|There are many reasons for
this page. While
much information on Muscular Dystrophy on the Internet and various
places. I wanted to provide a place where much of that information
be located easily.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Ataxia. I have spent some time looking for information and possible
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
If you read as much as I
have from the
field you tend to lose hope of a treatment or cure.
My feelings are do as much as you can. I never accept
what the doctors tell me and I do things they say I can't do. My
younger brother never let his condition stop him as long as he could
keep going he did and attempted things even I didn't consider.
Do you have a poem or
I'm afraid there was no way to make this short as there
is lots of information here. Some may apply to many people and some
only to me. I have to make another point here...I use homeopathic
remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
asked the homeopath one
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
as soon as possible"
Injured left foot so
dealing with that set me back some on the main things. Started new
remedy after foot improved.
May 1 2008. Hurt left foot today, don't know for sure if it's broken or
not, can't put weight on it. Took Arn 30c, take it whenever the pain
returns. Don't notice other symptoms during this time.
Sat May 3 2008. Left foot warm last night, right felt a little cold
after being in bed for awhile. Woke up a couple of times but pain
wasn't too bad. Pain started again after getting up from putting foot
down. Arn helps the pain, take Ruta about once a day and down to taking
the Arn about 3 times a day now.
Sun May 4 2008. Feet were warm last night, right foot had sensation of
being cold. Foot got sore a couple of times today but I made it most of
the day without Arn. Spent the day outside in the sun. Neck is stiff
and ears ring. Stools are easier and holding bladder okay.
Mon May 5 2008. Feet were warm, right a little cooler and had sensation
of being cold. Took Ruta this morning and made it all day without Arn.
Have a kink in back of neck. Taking Arn tonight before bed. Ears still
ring. Didn't have a stool today. Have some soreness but the Arn should
Tues May 6 2008. Feet were warm last night, right still had sensation
of being cold. Made it all day without Arn. Foot did jerk a couple of
times and start hurting. Starting to get a headache tonight. Ears still
Thurs May 8 2008. Foot still bruised and hurting more today than it had
been. Ears still ringing.
Fri May 9 2008. Feet were warm last night, right had sensation of being
cold. Neck hurting during night and had a headache when I got up that
never went away all day. Ears ringing louder than usual. Foot has hurt
quite a bit today, Arn didn't seem to help as much so switched to Ruta,
took it 3 times.
Sat May 10 2008. Feet were warm last night. Ears still ringing. Left
foot hurt some today till I put regular shoes on, seems to hurt more
when I'm not wearing shoes. Took Ruta once today and will take it again
before going to bed.
Tues May 13 2008. Left foot hurt a couple of times today. Haven't taken
a remedy since Sat, will wait till the weekend and start Merc V. Hands
were cramping tonight. Sore spot in back today around right shoulder
blade. Ears still ringing.
Wed May 14 2008. Left foot hurt a couple of times again today but I
won't take anything till I can start on my next remedy. Ears ringing.
Can't really tell much about ankles turning etc where I haven't been
standing as much with the foot injury. Left foot and ankle does seem to
be swelled still.
Thurs May 15 2008. Right foot was a little cool last night, left warm.
Left foot hurts every so often but I can deal with that. Ears still
ringing. Taking the Merc tonight.
Fri May 16 2008. Feet seemed ok last night. Woke up earlier than usual
today. Ears still ringing. Started working on standing more today,
ankles didn't turn too bad but right foot would turn (have to work on
keeping it straight). Left leg did seem weak but I haven't been
standing much. Taking Merc again tonight.
Sat May 17 2008. Feet were warm last night but legs were cold. Over did
it today, riding ATV and working in the yard. Legs and arms got very
sore, legs hurt and feet wouldn't move. Stomach got sore. Ears hurt
from the wind when I was riding. Left calf was cramping when I got up
today. Ears ringing even louder than usual. Taking Merc again tonight.
Sun May 18 2008. Feet were warm last night. Left calf cramping again
when I got up. Ate some chips last night and today, tongue feels
blistered along left side front half and a spot on tip plus feels like
a blister on inside of lower lip, left side. Stomach sore today, loose
stools (I think it's mainly from eating the chips), I know I should
avoid them but I do like them. Still sore today but a little less than
yesterday. Ears still ringing loud. Merc again tonight.
Mon May 19 2008. Left foot warm, right a little cool last night, legs a
little cold. Ears ringing. Legs stiff. Stomach has been extremely sore
since last night, constipated for the most part, watery stool when I
could go. Merc again.
Tues May 20 2008. Right foot a little cool last night. Had to get up 3
times to urinate and had trouble sleeping. Legs stiff today and feet
started feeling hot late in the day. Ears ringing. Finally had a
reasonable stool and stomach isn't as sore. Merc again.
Wed May 21 2008. Feet were warm last night. Made it all night without
getting up to urinate. Had a stool soon after I got up. Left ankle
turned when standing today. Worked in the yard today so I'm sore.
Everything seems to be left sided today, headache for a little while,
knee pain, ankle turning. Ears ringing. Merc again.
Fri May 23 2008. Left foot warm, right a little cooler but was ok. Got
up twice to urinate. Constipated today. Ears ringing and legs still
stiff. Was sore yesterday from working in the yard but it's better
today. Still can't pick feet up and right ankle turns worse than left.
Have been down and have trouble going to sleep. Merc again.
Sat May 24 2008. Feet were ok last night. Trouble going to sleep again.
Legs very weak when I got up, didn't feel like I could stand, left leg
hurts up in the hip when I stand. Ears ringing still. Had a couple of
hours depression today, worried and sad feeling. Merc again.
Tues May 27 2008. Feet were ok last night. Very stiff and sore all over
today. Stomach hurt after eating, gas pains with gurgling noises. Neck
is a little stiff and some low back pain. Ears still ringing and stiff
almost impossible to pick feet up. Merc again.
Wed May 28 2008. Feet ok last night. Made it all night without having
to get up. Frequent urination today. Ears still ringing and legs stiff
and sore, ankles turned at tomes but not as bad as it used to be. Merc
Thurs May 29 2008. Both feet had sensation of being cold to the point
of pain mainly around toes, right was actually cold. Legs were cold
also. Sore in my left eye and the side of my head last night making it
difficult to lay in one position. Ears still ringing and legs stiff.
Fri May 30 2008. Feet seemed ok last night. Legs still stiff, ears
ringing. Still can't seem to pick feet up. Turned my head this morning
and got a burning pain in my neck (pinched nerve) burned for awhile and
neck is still sore tonight. Merc again.