|There are many reasons for
this page. While
much information on Muscular Dystrophy on the Internet and various
places. I wanted to provide a place where much of that information
be located easily.
Let me make it perfectly
clear that I
am neither a doctor or any other type of health care professional.
My only knowledge comes from the fact that I have a form of MD called
Ataxia. I have spent some time looking for information and possible
which I will share with anyone here.
I invite anyone to share
any knowledge they
may have with
visitors to this site. Simply
If you read as much as I
have from the
field you tend to lose hope of a treatment or cure.
My feelings are do as much as you can. I never accept
what the doctors tell me and I do things they say I can't do. My
younger brother never let his condition stop him as long as he could
keep going he did and attempted things even I didn't consider.
Do you have a poem or
I'm afraid there was no way to make this short as there
is lots of information here. Some may apply to many people and some
only to me. I have to make another point here...I use homeopathic
remedies, some people have a very difficult time accepting
that and if you are one of the people are unwilling to consider them I
would suggest that you not even read any further.
asked the homeopath one
is helping me what advice I could give people with one of the forms of
MD? His answer was "Get
to a good
as soon as possible"
Still taking the
COQ10. Always trying different options but haven't hit on the answer
yet. The other thing is I at least seem to be maintaining my current
level of function.
Nov 1 2007. I seem to have trouble going to sleep at night and I have
been getting cramps in my hands and feet now and then. Still taking 800
mg of Co Q10.
Fri Nov 2 2007. Same problem going to sleep at night. Feet get cold a
few minutes after going to bed. Haven't noticed anything getting better
Sun Nov 4 2007. Still having trouble going to sleep at night. Feet were
warm to the touch last night but had the sensation of being cold,
especially right foot around big toe. Had trouble standing yesterday
and today and right ankle started trying to turn worse today. Remedy
seems to be holding 6 to 7 days so I'll take it every 6 days for awhile
starting tonight (7 sucussions).
Mon Nov 5 2007. Trouble standing again today but it has been worse.
Very tired all day.
Wed Nov 7 2007. Having trouble standing to get dressed the last 2 days.
Seems okay as long as I have something to hold onto. Still having
trouble going to sleep, then it's hard to wake up. Left foot seems to
be trying to turn more than the right at the moment. Had a headache
yesterday, I think it was mainly sinus pressure but I was stiff in my
neck on the left side which is also the side where I had the headache.
Fri Nov 9 2007. Left ankle tends to turn some today. Legs are a little
sore and weak. Eyes are very tired.
Sat Nov 10 2007. Ankles turning but still was able to stand a bit. Time
for remedy again (8 succussions).
Tues Nov 13 2007. Stiff neck, sore back and weak legs today. I think it
is mainly from sleeping wrong though.
Wed Nov 14 2007. Not seeing anything different. Legs still weak.
Fri Nov 16 2007. Legs have been sore and weak. Left leg was cramping
when I woke up today. Very difficult to stand. Time for remedy again (9
Sat Nov 17 2007. Had trouble getting out of bed. Legs have been stiff
all day. Had trouble standing but not as bad as yesterday.
Sun Nov 18 2007. Left leg cramping when I got up, left hand cramped
later in the day. Trouble bending knees and picking feet up so was very
difficult to walk.
Mon Nov 19 2007. Have been having a problem when I stand, feet turn and
slide. Ankles still turn but that seems a little better. Legs still
very stiff and knees don't bend making it difficult to sit down.
Tues Nov 20 2007. Legs tired again. Have trouble keeping feet straight
when I stand but ankles don't turn as bad. Legs still stiff and can't
pick feet up because knees won't bend.
Wed Nov 21 2007. Right ankle tries to turn, I stop it then my foot
slides. Still can't bend knees and pick feet up. Big toe on right foot
always feels like something heavy is on it in bed, even when the
blanket isn't laying on it. Had trouble sleeping last night, stomach
was making noise and was sore.
Thurs Nov 22 2007. Got up earlier than usual. Legs still felt weak. Had
a difficult time going to sleep last night. Right ankle was turning
again today. Stomach sore again last night. Time for remedy again (10
Fri Nov 23 2007. Was really tired today. Left ankle turning a little
worse than right but feet keep sliding when I stand. Feet were very
cold in bed last night and couldn't sleep.
Sat Nov 24 2007. Not much difference today.
Sun Nov 25 2007. Neck stiff with headache when I got up. Headache
lasted quite awhile. Trouble standing and ankles turning.
Mon Nov 26 2007. Was a better day today. Still having some problems
with ankles turning. Was feeling a little depressed tonight but it
didn't last. Had 3 stools today so at least I got some of that out and
stomach isn't as sore (felt like a big ball knotted up in my stomach
Tues Nov 27 2007. Have been down today ( no interest in doing
anything). Ankles turning bad.
Wed Nov 28 2007. Still kind of down, no interest still. Legs weak and
feel like they will give out if I stand. Ankles still turning. Time for
remedy again (3 succussions).
Thurs Nov 29 2007. Trouble going to sleep again last night. Slept late
today and shoulders and legs have been sore all day. Still having
trouble standing and ankles turn or feet slide when I stand.
Fri Nov 30 2007. Feet and legs hurt all night. Feet bothered me all
day, swelled up and burning sensation. Seems to have started after
starting the CO Q10. I decided to take that symptom into account and
select a remedy based on just the recent stuff.