|There are many reasons for
this page. While
much information on Muscular Dystrophy on the Internet and various
places. I wanted to provide a place where much of that information
be located easily.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Ataxia. I have spent some time looking for information and possible
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
If you read as much as I
have from the
field you tend to lose hope of a treatment or cure.
My feelings are do as much as you can. I never accept
what the doctors tell me and I do things they say I can't do. My
younger brother never let his condition stop him as long as he could
keep going he did and attempted things even I didn't consider.
Do you have a poem or
I'm afraid there was no way to make this short as there
is lots of information here. Some may apply to many people and some
only to me. I have to make another point here...I use homeopathic
remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
asked the homeopath one
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
as soon as possible"
Mar 1 2008. Feet were warm to the touch last night but right foot had
the sensation of being cold to the point of hurting (recent symptom
returning). Got up with a tight spot in neck, sinuses plugged and a
very bad taste in mouth, headache late in the day (continuing symptom).
Left leg hurt while sitting all day (continuing symptom).
Sun Mar 2 2008. Feet warm last night (continued improvement). Got up
with another headache and stiff neck (continuing symptom). Felt
lightheaded all day with a tendency to be irritable. Kind of down in my
mood. Knees still won't bend. Shoulders and upper arms very sore.
Taking Bell tonight.
Mon Mar 3 2008. Feet warm last night (continued improvement). Neck felt
better when I got up. Bladder was difficult to hold. Groin area sweaty
and sore. Got headache in right eye late tonight. Stomach felt empty
most of the day. Ankles still turn when I stand (worse without shoes)
and knees still won't bend. Balance bad when I stand.
Tues Mar 4 2008. Feet were still warm last night (continued
improvement). When I sat up this morning had an electric sensation in
neck and head on the left side (returning symptom). Ankles are turning
worse again, mostly left (returning symptom). Upper arms still sore
(continuing symptom). Knees still won't bend and very difficult to
stand (continuing symptom).
Wed Mar 5 2008. Feet were ok last night (continued improvement).
Bladder was a little more difficult to hold early in the day, improved
later. Still difficult to stand because of the weak ankles and stiff
knees. Taking the Bell tonight.
Thurs Mar 6 2008. Feet were a little cold last night (a little worse).
Bladder difficult to hold again when I got up (same as yesterday).
Right leg was jerking when I woke up (worse than usual). Stool was
difficult (little balls). Left foot hurts (bottom of foot just behind
toes). Calc Carb 6C came today, will start on it tomorrow.
Fri Mar 7 2008. Feet same as yesterday (no change). Bladder a little
better today. Left hand felt like it was cramping a couple of times.
Stomach making gurgling noise and have some burning pressure. Can't
seem to put left foot flat, the ankle turns. Taking the Calc Carb
Sat Mar 8 2008. Feet warm last night, the right foot had the sensation
of being cold but it wasn't. Urgent stool after I had been in bed with
the feeling of a knot in my stomach, ended up being very loose. About
an hour later had to get up to urinate. Had trouble going to sleep.
Today legs were hurting. Taking Calc Carb again tonight.
Sun Mar 9 2008. Feet were warm last night. Feet looked swollen today.
Stool was still loose today but a little better than last night. Feel
asleep for awhile today. Woke up dreaming this morning, was in a very
stressful situation but the main thing I remember was I was strong and
could walk well. Knees still difficult to bend today. Knees popped in
bed last night, they had stopped doing that recently but the impression
I get is I'm starting to loosen up a little. Taking Calc Carb again
Mon Mar 10 2008. Feet were warm last night. Had a stool just before
going to bed, with stomach cramps, loose but a little better each time
I go. Woke up dreaming again this morning but can't really remember
much about it. Knees still hard to bend. Knees popped again in bed. I
think I caught a cold from my grandchildren. Taking Calc Carb again.
Tues Mar 11 2008. Feet were ok last night. The cold caught on through
the night (I was hoping the Calc Carb would help). Today not taking it
or the Bell. Symptoms of the cold/flu: Most symptoms in head on left
side, plugged up left side, discharge clear to a slight yellow tint.
Burning feeling in nose, gums sore on left side and a little in throat.
Sore above eye on left side. Stiff neck, left side at base of skull.
Wed Mar 12 2008. Cold was bad all night, couldn't sleep, nose
alternating between being plugged up and running. Had to keep getting
up to urinate. Head was sore, sinuses so bad cheekbones looked swollen,
worse on left side. Today I keep sneezing and feel raw in chest, head
feels heavy. Have some congestion in chest, when I cough it comes up in
lumps at times a very light yellow color. Sore all over, legs really
Thurs Mar 13 2008. Feet were warm last night. Slept a little better
(only woke up one time). Leaned forward this morning and kept going,
couldn't stop the fall. Cold still bad. Taking Ars for it. Ears still
ringing, nose running, head plugged up, chest a little raw, irritable
and tired. Holding off on other remedies till the cold is better.
