About Muscular Dystrophy Logo, Downriver Michigan
There are many reasons for this page. While there is much information on Muscular Dystrophy on the Internet and various other places. I wanted to provide a place where much of that information could be located easily.

Let me make it perfectly clear that I am neither a doctor or any other type of health care professional. My only knowledge comes from the fact that I have a form of MD called Friedrich's Ataxia. I have spent some time looking for information and possible treatments which I will share with anyone here.

I invite anyone to share any knowledge they may have with visitors to this site. Simply email me

If you read as much as I have from the conventional medical field you tend to lose hope of a treatment or cure.

My feelings are do as much as you can. I never accept what the doctors tell me and I do things they say I can't do. My younger brother never let his condition stop him as long as he could keep going he did and attempted things even I didn't consider.

Do you have a poem or story? Send it here

I'm afraid there was no way to make this short as there is lots of information here. Some may apply to many people and some only to me. I have to make another point here...I use homeopathic remedies, some people have a very difficult time accepting that and if you are one of the people are unwilling to consider them I would suggest that you not even read any further.
I asked the homeopath one day who is helping me what advice I could give people with one of the forms of MD? His answer was "Get to a good homeopath as soon as possible"

Dec 2007
Trying a remedy I used several years ago but in a higher potency. The other thing is I at least seem to be maintaining my current level of function.
Sat Dec 1 2007. Feet and legs still hurt last night and kept me awake. Still having some weakness and difficulty standing today. Feet still feel swelled (shoes are tight).

Sun Dec 2 2007. Feet and legs hurt for awhile last night but feet didn't seem to be swelled up as bad when I got up (had taken a dose of Nat Mur before going to bed). Still having trouble standing but may not be as bad. Mood still down.

Mon Dec 3 2007. Legs stiff all day. Legs and shoulders have been sore for a few days. Ankles turning some today. Still having a hard time standing.

Tues Dec 4 2007. Right ankle turning bad today. Couldn't stand today (legs weak and balance even worse than usual). Lots of sinus drainage causing a bad taste and smell. Shoulders still sore and legs weak. Time for remedy again (4 succussions).

Wed Dec 5 2007. Right leg was sore when I got up (like it had been cramping). Right ankle turning making it hard to stand. Did seem a little more able to stand to get dressed, it wasn't good but better than yesterday.

Thurs Dec 6 2007. Legs sore again when I got up. Right ankle was better, left was turning. Felt tired all day and even though I felt like I didn't want to do anything I still managed to do a couple of things and started thinking about doing things.

Fri Dec 7 2007. Left leg hurting like it was cramping during the night. Ankles would turn at times. Very tired all day.

Sat Dec 8 2007. Legs sore, neck stiff, arms and shoulders sore. No energy but had a desire to work on something.

Sun Dec 9 2007. Legs very stiff, sore all over. Difficult to stand long enough to pull pants up.

Mon Dec 10 2007. Don't seem to be sleeping well and for a few nights feet have felt ice cold after getting in bed. Legs seem very stiff and sore, knees won't bend and can't pick feet up. Right ankle tends to turn. Time for remedy again (5 succussions).

Tues Dec 11 2007. Trouble going to sleep last night (gas pains). Still tired when I did get up. Ankles not turning as bad today. Still had the gas pains, bloated feeling, pants very tight, took a dose of Lyc 30c and it eased up (started feeling things in stomach and pain and bloating eased).

Wed Dec 12 2007. Legs weak and sore when I got up. Still sore and knees still won't bend but seem to be able to stand just a little better.

Thurs Dec 13 2007. Neck and shoulders sore today. Some back pain. Seemed able to stand a little better till I hit my knee on a doorway then I couldn't stand on that leg.

Sat Dec 15 2007. Went to see the Christmas lights last night. I'm paying for it today, everything is sore, back, neck, legs, shoulders. Was able to stand to get dressed today.

Sun Dec 16 2007. Very sore and weak when I got up. Ankles turning to the point where I had trouble stepping because of the ankles turning and not being able to bend knees. Time for remedy again 6 succussions).

Mon Dec 17 2007. Still sore and stiff. When I wake up in the morning I tend to streach out and usually get a cramp in right calf. Did seem better able to stand today.

Tues Dec 18 2007. Same as yesterday.

Wed Dec 19 2007. Trouble sleeping last night. Slept late and woke up with a bit of a headache and pain around right shoulder blade. Was still able to stand better. Legs still very stiff.

Thurs Dec 20 2007. Back not hurting as bad today. Could still stand better than usual. Still kind of tired. Legs stiff and knees still don't want to bend.

Sat Dec 22 2007. Feet were cold the last couple of nights. Bladder was a little worse today stopping me from being able to take a nap for over about an hour. Was still able to stand ok, was very sleepy all day.

Sun Dec 23 2007. Stomach cramps all day. Difficult to stand without losing balance and ankles turning bad. Time for remedy again (7 succussions).

Mon Dec 24 2007. Had a lazy day. Stomach still giving me trouble. Left ankle a little better but right still turning.

Tues Dec 25 2007. Left knee gave out soon after getting up, seemed better later on. Everything else pretty much the same.

Thurs Dec 27 2007. Had trouble going to sleep last night. Left leg cramping when I got out of bed, couldn't hold weight. Once the cramp went away it was better. Left hand cramped tonight. Took a dose of Mag Phos 30c.

Fri Dec 28 2007. Always feel more tired when I wake up in the morning than I did when I went to bed. Standing was no better or worse than yesterday, Neck and shoulders have a lot of pain. Took a dose of Calc Phos 30c, it helped a few years ago and much of it matches so I'm testing it again.

Sat Dec 29 2007. Got up earlier today than usual. Didn't really notice much else. Legs still very stiff and knees wouldn't bend. Will take Calc Phos 2 more times unless I notice a substantial difference. Took the second dose of Calc Phos.

Sun Dec 30 2007. Woke up at 9am this morning but went back to sleep. Standing seemed to be maybe a little better. Left arm is sore near the shoulder, right doesn't hurt as much as it had been. Took 3rd dose tonight.

Mon Dec 31 2007. Got up earlier than usual. Ankles weren't turning as bad today but legs would twist when I would stand (a little better I think). Now I wait and watch. Ate some wheat toast today and inside of mouth feels like it has blisters, a dose of Nat Mur will hopefully correct that. I seem to be sensitive to wheat or dark breads.
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