Sun June 29 2008. Feet were a little cold last night (mainly right).
Feet swollen today. Neck was better and headache was better. Feet hurt
from the swelling all day. Took a nap and relaxed more than I do at
night. Taking Sul tonight.