Fri Mar 14 2008. Feet were warm last night. Slept through the night.
Had a reasonable stool this morning but a problem late today, very
loose. The cold is a little better, not as much drainage and swelling
around eyes is a little better. I'm thinking that maybe some of the
stuff that's happening is a release of toxins. Still taking the Ars but
infrequently now. Ears still ringing and got light headed earlier
Sun Mar 16 2008. Didn't go to bed Fri night and slept about 13 hours
last night. Quite a bit of congestion today and a tickle in my throat
causing some coughing, ears ringing very loud and legs sore. Haven't
taken Ars today.
Mon Mar 17 2008. Feet were a little cold last night. Stool is a little
more normal. Cold seems better other than a bit of a loose cough and
some congestion but that is normal for this time of the year. Legs and
feet have hurt all day and legs are sore. Ears ringing very loud. Going
back on remedies tonight Bell tonight (5 succussions).
Tues Mar 18 2008. Feet were only a little cool last night. Ears still
ringing and still have some congestion. Cough is a little better. Feet
and legs still hurt some today but not as bad as yesterday. No remedy
today, go back to Calc Carb tomorrow.
Wed Mar 19 2008. Feet were ok last night. Ears still ringing. Legs and
feet still hurt a little. Still some congestion, cough isn't bad. Go
back to Calc Carb tonight (5 succussions).
Thurs Mar 20 2008. Feet were warm last night but had the sensation of
being cold. Stomach started hurting in bed last night, had a pretty
normal stool today and stomach pain eased up afterward. Legs very stiff
and sore today, still have some congestion. Taking Calc Carb again (5
Sat Mar 22 2008. Having trouble sleeping again because feet and legs
hurt at night. I think it's because feet have been swelling. Legs hurt
bad when getting out of the car and when I'm sitting. Taking Calc Carb
again (5 succussions).
Sun Mar 23 2008.Feet felt warm last night. Knees popped quite a bit
when I bent legs. Ears ringing loud today. Legs not hurting as bad
today. No remedies today, take the Bell tomorrow.
Mon Mar 24 2008. Feet warm last night (continued improvement). Covers
felt heavy on feet and legs (no change). Legs didn't hurt much today
but when I would stand they were sore, upper leg in back (possible
improvement). Frequent urination (possible return of symptom). Upper
arms sore (no change). Taking Bell tonight.
Tues Mar 25 2008. Feet were cold last night (return of symptom). Legs
still sore when I stand (same). No remedy today.
Wed Mar 26 2008. Feet just a little cool last night (some improvement
from yesterday). Legs very weak and ankles turning again (possible
return of symptom). Urge to stool but constipated so far today (common
symptom). Ears ringing (common). Woke up dreaming (fairly unusual so
classify it as new). Urgent stool late in the day, stomach made noise.
Left foot swelled with pain. Taking Calc Carb (6 succussions).
Thurs Mar 27 2008. Feet were warm but hurt all night like they were
cold. Covers heavy on feet and legs, big toe on right foot hurt (felt
like toe was pulling up). Had trouble going to sleep. Tired all day,
pressure around eyes and pressure at base of skull. Feet are swollen
and keep getting sharp pain in bottom of feet. Calc Carb tonight (6
Fri Mar 28 2008. Feet were warm last night but have still been hurting.
Had the headache from last night 2 doses of Silica helped. Busted knee
pretty good on a doorway, pain was pretty bad Arnica helped. Mood has
been kind of depressed but have forced myself to work on some things.
Feet still hurting tonight. Taking Calc Carb (6 succussions).
Sat Mar 29 2008. Feet were warm last night. Got up very sore all over
today, legs, shoulders and arms. Knee wasn't too bad, a little sore to
the touch but that was expected. Neck is starting to hurt with pain in
left eye. Gas pains in stomach with pressure. Calc Carb tonight (6
Sun Mar 30 2008. Feet were when I went to bed but got very cold after
being under the covers for a little while, which kept me awake for
awhile. Sore all over again today. When I eat my stomach starts giving
me trouble within an hour or so. Ankles were turning worse again today
and legs very stiff. Left leg and foot hurts after riding in the car
from sitting. Stopping remedies to see if maybe I'm experiencing an
Mar 31 2008. Feet warm last night. Sore all over when I got up. Could
watch my feet swell today, they haven't hurt as bad but legs are sore
and stiff. Still no remedy.