About Muscular Dystrophy, Personal Log November 2008

There are many reasons for this page. While there is much information on Muscular Dystrophy on the Internet and various other places. I wanted to provide a place where much of that information could be located easily.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedrich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

If you read as much as I have from the conventional medical field you tend to lose hope of a treatment or cure.

My feelings are do as much as you can. I never accept what the doctors tell me and I do things they say I can't do. My younger brother never let his condition stop him as long as he could keep going he did and attempted things even I didn't consider.

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"

Nov 2008

Seem to have feet and ankles swelling again this month

Sat Nov 1 2008. Had nausea last night (felt like I was going to throw up). Have been tired all day. Had a slight headache all day. Ears ringing very loud. No remedy.

Sun Nov 2 2008. Headache and tired all day (left eye and back of neck). Ears ringing. Nausea tonight. Ears ringing. Taking Sul tonight.

Mon Nov 3 2008. Stomach problems all day. Ears ringing very loud. Some sneezing. Feet and ankles swollen, left foot burning. Taking Sul again.

Tues Nov 4 2008. Very tired and feet still felt swollen. Ears still ringing. Last two days have had a pain in chest (right side, feels like it goes straight through to shoulder blade). Neck is a little stiff and a slight headache. Taking Sul again.

Thurs Nov 6 2008. Went to bed very late and got up in about 4 hours. Feet hurt last night. Stomach felt like a ball in it all night. Woke up with a very bad taste in my mouth. Feet and legs hurt most of the day. Ears still ringing loud. Waiting another day or so on the remedy.

Fri Nov 7 2008. Right foot hurts at night (just behind big toe), when I lay on left side it hurts from touching bed, when I lay on right side it hurts from covers laying on it. Legs very weak today and ears ringing very loud. Taking Con tonight.

Tues Nov 11 2008. Have been a little busy so have neglected my posts here. Seem to get gas every time I eat anymore. Had a headache when I got up today from staying in bed too long. Ears still ringing really loud. Just don't seem to have energy or ambition these days.

Thurs Nov 13 2008. Right foot and lower leg gets cold at night, left stays pretty warm. Neck is always stiff and head hurts when I wake up. Legs weak and ears ringing very loud.

Sat Nov 15 2008. Feet hurt yesterday, last night and today. Have been down since yesterday, no ambition and feeling sad. Right hand got a cramp earlier tonight. Ears still ringing very loud. Taking Con tonight.

Sun Nov 16 2008. Not doing very well today. Legs weak, trouble standing, sore all over and ears ringing loud. Still no ambition.

Tues Nov 18 2008. Feet and legs have been hurting. Feet seem warm when I go to bed but get cold after I get in bed, right is colder than left but both have sensation of being cold. Having trouble standing. Feel very tired and ears still ringing loud.

Wed Nov 19 2008. Feet hurt and feel like they are burning. Legs still hurting too. Nose tends to drip when I lean forward. Ears still ringing. Just can't seem to get myself motivated.

Sat Nov 22 2008. Very tired today. Feet not as bad but still burning. Ears still ringing and still not motivated. Took Merc tonight since I haven't seen anything from the Con.

Sun Nov 23 2008. Maybe legs were not as bad today, hard to tell because it was such a small change. Nose starting to drip again. Ears still ringing.

Tues Nov 25 2008. Legs sticks straight out and are very stiff when I sit down. Stomach has been very sore without a stool. Ears ringing loud, sinus pressure with a slight headache.

Fri Nov 28 2008.Took Con last night. Right foot had sensation of being very cold but was warm to the touch, left foot was actually colder to the touch (opposite of how it normally is). Right foot hurt all night and covers felt very heavy. Bladder has been a bit of a problem all day. Ears still ringing.

Sun Nov 30 2008. Fri night foot that was cold changed back to right foot. Last night both were warm. Foot swelling has went down some. Have had sinus headache for 2 days (sore around eyes), neck has been stiff. Ears ringing even louder than usual.